Information needs of family caregivers of home elderly patients

2009 ◽  
Vol 46 (5) ◽  
pp. 462-462
Author(s):  
Yoshihisa Hirakawa ◽  
Kazumasa Uemura
Keyword(s):  
Elderly Patients ◽  
Family Caregivers ◽  
Information Needs

Information needs and sources of family caregivers of home elderly patients

2011 ◽  
Vol 52 (2) ◽  
pp. 202-205 ◽  
Author(s):  
Yoshihisa Hirakawa ◽  
Masafumi Kuzuya ◽  
Hiromi Enoki ◽  
Kazumasa Uemura
Keyword(s):  
Elderly Patients ◽  
Family Caregivers ◽  
Information Needs

scholarly journals How Well Do Videos on YouTube Meet Information Needs of ADRD Family Caregivers? A Qualitative Analysis

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 273-274
Author(s):  
Shinyi Wu ◽  
Katherine Foster ◽  
Magaly Ramirez ◽  
Haomiao Jin ◽  
Elizabeth Joe
Keyword(s):  
Family Caregivers ◽  
Selection Criteria ◽  
Information Needs ◽  
Rating Scale ◽  
Healthcare Services ◽  
Community Resources ◽  
Healthcare Organizations ◽  
Term Care ◽  
Community Stakeholders ◽  
Youtube Videos

Abstract Family caregivers need access to information, education, and support for taking care of individuals with Alzheimer’s disease and other dementia (ADRD). As YouTube is increasingly being used for sharing health information, videos regarding the disease and caregiving are becoming an important source of information to support family ADRD caregivers. This study aimed to assess the types and quality of information available on YouTube videos related to ADRD caregiving. A framework categorizing information needs of family ADRD caregivers was developed through a qualitative study with caregivers (N=21) and with healthcare and community stakeholders (N=6). The framework was used to conduct content analysis of YouTube videos. Nineteen categories of information needs were identified, including information about ADRD, healthcare services and treatment, available community resources, caregiving skills, and short- and long-term care. YouTube videos that met the keywords, language, and view selection criteria were evaluated by two coders on a developed rating scale to measure their relevance and helpfulness. A neurologist verified the ratings in 10% of the coded videos for quality assurance. There were 48 English and 23 Spanish videos met the selection criteria. More English (89.6%) than Spanish (56.5%) videos provided tips on handling specific ADRD symptoms. The majority categories of information needs (15 of the 19) were absent in most videos (87.0%, 89.6%). Many of the most watched videos were not rated as helpful. Community-based providers and healthcare organizations are encouraged to make high quality needed information in commonly accessed videos sharing service to support ADRD family caregivers.

scholarly journals Information Needs of Family Caregivers of People With Dementia

2016 ◽  
Vol 41 (3) ◽  
pp. 162-169 ◽  
Author(s):  
Victoria Steiner ◽  
Linda L. Pierce ◽  
Diane Salvador
Keyword(s):  
Family Caregivers ◽  
Information Needs ◽  
People With Dementia

scholarly journals Factors related to the burden of family caregivers of elderly patients with spinal Tumours in Northwest China

BMC Neurology ◽  
2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Jing Luo ◽  
Yongchun Zhou ◽  
Haiping Liu ◽  
Jing Hu
Keyword(s):  
Elderly Patients ◽  
Family Caregivers ◽  
Northwest China ◽  
Spinal Tumours

scholarly journals Optimising Medication Use along Dementia Progression: Recommendations from a Qualitative Study

Healthcare ◽  
2021 ◽  
Vol 9 (8) ◽  
pp. 982
Author(s):  
Dalal Alsaeed ◽  
Mine Orlu ◽  
Felicity Smith
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Information Needs ◽  
Care Home ◽  
Medication Use ◽  
Medicines Management ◽  
Home Setting ◽  
Face To Face ◽  
Care Home Staff ◽  
Telephone Interviews

Medicines management is known to be an integral part of the role of family caregivers; it also contributes to the burden and stress of caregivers’ experience. As dementia progresses, new challenges arise as a consequence, which negatively affects the ability of people living with dementia (PLWD) regarding practical decision making and may lead to a change of setting. The aim of this study is to identify and explore changes in medicines management and associated caregiver burden as dementia progresses. To examine medicines management and related issues across severities, a qualitative approach utilising face-to-face and telephone interviews with PLWD and their family caregivers in both the community and care-home setting in London was used. Follow-up interviews with family caregivers were also conducted to gain additional insight into change over time. Eleven family caregivers, ten PLWD, and eight care-home staff were interviewed in 2016. Findings identified how key changes along dementia progression affect medication use. These include changes to caregiver burden, respecting the PLWD’s autonomy and decline in capacity, scheduling and administration, choice of formulation, interactions with and between providers, and information needs. The findings assist in informing recommendations to optimise medication use and alleviate caregiver burden.

Sign in / Sign up

Export Citation Format

Share Document