Caregivers in the management of home-enteral-nutrition-patients: observational study on epidemiology, organisation, technical aspects and quality of life

2011 ◽  
Vol 5 (3) ◽  
pp. 233-239 ◽  
Author(s):  
Lucio Lucchin ◽  
Laura Vedovato ◽  
Marion Schrei ◽  
Michael Kob
Keyword(s):  
Quality Of Life ◽  
Enteral Nutrition ◽  
Observational Study ◽  
Technical Aspects ◽  
Home Enteral Nutrition

PP066 EFFECTS OF A THREE-MONTH HOME ENTERAL NUTRITION (HEN) ON QUALITY OF LIFE (QOL): A PROSPECTIVE MULTICENTRE OBSERVATIONAL STUDY

2010 ◽  
Vol 5 (2) ◽  
pp. 48-49
Author(s):  
X. Hebuterne ◽  
A. Bouvet ◽  
L. Garin ◽  
M. Sarazin ◽  
D. Seguy ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Enteral Nutrition ◽  
Observational Study ◽  
Home Enteral Nutrition

P-371: Enteral nutrition, health status and perceived quality of life in advanced dementia: observational study

2015 ◽  
Vol 6 ◽  
pp. S131
Author(s):  
A. Ticinesi ◽  
A. Nouvenne ◽  
N. Cerundolo ◽  
B. Prati ◽  
I. Morelli ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Enteral Nutrition ◽  
Observational Study ◽  
Perceived Quality ◽  
Advanced Dementia ◽  
Perceived Quality Of Life

scholarly journals The NutriQoL ® questionnaire for assessing health-related quality of life (HRQoL) in patients with home enteral nutrition (HEN): validation and fi rst results

2016 ◽  
Vol 33 (6) ◽  
pp. 1260 ◽  
Author(s):  
Antonio Apezetxea ◽  
Lourdes Carrillo ◽  
Felipe Casanueva ◽  
Cristina Cuerda ◽  
Federico Cuesta ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Enteral Nutrition ◽  
Sole Source ◽  
Underlying Disease ◽  
Routine Practice ◽  
Health Related Quality ◽  
Home Enteral Nutrition ◽  
Related Quality ◽  
Health Related

Introduction: Health-related quality of life (HRQoL) provides a global view of the state of health of a patient receiving home enteral nutrition (HEN). Objective: To evaluate the HRQoL of patients receiving HEN using the NutriQoL® questionnaire, a specifi c instrument regardless of the underlying disease and route of administration.Materials and methods: Observational, prospective and multicentre study conducted in the context of the validation and assessment of the NutriQoL® questionnaire’s psychometric properties.Results: One-hundred-and-forty individuals [disease: cancer (58.6%), malabsorption and other (27.1%), neurological (13.6%); HEN: supplement (61.4%), sole source of nutrition (35.7%); administration route: oral (54.3%), ostomy (31.4%), nasoenteric tube (12.1%)] participated. NutriQoL® was reliable [ICC: 0.88 (95%CI: 0.80-0.93); Cronbach’s α: 0.77 (1st visit) and 0.83 (2nd visit)], valid (signifi cant Rho), lowly sensitive to changes (effect size 0.23), can be completed by either patients or caregivers (ICC: 0.82). The mean HRQoL (SD) with NutriQoL® was 14.98 (14.86), EQ-5D tariff: 53(0.25), EQ-5D VAS: 54.15 (20.64) and COOP/WONCA charts: 23.32(5.66). HRQoL with NutriQoL® was better (p < 0.05) for oral HEN [19.54 (13,23)], than nasoenteric tube [14(11.71)], ostomy [7.02 (15.48)]; administered orally [19.54 (13.23)], than by gravity [10.97 (14.46)], pump [8.5 (19.78)] or syringe bolus [7 (11.40)]; as a supplement [19.33 (13.73)] instead of sole source of nutrition [8.18 (14.23)].Conclusions: NutriQoL® is valid, reliable, even if lowly sensitive to change, and useful to measure HRQoL in this population. More studies are needed to know HRQoL in routine practice.

scholarly journals Health-Related Quality of Life and Home Enteral Nutrition in Children with Neurological Impairment: Report from a Multicenter Survey

