Assessing health-related quality of life in patients with cleft palate in resource-limited countries: A preliminary evaluation of the VELO questionnaire in Uganda

2019 ◽  
Vol 124 ◽  
pp. 39-46 ◽  
Author(s):  
Laura Bruneel ◽  
Cassandra Alighieri ◽  
Kim Bettens ◽  
Duncan Musasizi ◽  
Isaac Ojok ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cleft Palate ◽  
Preliminary Evaluation ◽  
Health Related Quality ◽  
Resource Limited ◽  
Related Quality ◽  
Health Related

scholarly journals The impact of nonsyndromic cleft lip with or without cleft palate on oral health-related quality of life

2018 ◽  
Vol 26 (0) ◽  
Author(s):  
Maria Augusta Ramires da Silva ◽  
Isis de Fátima Balderrama ◽  
Ana Paula Wobeto ◽  
Renata Iani Werneck ◽  
Luciana Reis Azevedo-Alanis
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Cleft Palate ◽  
Cleft Lip ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

scholarly journals Impact of Clinical Pharmacist Mediated Patient Counseling on Health Related Quality of Life in Rheumatoid Arthritis Patients in Healthcare Resource Limited Settings of India

2016 ◽  
Vol 9 (4) ◽  
pp. 247-252
Author(s):  
Mohanraj Rathinavelu Mudhaliar ◽  
Samhitha Reddy Yiragamreddy ◽  
Ishrar Shaik Mohammad Ghouse ◽  
Javeed Patta ◽  
Ushanandhini Tabula ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Rheumatoid Arthritis ◽  
Healthcare Resource ◽  
Health Related Quality ◽  
Patient Counseling ◽  
Resource Limited Settings ◽  
Resource Limited ◽  
Related Quality ◽  
Health Related

scholarly journals Health Professionals’ Assessment of Health-Related Quality of Life Values for Oral Clefting by Age Using a Visual Analogue Scale Method

2006 ◽  
Vol 43 (4) ◽  
pp. 383-391 ◽  
Author(s):  
George L. Wehby ◽  
Robert L. Ohsfeldt ◽  
Jeffrey C. Murray
Keyword(s):  
Quality Of Life ◽  
Visual Analogue Scale ◽  
Cleft Palate ◽  
Health Professionals ◽  
Analogue Scale ◽  
The United States ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Objective To elicit health-related quality of life (HRQL) values associated with oral clefting by age using a visual analogue scale, and to explore the appropriateness of using health professionals as evaluators. Methods A representative group of health professionals working on craniofacial and/or cleft palate teams in the United States was sampled. Values (between 0 and 1) representing the HRQL associated with isolated and nonisolated oral clefting for infants, children, adolescents, and adults were obtained. The relationships between selected evaluator characteristics and values were also assessed. Results Of 330 professionals surveyed, 133 (40%) completed and returned reliable evaluations. Overall, HRQL values were clustered toward the right tail of the scale, indicating modest decreases in HRQL. Most evaluators reported feeling confident in completing the evaluations. HRQL values seemed to vary by team type (cleft palate only versus cleft palate/craniofacial care) and geographic location, but no major differences were found overall for any selected evaluator characteristics. Conclusions This study provides HRQL values for oral clefting based on preferences of health professionals that may be useful in evaluating the effectiveness and cost-effectiveness of prevention and treatment strategies, including those carried out in clinical trial studies. The clustered pattern of HRQL values suggests either a consensus among evaluators of a limited burden of oral clefting or an overall lack of understanding of the evaluation task.

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