scholarly journals Identification of areas of functioning and disability addressed in inflammatory bowel disease-specific patient reported outcome measures

2012 ◽  
Vol 6 (5) ◽  
pp. 507-517 ◽  
Author(s):  
Ulrike Achleitner ◽  
Michaela Coenen ◽  
Jean-Frédéric Colombel ◽  
Laurent Peyrin-Biroulet ◽  
Narine Sahakyan ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Outcome Measures ◽  
Bowel Disease ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Specific Patient ◽  
Patient Reported ◽  
Inflammatory Bowel ◽  
Disease Specific

scholarly journals Patient-Reported Outcome Measures in Inflammatory Bowel Disease

2014 ◽  
Vol 28 (10) ◽  
pp. 536-542 ◽  
Author(s):  
Wael El-Matary
Keyword(s):  
Inflammatory Bowel Disease ◽  
Outcome Measures ◽  
Bowel Disease ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Patient Reported ◽  
United States Food ◽  
Recent Developments ◽  
Inflammatory Bowel ◽  
States Food

Patient-reported outcome measures (PROMs) are increasingly used in both research and clinical health settings. With the recent development of United States Food and Drug Administration guidance on PROMs, more attention is being devoted to their role and importance in health care. Several methodological challenges in the development, validation and implementation of PROMs must be resolved to ensure their appropriate utilization and interpretation. The present review discusses recent developments and updates in PROMs, with specific focus on the area of inflammatory bowel disease.

The need for disease-specific patient-reported outcome measures for lysosomal disorders

2015 ◽  
Vol 114 (2) ◽  
pp. S41-S42
Author(s):  
Deborah Elstein ◽  
Neal Weinreb ◽  
Nadia Belmatoug ◽  
Ida Schwartz ◽  
Patrick Deegan ◽  
...  
Keyword(s):  
Outcome Measures ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Specific Patient ◽  
Lysosomal Disorders ◽  
Patient Reported ◽  
Disease Specific
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