Effective Interventions to Support Self-management for Parents of Children with a Chronic Condition: A Systematic Review

Author(s):  
Chantal Olij ◽  
Mariëtte Vos ◽  
Nicky van Oostrum ◽  
Faridi van Etten- Jamaludin ◽  
Jolanda Maaskant
2017 ◽  
Author(s):  
Leanna Sarah Woods ◽  
Jed Duff ◽  
Elizabeth Cummings ◽  
Kim Walker

2018 ◽  
Vol 16 (4) ◽  
pp. 239-252 ◽  
Author(s):  
Nicole Saxby ◽  
Sean Beggs ◽  
Nadish Kariyawasam ◽  
Malcolm Battersby ◽  
Sharon Lawn

Objectives To determine whether evidence-based practice guidelines promote developmentally appropriate chronic condition self-management for children with asthma, type 1 diabetes mellitus, and cystic fibrosis. Methods Systematic review of clinical guidelines current as at 22 September 2017, including assessment of quality of each guideline using the iCAHE ‘Guideline Quality Checklist’, and mapping of the supporting evidence. Results Fifteen guidelines were identified: asthma ( n=7) and type 1 diabetes mellitus ( n=7), CF ( n=1). Guideline quality was variable, and 11 different grading systems were used. In total, there were 28 recommendations promoting age/developmental considerations. Recommendations focused on: collaboration ( n=15), chronic condition self-management education ( n= 17), clinicians’ skills ( n= 4); personalized action plans ( n=3), problem-solving ( n=2); and the assessment of children’s chronic condition self-management needs ( n=3). Developmental transitions are highlighted as important time points in some guidelines: preschool ( n=2), and adolescence ( n=3). All guidelines encouraged triadic partnerships between children, adult caregivers and clinicians. Evidence supporting the developmental aspects of the guidelines’ recommendations was poor; only 14 out of 57 journals listed as evidence were concordant. Discussion Current guidelines articulate that developmentally appropriate chronic condition self-management is important; however, more work needs to be done to translate the concept into practical clinical tools.


Diabetes ◽  
2019 ◽  
Vol 68 (Supplement 1) ◽  
pp. 824-P
Author(s):  
SOOHYUN NAM ◽  
ROBIN WHITTEMORE ◽  
DAVID VLAHOV ◽  
GENEVIEVE DUNTON

Author(s):  
DIAN HUDIYAWATI

Introduction. Thirst is a common symptom of chronic heart failure (CHF) patients. Difficulties to adherence with fluid restrictions are among the effects of thirst in HF patients and therefore have an impact on worsening condition, but intervention studies aimed specifically at reducing thirst in CHF are lacking.Purpose. Purpose of this manuscript is to assess the effective intervention to reduce thirst intensity in CHF patients.Methods. Medline, Pubmed, EBSCO and hand search were searched using the key words thirst, intervention, heart failure, CHF, fluis restriction, therapy.Result.� Eighteen articles were found, six studies were inluded. Any kind of interventions in each articles, include: drink cold water 5oC, chewing gum, saliva substitute, sucking ice cubes and three bundle of interventions (oral swab, water sprays and menthol moisturizer).Conclusions. The most effective interventions to alleviate thirst was sucking ice cubes. But, no intervention studies were found in congestive heart failure patients. So investigations in people with heart failure is needed.�Keywords: thirst, intervention, heart failure, systematic review


Sign in / Sign up

Export Citation Format

Share Document