scholarly journals Exploring approaches to facilitate family communication of genetic risk information after cystic fibrosis population carrier screening

2017 ◽  
Vol 9 (1) ◽  
pp. 71-80 ◽  
Author(s):  
Anita Gorrie ◽  
Alison D. Archibald ◽  
Liane Ioannou ◽  
Lisette Curnow ◽  
Belinda McClaren
Keyword(s):  
Cystic Fibrosis ◽  
Family Communication ◽  
Genetic Risk ◽  
Carrier Screening ◽  
Risk Information ◽  
Genetic Risk Information ◽  
Cystic Fibrosis Population

The Effect of Disruptions During Counseling on Recall of Genetic Risk Information: The Case of Cystic Fibrosis

2007 ◽  
Vol 16 (2) ◽  
pp. 179-190 ◽  
Author(s):  
James Price Dillard ◽  
Lijiang Shen ◽  
Audrey Tluczek ◽  
Peggy Modaff ◽  
Philip Farrell
Keyword(s):  
Cystic Fibrosis ◽  
Genetic Risk ◽  
Risk Information ◽  
Genetic Risk Information

Potential Threats to the Effective Communication of Genetic Risk Information: The Case of Cystic Fibrosis

2008 ◽  
Vol 23 (3) ◽  
pp. 234-244 ◽  
Author(s):  
James Price Dillard ◽  
Lijiang Shen ◽  
Anita Laxova ◽  
Phillip Farrell
Keyword(s):  
Cystic Fibrosis ◽  
Genetic Risk ◽  
Effective Communication ◽  
Risk Information ◽  
Genetic Risk Information

scholarly journals Improving our model of cascade testing for hereditary cancer risk by leveraging patient peer support: a concept report

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Suzanne C. O’Neill ◽  
Jada G. Hamilton ◽  
Claire C. Conley ◽  
Beth N. Peshkin ◽  
Rosalba Sacca ◽  
...  
Keyword(s):  
Cancer Risk ◽  
Peer Support ◽  
Family Communication ◽  
Genetic Risk ◽  
Family Members ◽  
Risk Information ◽  
Cancer Genetic ◽  
Genetic Risk Information ◽  
Cascade Testing ◽  
Support Model

AbstractConsensus and evidence suggest that cascade testing is critical to achieve the promise of cancer genetic testing. However, barriers to cascade testing include effective family communication of genetic risk information and family members’ ability to cope with genetic risk. These barriers are further complicated by the developmental needs of unaffected family members during critical windows for family communication and adaptation. Peer support could address these barriers. We provide two illustrative examples of ongoing BRCA1/2-related clinical trials that apply a peer support model to improve family communication and functioning. Peer support can augment currently available genetic services to facilitate adjustment to and effective use of cancer genetic risk information. Importantly, this scalable approach can address the presence of cancer risk within families across multiple developmental stages. This applies a family-centered perspective that accommodates all potentially at-risk relatives. This peer support model can be further applied to emerging topics in clinical genetics to expand reach and impact.

scholarly journals Factors affecting breast cancer patients' need for genetic risk information: From information insufficiency to information need

2019 ◽  
Vol 28 (3) ◽  
pp. 543-557 ◽  
Author(s):  
Soo Jung Hong ◽  
Barbara Biesecker ◽  
Jennifer Ivanovich ◽  
Melody Goodman ◽  
Kimberly A. Kaphingst
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Genetic Risk ◽  
Risk Information ◽  
Breast Cancer Patients ◽  
Information Need ◽  
Factors Affecting ◽  
Genetic Risk Information

scholarly journals Implications of genetic risk information in families with a high density of bipolar disorder: an exploratory study

2005 ◽  
Vol 60 (1) ◽  
pp. 109-118 ◽  
Author(s):  
Bettina Meiser ◽  
Philip B. Mitchell ◽  
H. McGirr ◽  
M. Van Herten ◽  
Peter R. Schofield
Keyword(s):  
Bipolar Disorder ◽  
Genetic Risk ◽  
Exploratory Study ◽  
Risk Information ◽  
High Density ◽  
Genetic Risk Information

scholarly journals Let the Individuals Directly Concerned Decide: A Solution to Tragic Choices in Genetic Risk Information

2016 ◽  
Vol 19 (5) ◽  
pp. 307-313 ◽  
Author(s):  
Serena Oliveri ◽  
Gabriella Pravettoni ◽  
Chiara Fioretti ◽  
Mats G. Hansson
Keyword(s):  
Genetic Risk ◽  
Risk Information ◽  
Genetic Risk Information

scholarly journals Adolescents' opinions about genetic risk information, prenatal diagnosis, and pregnancy termination

1995 ◽  
Vol 32 (10) ◽  
pp. 799-804 ◽  
Author(s):  
M. Decruyenaere ◽  
G. Evers-Kiebooms ◽  
M. Welkenhuysen ◽  
J. Bande-Knops ◽  
V. V. Gerven ◽  
...  
Keyword(s):  
Prenatal Diagnosis ◽  
Genetic Risk ◽  
Pregnancy Termination ◽  
Risk Information ◽  
Genetic Risk Information

scholarly journals The role of current affect, anticipated affect and spontaneous self-affirmation in decisions to receive self-threatening genetic risk information

2014 ◽  
Vol 29 (8) ◽  
pp. 1456-1465 ◽  
Author(s):  
Rebecca A. Ferrer ◽  
Jennifer M. Taber ◽  
William M. P. Klein ◽  
Peter R. Harris ◽  
Katie L. Lewis ◽  
...  
Keyword(s):  
Genetic Risk ◽  
Risk Information ◽  
Genetic Risk Information ◽  
Anticipated Affect ◽  
To Receive
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