Resilience in Pediatric Sickle Cell Disease and Cancer: Social Ecology Indicators of Health-Related Quality of Life

2016 ◽  
pp. 77-101
Author(s):  
Katherine S. Salamon ◽  
Lisa A. Schwartz ◽  
Lamia P. Barakat
Keyword(s):  
Quality Of Life ◽  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Social Ecology ◽  
Health Related Quality ◽  
Cell Disease ◽  
Related Quality ◽  
Health Related ◽  
Pediatric Sickle Cell Disease

Executive functioning and health-related quality of life in pediatric sickle cell disease

2016 ◽  
Vol 23 (8) ◽  
pp. 889-906 ◽  
Author(s):  
Taryn M. Allen ◽  
Lindsay M. Anderson ◽  
Jennifer A. Rothman ◽  
Melanie J. Bonner
Keyword(s):  
Quality Of Life ◽  
Sickle Cell Disease ◽  
Executive Functioning ◽  
Sickle Cell ◽  
Health Related Quality ◽  
Cell Disease ◽  
Related Quality ◽  
Health Related ◽  
Pediatric Sickle Cell Disease

Health-related quality of life and neuropathic pain in sickle cell disease in Jamaica

2021 ◽  
pp. 101107
Author(s):  
Rachel Bartlett ◽  
Zachary Ramsay ◽  
Amza Ali ◽  
Justin Grant ◽  
Angela Rankine-Mullings ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Neuropathic Pain ◽  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Health Related Quality ◽  
Cell Disease ◽  
Related Quality ◽  
Health Related

Health Related Quality of Life of Children with Sickle Cell Anemia and Their Parents; Quantitative Study in Albaha; Saudi Arabia

2021 ◽  
pp. 9-17
Author(s):  
Turki Alzahrani ◽  
Raed Alzahrani ◽  
Amer Alzahrani ◽  
Abdullah Alzahrani ◽  
Abdu Adawi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Saudi Arabia ◽  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Healthy Children ◽  
Health Related Quality ◽  
Cell Disease ◽  
Related Quality ◽  
Health Related

Aims: To gain a better understanding of the quality of life (QoL) of children and impact of this disease on parents QoL. Study Design: Cross-sectional study. Place and Duration of Study: The study was conducted in King Fahd Hospital, Albaha city, Albaha, Saudi Arabia, between March2020 and February 2021. Methodology: We included 95 responses. Two different tools were used for the purpose of this study. PedsQL™ Sickle Cell Disease Module was used to measure health-related quality of life (HRQoL) in healthy children and adolescents and those with acute and chronic health conditions. Moreover, PedsQL™ Family Information Form was completed by caregivers. Median and interquartile range were used for numerical variables since they were skewed. Bivariate analyses were carried out using non-parametrical tests and Pearson correlation. The prediction of QoL was accomplished through multivariate analysis. Results: A total of (95) responses were analyzed. Female respondents were 52.6%. The age median was 12 (IQR=10-14). Mothers represented the most frequent informant 46.3% in this current study. Significant association was found between QoL and certain independent factors, some of which is parental level of education (P< .001) and marital support (P< .001). Conclusion: Sickle cell disease (SCD) is a major condition accounts for a huge burden on variable levels. This study reported that low QoL among children affected by SCD. Higher education and current marital status of the parents were significantly associated with high QoL in SCD patients. Number of workdays affected due to child health was significantly correlated with low QoL.

scholarly journals Disease Self-Efficacy and Health-Related Quality of Life in Adolescents With Sickle Cell Disease

2020 ◽  
Vol 42 (2) ◽  
pp. 141-144 ◽  
Author(s):  
Alana Goldstein-Leever ◽  
James L. Peugh ◽  
Charles T. Quinn ◽  
Lori E. Crosby
Keyword(s):  
Quality Of Life ◽  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Self Efficacy ◽  
Health Related Quality ◽  
Cell Disease ◽  
Related Quality ◽  
Health Related

scholarly journals Health-related quality of life in patients with sickle cell disease in Saudi Arabia

2015 ◽  
Vol 13 (1) ◽  
Author(s):  
Anwar E. Ahmed ◽  
Ahmed S. Alaskar ◽  
Ahmad M. Al-Suliman ◽  
Abdul-Rahman Jazieh ◽  
Donna K. McClish ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Saudi Arabia ◽  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Health Related Quality ◽  
Cell Disease ◽  
Related Quality ◽  
Health Related
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