Agreement of child and parent-proxy reported health-related quality of life in children with mental disorder

2018 ◽  
Vol 28 (3) ◽  
pp. 703-712 ◽  
Author(s):  
Irina I. Oltean ◽  
Mark A. Ferro
Keyword(s):  
Quality Of Life ◽  
Mental Disorder ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Reported Health ◽  
Parent Proxy

Parent-proxy and child self-reported health-related quality of life: using qualitative methods to explain the discordance

2007 ◽  
Vol 16 (5) ◽  
pp. 863-871 ◽  
Author(s):  
Elise Davis ◽  
Caroline Nicolas ◽  
Elizabeth Waters ◽  
Kay Cook ◽  
Lisa Gibbs ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Qualitative Methods ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Reported Health ◽  
Parent Proxy

The Vietnamese Version of the Health-related Quality of Life Measure for Children with Epilepsy (CHEQOL-25): Reliability

MedPharmRes ◽  
2017 ◽  
Vol 1 (1) ◽  
pp. 9-14
Author(s):  
Tri Doan ◽  
Tuan Tran ◽  
Han Nguyen ◽  
◽  
◽  
...  
Keyword(s):  
Quality Of Life ◽  
Good Practice ◽  
The Self ◽  
Self Report ◽  
Health Related Quality ◽  
Life Measure ◽  
Related Quality ◽  
Health Related ◽  
Parent Proxy

Purpose: This study aimed to translate and culturally adapt the self-report and parent-proxy Health-Related Quality of Life Measure for Children with Epilepsy (CHEQOL-25) into Vietnamese and to evaluate their reliability. Methods: Both English versions of the self-report and parent-proxy CHEQOL-25 were translated and culturally adapted into Vietnamese by using the Principles of Good Practice for the Translation and Cultural Adaptation Process. The Vietnamese versions were scored by 77 epileptic patients, who aged 8–15 years, and their parents/caregivers at neurology outpatient clinic of Children Hospital No. 2 – Ho Chi Minh City. Reliability of the questionnaires was determined by using Cronbach’s coefficient α and intra-class correlation coefficient (ICC). Results: Both Vietnamese versions of the self-report and parent-proxy CHEQOL-25 were shown to be consistent with the English ones, easy to understand for Vietnamese children and parents. Thus, no further modification was required. Cronbach’s α coefficient for each subscale of the Vietnamese version of the self-report and parent-proxy CHEQOL-25 was 0.65 to 0.86 and 0.83 to 0.86, respectively. The ICC for each subscale of the self-report and parent-proxy CHEQOL-25 was in the range of 0.61 to 0.86 and 0.77 to 0.98, respectively. Conclusion: The Vietnamese version of the self-report and parent-proxy CHEQOL-25 were the first questionnaires about quality of life of epileptic children in Vietnam. This Vietnamese version was shown to be reliable to assess the quality of life of children with epilepsy aged 8–15 years.

Short-term patient reported health-related quality of life (HRQL) outcomes after robot-assisted radical cystectomy (RARC)

2013 ◽  
Vol 113 (2) ◽  
pp. 260-265 ◽  
Author(s):  
Michael A. Poch ◽  
Andrew P. Stegemann ◽  
Shabnam Rehman ◽  
Mohamed A. Sharif ◽  
Abid Hussain ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Radical Cystectomy ◽  
Health Related Quality ◽  
Robot Assisted ◽  
Short Term ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
Reported Health

scholarly journals Association of the Functional Medicine Model of Care With Patient-Reported Health-Related Quality-of-Life Outcomes

2019 ◽  
Vol 2 (10) ◽  
pp. e1914017 ◽  
Author(s):  
Michelle Beidelschies ◽  
Marilyn Alejandro-Rodriguez ◽  
Xinge Ji ◽  
Brittany Lapin ◽  
Patrick Hanaway ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Life Outcomes ◽  
Model Of Care ◽  
Quality Of Life Outcomes ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
Reported Health

Effect of vitiligo on self-reported health-related quality of life

2005 ◽  
Vol 152 (6) ◽  
pp. 1165-1172 ◽  
Author(s):  
K. Ongenae ◽  
N. Van Geel ◽  
S. De Schepper ◽  
J.M. Naeyaert
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Reported Health

scholarly journals Problem-Solving Skills Training for Vulnerable Families of Children with Persistent Asthma: Report of a Randomized Trial on Health-Related Quality of Life Outcomes

2010 ◽  
Vol 35 (10) ◽  
pp. 1133-1143 ◽  
Author(s):  
Michael Seid ◽  
James W. Varni ◽  
Pradeep Gidwani ◽  
Leticia Reyes Gelhard ◽  
Donald J. Slymen
Keyword(s):  
Quality Of Life ◽  
Problem Solving ◽  
Persistent Asthma ◽  
Skills Training ◽  
Health Related Quality ◽  
Vulnerable Families ◽  
Related Quality ◽  
Health Related ◽  
Parent Proxy

Abstract Objectives To test the efficacy of problem-solving skill training (PST) in improving health-related quality of life (HRQOL) of children with persistent asthma from predominantly lower socioeconomic status (SES) Spanish-speaking Hispanic families. Methods Randomized controlled trial comparing standard care waitlist (SC) control, home-visiting asthma education/care coordination (CC), and combined intervention (CC + PST) at baseline, after intervention, and 6-month follow-up. The primary outcome was parent proxy-report child HRQOL (PedsQL). Results Participants (n = 252) were 83.3% Hispanic and 56.3% monolingual Spanish speakers, and 72.6% of mothers had not graduated high school. We found a significant (P = 0.05) intervention effect for parent proxy-reported child generic (but not asthma-specific) HRQOL, with CC + PST superior to SC [83.8 vs 79.8; adjusted mean difference of 4.05 points (95% confidence interval 0.63–7.4], but no difference between the CC and SC groups. Conclusions In this sample of vulnerable families of children with persistent asthma, a CC + PST intervention was efficacious in improving children’s generic HRQOL.

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