The Legitimacy of User Knowledge in Decision-Making Processes in Mental Health Care: An Analysis of Epistemic Injustice

In this essay, I will discuss the importance of having an awareness about epistemic justice, epistemic ignorance and epistemic injustice, and why this awareness is important in connection to children and patients in mental health care. I also suggest ways to avoid epistemic injustice when working with, and doing research with, children in mental health care. In doing so, I tie this to feminist epistemology where conceptions such as knowledge, knowers and objectivity are questioned, and dominant conceptions and practices of knowledge production are perceived as a systematic disadvantage of women and other subordinated groups (Anderson, 2017). I am as well linking this to queer epistemology which differs from feminist standpoint epistemology in the idea of the identity being “a point of departure for shared consciousness” (Hall, 2017, p. 163).

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Measurement issues of shared decision making in mental health: challenges and opportunities

Mental Health Review Journal ◽

10.1108/mhrj-01-2017-0004 ◽

2017 ◽

Vol 22 (3) ◽

pp. 214-232 ◽

Cited By ~ 4

Author(s):

Lilisbeth Perestelo-Perez ◽

Amado Rivero-Santana ◽

Yolanda Alvarez-Perez ◽

Yaara Zisman-Ilani ◽

Emma Kaminskiy ◽

...

Keyword(s):

Mental Health ◽

Health Care ◽

Decision Making ◽

Mental Health Care ◽

Shared Decision Making ◽

Self Report ◽

Psychometric Validation ◽

Shared Decision ◽

Deliberative Process ◽

Content Type

Purpose Shared decision making (SDM) is a model of health care in which patients are involved in the decision-making process about their treatment, considering their preferences and concerns in a deliberative process with the health care provider. Many existing instruments assess the antecedents, process, or the outcomes of SDM. The purpose of this paper is to identify the SDM-related measures applied in a mental health context. Design/methodology/approach The authors performed a systematic review in several electronic databases from 1990 to October 2016. Studies that assessed quantitatively one or more constructs related to SDM (antecedents, process, and outcomes) in the field of mental health were included. Findings The authors included 87 studies that applied 48 measures on distinct SDM constructs. A large majority of them have been developed in the field of physical diseases and adapted or directly applied in the mental health context. The most evaluated construct is the SDM process in consultation, mainly by patients’ self-report but also by external observer measures, followed by the patients’ preferences for involvement in decision making. The most applied instrument was the Autonomy Preference Index, followed by the Observing Patient Involvement in Decision Making (OPTION) and the Control Preferences Scale (CPS). The psychometric validation in mental health samples of the instruments identified is scarce. Research limitations/implications The bibliographic search is comprehensive, but could not be completely exhaustive. Effort should be invested in the development of new SDM for mental health tools that will reflect the complexity and specific features of mental health care. Originality/value The authors highlight several limitations and challenges for the measurement of SDM in mental health care.

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Relational, ethically sound co-production in mental health care research: epistemic injustice and the need for an ethics of care

Critical Public Health ◽

10.1080/09581596.2020.1770694 ◽

2020 ◽

pp. 1-11

Author(s):

Barbara Groot ◽

Annyk Haveman ◽

Tineke Abma

Keyword(s):

Mental Health ◽

Health Care ◽

Mental Health Care ◽

Ethics Of Care ◽

Health Care Research ◽

Epistemic Injustice ◽

Care Research

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Translating knowledge to practice: optimizing the use of guidelines

Epidemiology and Psychiatric Sciences ◽

10.1017/s2045796012000212 ◽

2012 ◽

Vol 21 (3) ◽

pp. 231-236 ◽

Cited By ~ 11

Author(s):

A. R. Gagliardi

Keyword(s):

Mental Health ◽

Health Care ◽

Decision Making ◽

Mental Health Care ◽

Care Delivery ◽

Guideline Implementation ◽

Health Care Decision ◽

Key Concepts ◽

Care Guidelines ◽

Care Decision

Guidelines support health care decision-making but continue to be underused, therefore more research is needed on how they can be better developed and implemented. The same is true of mental health care, for which there is recent growing interest in improving care delivery and associated outcomes by optimizing the use of mental health care guidelines. This editorial describes the key concepts from accumulated research on guideline implementation to suggest a number of avenues for research on implementation of mental health care guidelines.

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