Nutrients ◽  
2019 ◽  
Vol 11 (12) ◽  
pp. 2968 ◽  
Author(s):  
Valeria Dipasquale ◽  
Marco Ventimiglia ◽  
Simone Maria Calogero Gramaglia ◽  
Barbara Parma ◽  
Caterina Funari ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Enteral Nutrition ◽  
Healthcare Providers ◽  
Neurological Impairment ◽  
Health Related Quality ◽  
Home Enteral Nutrition ◽  
Multicenter Survey ◽  
Related Quality ◽  
Health Related

We aimed to measure the health-related quality of life (HRQoL) of children with neurological impairment (NI) on home enteral nutrition (HEN). An original survey among the caregivers of NI children on HEN for ≥ 12 months followed in three Italian centers (Messina, Como and Varese) was carried out between January 2013 and September 2018. The questionnaire was made up of 12 issues focused on the frequency with which certain situations associated with HEN are perceived, and grouped into physical and psychological/social dimensions. The results were analyzed statistically according to the age of the children, underlying disease, and the HEN programs’ duration. In total, 80 caregivers were approached, and 75 surveys were completed (an overall response rate of 93.7%). Nearly all the caregivers reported a satisfying HRQoL, ranging from acceptable (n = 6, 8%), to good (n = 22, 29.3%), to excellent (n = 47, 62.7%). A significant correlation was found between HRQoL and underlying NI-associated disease (p = 0.001). Our data showed that HEN positively affects the QoL of NI children and their caregivers. This should encourage healthcare providers to consider this nutritional intervention early in the approach to this group of patients, in order to prevent or reduce QoL impairment.

scholarly journals Caregiver Social Status and Health-Related Quality of Life in Neurologically Impaired Children on Home Enteral Nutrition

Nutrients ◽  
2021 ◽  
Vol 13 (6) ◽  
pp. 1928
Author(s):  
Valeria Dipasquale ◽  
Marco Ventimiglia ◽  
Simone Maria Calogero Gramaglia ◽  
Barbara Parma ◽  
Caterina Funari ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Enteral Nutrition ◽  
Social Status ◽  
Education Level ◽  
Health Related Quality ◽  
Original Cohort ◽  
Home Enteral Nutrition ◽  
Related Quality ◽  
Health Related

We aimed to investigate the association between caregiver social status and health-related quality of life (HRQoL) in children with neurological impairment (NI) on home enteral nutrition (HEN). This was an ancillary study of a multicenter, cross-sectional study which explored HRQoL in 75 NI children on HEN. All the caregivers from the original cohort were contacted, and data on education level, occupation and marital status were collected. The association between social status and HRQoL was investigated using a multiple Poisson Generalized Linear Model. In total, 93 caregivers were included, responsible for the care of 71 children. The caregivers of four children of the original cohort did not answer the questionnaire. Mothers with high-level education presented lower HRQoL in comparison to mothers with low-level (β: −5.97; 95% CI −11.51, −0.10; p = 0.027) or medium-level education (β: 4.85; 95% CI −9.87, 0.53; p = 0.044). The analysis of the subgroup of cases in which the main caregiver was represented by both parents gave similar findings, with education level of the father being negatively correlated with HRQoL. Our data showed that higher education level may negatively affect quality of life of caregivers of NI children. This could be helpful in identifying at-risk families and addressing supportive efforts.

Quality of life in long-term home enteral nutrition patients

2000 ◽  
Vol 19 (1) ◽  
pp. 23-28 ◽  
Author(s):  
S.M. Schneider ◽  
I. Pouget ◽  
P. Staccini ◽  
P. Rampal ◽  
X. Hebuterne
Keyword(s):  
Quality Of Life ◽  
Enteral Nutrition ◽  
Home Enteral Nutrition

scholarly journals The use of Lactobacillus plantarum 299v (DSM 9843) in patients with cancers receiving home enteral nutrition – study protocol for a randomized, double-blind, and placebo-controlled trial

2020 ◽  
Author(s):  
Kaźmierczak-Siedlecka Karolina ◽  
Marcin Folwarski ◽  
Karolina Skonieczna-Żydecka ◽  
Jakub Ruszkowski ◽  
Wojciech Makarewicz
Keyword(s):  
Quality Of Life ◽  
Enteral Nutrition ◽  
Nutritional Status ◽  
Cancer Patients ◽  
Lactobacillus Plantarum ◽  
Probiotic Strain ◽  
Double Blind ◽  
Home Enteral Nutrition ◽  
Enteral Formula

