scholarly journals Creation and provision of a question and answer resource for esophageal cancer based on medical professionals’ reports of patients’ and families’ views and preferences

Esophagus ◽  
2021 ◽  
Author(s):  
Yasushi Toh ◽  
Yoji Inoue ◽  
Masayo Hayakawa ◽  
Chikako Yamaki ◽  
Hiroya Takeuchi ◽  
...  

Abstract Background In the rapidly-progressing healthcare environment, it is essential to improve treatment quality through continuous clarification of the needs and concerns of esophageal cancer patients and their families. Effective collaboration between information providers and academic associations could help make such clarified information available. Methods We analyzed esophageal cancer patients’ views and preferences (PVPs) using data that were previously obtained from medical staff in Japan. Based on these PVPs, we created a question and answer (Q&A) resource through collaboration with the Cancer Information Service in Japan (CISJ) and the Japan Esophageal Society (JES). Results Regarding esophageal cancer, “diet and eating behavior” was the most frequent PVP mentioned by patients and their families, followed by “treatment-related symptoms and adverse effects” and “daily life, recuperation, and survivorship.” These PVPs were noted by a wide variety of medical specialties. By analyzing the PVPs, the CISJ developed 11 proposed questions and sent them to the JES, which then created answers based on evidence and clinical–practice-associated consensus. The resultant Q&A resource was uploaded to the CISJ website with mutual linkage to the JES website. Conclusions This study showed the usefulness of collecting esophageal–cancer-related PVPs from medical staff and fostering successful collaboration between a cancer-information provider and an academic association. This arrangement may represent a model case for developing a sustainable system that can satisfactorily respond to PVPs regarding other cancers and/or issues.

2005 ◽  
Vol 10 (sup1) ◽  
pp. 15-34 ◽  
Author(s):  
Linda Squiers ◽  
Lila J. Finney Rutten ◽  
Katherine Treiman ◽  
Mary Anne Bright ◽  
Bradford Hesse

2011 ◽  
Vol 97 (4) ◽  
pp. 510-516 ◽  
Author(s):  
Ivana Truccolo ◽  
Rosaria Bufalino ◽  
Maria Antonietta Annunziata ◽  
Anita Caruso ◽  
Anna Costantini ◽  
...  

2018 ◽  
Vol 31 (Supplement_1) ◽  
pp. 159-159
Author(s):  
Prasit Mahawongkajit

Abstract Background In esophageal cancer treatment, nutrition by feeding tube has been demonstrated to improve patient tolerance of treatment, quality of life, and long term outcomes. The open gastrostomy and percutaneous endoscopic gastrostomy (PEG) push technique are procedures that avoid cancer cells seeding and also improve patient nutritional status. The aim of this study is to compare the results of the push PEG and open gastrostomy in patients with advanced esophageal cancer. Methods A retrospective study was analyzed in the advanced esophageal cancer patients who indicated and received feeding support between January 2016 and December 2017. Results 28 patients in push PEG and 36 patients in open gastrostomy presented the following comparative data: mean operative duration time shorter in push PEG (11.9 min) than open gastrostomy (35.1 min), less blood loss in push PEG (0.8 mL) than open gastrostomy (5.6 mL), less pain score in push PEG (2.4) than open gastrostomy (5.9) and shorter hospitalization in push PEG (1.8 days) than open gastrostomy (2.6 days). Both groups showed no readmission or 30 day mortality. The adverse events of open gastrostomy demonstrated higher than push PEG group. Conclusion Both push PEG and open gastrostomy were the safe options for advanced esophageal cancer patients indicating for enteral nutrition and to avoid cancer cell seeding. The push PEG demonstrated the effective minimally invasive procedure, was safe and with fewer complications. Disclosure All authors have declared no conflicts of interest.


2009 ◽  
Vol 29 (2) ◽  
pp. 80-88 ◽  
Author(s):  
M.J. Verhoef ◽  
L. Trojan ◽  
G.D. Armitage ◽  
L. Carlson ◽  
R.J. Hilsden

Many cancer patients seek complementary therapies (CTs) for cancer management; however, relatively little is known about patients’ CT information seeking behaviour. Therefore, we assessed: 1) cancer patients’ use of the types and sources of CT information; 2) their information preferences; and 3) their understanding of the phrase “scientific evidence or proof that a therapy works.” We collected data from 404 patients attending the Tom Baker Cancer Centre (TBCC) in Calgary and 303 patients calling the Cancer Information Service (CIS) helpline. In most cases, patients wanted information on the safety of CTs, how CTs work and their potential side effects. Physicians and conventional cancer centres were the most desired sources of CT information, but relatively few patients obtained information via these sources. Although patients were aware of the meaning of scientific evidence, they often used information based on non‑scientific evidence, such as patient testimonials. The creation of a supportive care environment in conventional cancer treatment centres, by providing CT information, may help address cancer patients’ concerns and alleviate some of the stress that may have been caused by the cancer diagnosis.


2001 ◽  
Vol 52 (2) ◽  
pp. 75-81
Author(s):  
Hideo Shimada ◽  
Osamu Chino ◽  
Takayuki Nishi ◽  
Hikaru Tanaka ◽  
Yoshifumi Kise ◽  
...  

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