scholarly journals Barriers to Autism Spectrum Disorder Diagnosis for Young Women and Girls: a Systematic Review

2020 ◽  
Author(s):  
Georgia Lockwood Estrin ◽  
Victoria Milner ◽  
Debbie Spain ◽  
Francesca Happé ◽  
Emma Colvert
Keyword(s):  
Systematic Review ◽  
Young Women ◽  
Autism Spectrum ◽  
Clinician Bias ◽  
Clinical Criteria ◽  
Parental Concerns ◽  
Lack Of Information ◽  
Women And Girls ◽  
Spectrum Disorders ◽  
To Receive

Abstract There is increased recognition that women and girls with autism spectrum disorders (ASD) are underserved by the clinical criteria and processes required to receive a diagnosis. This mixed-methods systematic review aimed to identify key barriers to obtaining an ASD diagnosis in girls and young women under 21 years. Six themes were identified that focused on perceived gendered symptoms, namely behavioural problems, social and communication abilities, language, relationships, additional diagnoses/difficulties and restricted and repetitive behaviours and interests. Five themes were identified as (parental) perceived barriers to diagnosis, namely compensatory behaviours, parental concerns, others’ perceptions, lack of information/resources and clinician bias. This review highlights the importance of enhancing widespread understanding and recognition of ASD presentation in females across development. PROSPERO Centre for Reviews and Dissemination (ID 2018 CRD42018087235)

Parents’ Perspectives of an Autism Spectrum Disorder Diagnostic Service in Ireland

2012 ◽  
Vol 19 (1) ◽  
pp. 45-65
Author(s):  
Fionnuala Langford ◽  
Clare Carroll ◽  
Phillappa Brooks ◽  
Amanda Byrne ◽  
Sinead Carthy ◽  
...  
Keyword(s):  
Autism Spectrum ◽  
Diagnostic Process ◽  
Diagnostic Service ◽  
Qualitative Research Design ◽  
Lack Of Information ◽  
Irish Context ◽  
Semistructured Interviews ◽  
Framework Approach ◽  
Spectrum Disorders ◽  
To Receive

Objective: The study aimed to explore parents’ perspectives of an autism diagnostic service in Ireland. Method: A qualitative research design was chosen for the study. Eleven parents of children with autism spectrum disorders took part in semistructured interviews. They talked about their experiences and perceptions of the service they received. The data was analyzed using the framework approach. Main results: Parents expressed satisfaction and dissatisfaction with the service. Parents expressed satisfaction with the time taken to receive a diagnosis and the age at which the diagnosis was made. However, parents expressed dissatisfaction with the location of the disclosure interview, lack of information, lack of support following the diagnosis and with the disjointed nature of services. Conclusion and clinical implications: The findings provide evidence to prove that parental satisfaction would be increased by improvements in the diagnostic process such as providing counselling support through the diagnostic process and following the diagnosis, increasing collaboration between professionals, reducing the length of the process and involving parents in the process to facilitate their understanding and awareness. This study provides an example of giving parents a voice to inform changes in practice and to understand parents’ perspectives of a service in the Irish context.

scholarly journals Interventions for improving employment outcomes for persons with autism spectrum disorders: A systematic review update

2021 ◽  
Vol 17 (3) ◽  
Author(s):  
Carlton J. Fong ◽  
Joshua Taylor ◽  
Aynura Berdyyeva ◽  
Amanda M. McClelland ◽  
Kathleen M. Murphy ◽  
...  
Keyword(s):  
Systematic Review ◽  
Autism Spectrum Disorders ◽  
Employment Outcomes ◽  
Autism Spectrum ◽  
Spectrum Disorders

scholarly journals Autism Spectrum Disorder and Clinical High Risk for Psychosis: A Systematic Review and Meta-analysis

2021 ◽  
Author(s):  
Julio Vaquerizo-Serrano ◽  
Gonzalo Salazar de Pablo ◽  
Jatinder Singh ◽  
Paramala Santosh
Keyword(s):  
Systematic Review ◽  
High Risk ◽  
Literature Search ◽  
Meta Analysis ◽  
Autism Spectrum ◽  
Clinical High Risk ◽  
Psychotic Experiences ◽  
Attenuated Psychosis Syndrome ◽  
The Mean ◽  
Spectrum Disorders

AbstractPsychotic experiences can occur in autism spectrum disorders (ASD). Some of the ASD individuals with these experiences may fulfil Clinical High-Risk for Psychosis (CHR-P) criteria. A systematic literature search was performed to review the information on ASD and CHR-P. A meta-analysis of the proportion of CHR-P in ASD was conducted. The systematic review included 13 studies. The mean age of ASD individuals across the included studies was 11.09 years. The Attenuated Psychosis Syndrome subgroup was the most frequently reported. Four studies were meta-analysed, showing that 11.6% of CHR-P individuals have an ASD diagnosis. Symptoms of prodromal psychosis may be present in individuals with ASD. The transition from CHR-P to psychosis is not affected by ASD.

scholarly journals A Systematic Review of the Treatment of Fears and Phobias Among Children with Autism Spectrum Disorders

2014 ◽  
Vol 2 (2) ◽  
pp. 141-154 ◽  
Author(s):  
Sinéad Lydon ◽  
Olive Healy ◽  
Orla O’Callaghan ◽  
Teresa Mulhern ◽  
Jennifer Holloway
Keyword(s):  
Systematic Review ◽  
Autism Spectrum Disorders ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorders

scholarly journals Sleep in youth with autism spectrum disorders: systematic review and meta-analysis of subjective and objective studies

2018 ◽  
Vol 21 (4) ◽  
pp. 146-154 ◽  
Author(s):  
Amparo Díaz-Román ◽  
Junhua Zhang ◽  
Richard Delorme ◽  
Anita Beggiato ◽  
Samuele Cortese
Keyword(s):  
Systematic Review ◽  
Autism Spectrum Disorders ◽  
Evidence Synthesis ◽  
Meta Analysis ◽  
Autism Spectrum ◽  
Newcastle Ottawa Scale ◽  
Spectrum Disorders ◽  
Sleep Alterations ◽  
The Impact ◽  
Ottawa Scale

BackgroundSleep problems are common and impairing in individuals with autism spectrum disorders (ASD). Evidence synthesis including both subjective (ie, measured with questionnaires) and objective (ie, quantified with neurophysiological tools) sleep alterations in youth with ASD is currently lacking.ObjectiveWe conducted a systematic review and meta-analysis of subjective and objective studies sleep studies in youth with ASD.MethodsWe searched the following electronic databases with no language, date or type of document restriction up to 23 May 2018: PubMed, PsycInfo, Embase+Embase Classic, Ovid Medline and Web of Knowledge. Random-effects models were used. Heterogeneity was assessed with Cochran’s Q and I2 statistics. Publication (small studies) bias was assessed with final plots and the Egger’s test. Study quality was evaluated with the Newcastle Ottawa Scale. Analyses were conducted using Review Manager and Comprehensive Meta-Analysis.FindingsFrom a pool of 3359 non-duplicate potentially relevant references, 47 datasets were included in the meta-analyses. Subjective and objective sleep outcome measures were extracted from 37 and 15 studies, respectively. Only five studies were based on comorbidity free, medication-naïve participants. Compared with typically developing controls, youth with ASD significantly differed in 10/14 subjective parameters and in 7/14 objective sleep parameters. The average quality score in the Newcastle-Ottawa Scale was 5.9/9.Discussion and clinical implicationsA number of subjective and, to a less extent, objective sleep alterations might characterise youth with ASD, but future studies should assess the impact of pharmacological treatment and psychiatric comorbidities.

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