Abstract Background Nutritional treatment is one of the most important components of multidisciplinary anti-cancer therapy. Home enteral nutrition is considered a safe procedure, however, may be associated with the risk of side effects, such as nausea, vomiting, abdominal pain, and diarrhoea. It is uncertain whether diarrhoea is the result of the enteral formula or gut dysbiosis. One of the methods which may be used to alter the composition of gut microbiota is the administration of a probiotic strain. Lactobacillus plantarum 299v may be used as a supportive therapy in patients suffering from irritable bowel syndrome and Clostridium difficile infection. Therefore, the primary aim of this study is to determine the effect of Lactobacillus plantarum 299v on nutritional status of cancer patients receiving home enteral nutrition. The secondary aims are to evaluate the role of this probiotic strain in the improvement of tolerance of enteral formula and patients’ quality of life. Methods Forty patients with cancer receiving home enteral nutrition will be enrolled in this clinical trial and randomized to receive one capsule of Lactobacillus plantarum 299v (Sanprobi IBS®) twice a day or placebo for 12 weeks in a double-blind manner. Laboratory tests (the level of albumin, total protein, transferrin, and total lymphocyte count), anthropometric parameters (body mass, the content of fat mass, muscle mass, and total body water), Nutritional Risk Screening (NRS 2002), tolerance of enteral nutrition as well as quality of life will be measured. Measurements will be obtained at the baseline and after 4 and 12 weeks of treatment. Discussion It is expected that the Lactobacillus plantarum 299v will provide beneficial effects, such as maintenance or improvement of nutritional status, enteral formula tolerance, and quality of life of cancer patients receiving home enteral nutrition. Trial registration ClinicalTrials.gov Identifier: NCT03940768

scholarly journals The use of Lactobacillus plantarum 299v (DSM 9843) in cancer patients receiving home enteral nutrition – study protocol for a randomized, double-blind, and placebo-controlled trial

2020 ◽  
Author(s):  
Kaźmierczak-Siedlecka Karolina ◽  
Marcin Folwarski ◽  
Karolina Skonieczna-Żydecka ◽  
Jakub Ruszkowski ◽  
Wojciech Makarewicz
Keyword(s):  
Quality Of Life ◽  
Side Effects ◽  
Enteral Nutrition ◽  
Cancer Patients ◽  
Lactobacillus Plantarum ◽  
Probiotic Strain ◽  
Double Blind ◽  
Home Enteral Nutrition ◽  
Enteral Formula

Abstract Background Nutritional treatment is one of the most important components of multidisciplinary anti-cancer therapy. Home enteral nutrition is considered as a safe procedure, however, it may be associated with the risk of side effects, such as nausea, vomiting, abdominal pain, and diarrhoea. It is uncertain whether diarrhoea is the result of the enteral formula administration or gut dysbiosis. One of the methods which may be used to alter the composition of gut microbiota is the administration of a probiotic strain. Lactobacillus plantarum 299v ingestion was found to diminish the adverse events of irritable bowel syndrome and Clostridium difficile infection - entities that share the symptoms with enteral nutrition side effects. Therefore, the primary aim of this study is to determine the effect of Lactobacillus plantarum 299v on nutritional status of cancer patients receiving home enteral nutrition. The secondary aims are to evaluate the role of this probiotic strain in the improvement of enteral nutrition tolerance and patients’ quality of life. Methods Forty patients with cancer receiving home enteral nutrition will be enrolled in this clinical trial and randomized to receive one capsule of Lactobacillus plantarum 299v (Sanprobi IBS®) twice a day or placebo for 12 weeks in a double-blind manner. Laboratory tests (the level of albumin, total protein, transferrin, and total lymphocyte count), anthropometric parameters (body mass, the content of fat mass, muscle mass, and total body water), Nutritional Risk Screening (NRS 2002), enteral nutrition tolerance as well as quality of life will be measured. Measurements will be obtained at the baseline and after 4 and 12 weeks of treatment. Discussion The adverse events observed during administration of enteral nutrition have an negative impact on enteral formula tolerance and as a consequence patients’ quality of life. The previous studies have demonstrated that probiotics may reduce the gastrointestinal symptoms related to enteral nutrition. Thus, administration of Lactobacillus plantarum 299v may be effective in improvement of nutritional status, enteral nutrition tolerance, and quality of life of cancer patients receiving home enteral nutrition. Trial registration ClinicalTrials.gov Identifier: NCT03940768

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