“You just need to learn”: A qualitative study on the information needs of family caregivers of people with lung cancer

2022 ◽  
Vol 56 ◽  
pp. 102082
Author(s):  
Andreanne Cochrane ◽  
Pamela Gallagher ◽  
Simon Dunne
Keyword(s):  
Lung Cancer ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Information Needs

scholarly journals Defining the information needs of lung cancer screening participants: a qualitative study

2019 ◽  
Vol 6 (1) ◽  
pp. e000448 ◽  
Author(s):  
Mamta Ruparel ◽  
Samantha Quaife ◽  
David Baldwin ◽  
Jo Waller ◽  
Samuel Janes
Keyword(s):  
Lung Cancer ◽  
Cancer Screening ◽  
Qualitative Study ◽  
Focus Groups ◽  
Information Needs ◽  
False Negative ◽  
Lung Cancer Screening ◽  
Informed Decision ◽  
Curative Treatment ◽  
Information Materials

IntroductionLung cancer screening (LCS) by low-dose CT has been shown to improve mortality, but individuals must consider the potential benefits and harms before making an informed decision about taking part. Shared decision-making is required for LCS in USA, though screening-eligible individuals’ specific views of these harms, and their preferences for accessing this information, are not well described.MethodsIn this qualitative study, we aimed to explore knowledge and perceptions around lung cancer and LCS with a focus on harms. We carried out seven focus groups with screening-eligible individuals, which were divided into current versus former smokers and lower versus higher educational backgrounds; and 16 interviews with health professionals including general practitioners, respiratory physicians, lung cancer nurse specialists and public health consultants. Interviews and focus groups were audio-recorded and transcribed. Data were coded inductively and analysed using the framework method.ResultsFatalistic views about lung cancer as an incurable disease dominated, particularly among current smokers, and participants were often unaware of curative treatment options. Despite this, beliefs that screening is sensible and worthwhile were expressed. Generally participants felt they had the ‘right’ to an informed decision, though some cautioned against information overload. The potential harms of LCS were poorly understood, particularly overdiagnosis and radiation exposure, but participants were unlikely to be deterred by them. Strong concerns about false-negative results were expressed, while false-positive results and indeterminate nodules were also reported as concerning.ConclusionsThese findings demonstrate the need for LCS information materials to highlight information on the benefits of early detection and options for curative treatment, while accurately presenting the possible harms. Information needs are likely to vary between individuals and we recommend simple information materials to be made available to all individuals considering participating in LCS, with signposting to more detailed information for those who require it.

scholarly journals Coping with physical and psychological symptoms: a qualitative study of advanced lung cancer patients and their family caregivers

2014 ◽  
Vol 23 (7) ◽  
pp. 2053-2060 ◽  
Author(s):  
Catherine E. Mosher ◽  
Mary A. Ott ◽  
Nasser Hanna ◽  
Shadia I. Jalal ◽  
Victoria L. Champion
Keyword(s):  
Lung Cancer ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Psychological Symptoms ◽  
Advanced Lung Cancer ◽  
Lung Cancer Patients

Manifestations of anxiety and coping strategies in patients with metastatic lung cancer and their family caregivers: a qualitative study

2019 ◽  
Vol 34 (7) ◽  
pp. 886-899 ◽  
Author(s):  
Ellen Hendriksen ◽  
Alexandra Rivera ◽  
Emma Williams ◽  
Eric Lee ◽  
Nora Sporn ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Family Caregivers ◽  
Metastatic Lung Cancer ◽  
Metastatic Lung ◽  
And Coping

Worried together: a qualitative study of shared anxiety in patients with metastatic non-small cell lung cancer and their family caregivers

2014 ◽  
Vol 23 (4) ◽  
pp. 1035-1041 ◽  
Author(s):  
Ellen Hendriksen ◽  
Emma Williams ◽  
Nora Sporn ◽  
Joseph Greer ◽  
Alexandra DeGrange ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Qualitative Study ◽  
Small Cell Lung Cancer ◽  
Family Caregivers ◽  
Cell Lung Cancer ◽  
Small Cell ◽  
Small Cell Lung

scholarly journals Caring for a person with dementia during the COVID-19 pandemic: A qualitative study with family caregivers

2021 ◽  
pp. 1-36
Author(s):  
Sabrina Cipolletta ◽  
Benedetta Morandini ◽  
Silvia Caterina Maria Tomaino
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Person With Dementia
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