63. The Maine Adolescent Council on Transition (ACT Maine): A resident-driven, Community Access to Child Health (CATCH) Grant Funded Project to Improve the Quality of Health Care Transition and Build Resilience in Youth With Chronic Illness and Their Families

2015 ◽  
Vol 56 (2) ◽  
pp. S33-S34
Author(s):  
Jack C. Rusley ◽  
Jessica Hunt ◽  
David Buzanoski ◽  
Renata Arrington-Sanders ◽  
Jonathan T. Fanburg ◽  
...  
2015 ◽  
Vol 56 (2) ◽  
pp. S123-S124
Author(s):  
Gregory S. Sawicki ◽  
Katharine Garvey ◽  
Kathryn Williams ◽  
Thomas James ◽  
Jean Raphael ◽  
...  

The burden of paediatric disease is highest in under-resourced countries which also tend to have the youngest populations. An understanding of this huge global imbalance in quality of health care is of great importance to all those working in health care, not only those fortunate enough to have the opportunity to work there.


Author(s):  
Laura C. Hart ◽  
Miranda A.L. Tilburg ◽  
Robert Campbell ◽  
Richard A. Faldowski ◽  
Meaghan Nazareth ◽  
...  

2015 ◽  
Vol 39 (1-3) ◽  
pp. 99-104 ◽  
Author(s):  
Maria E. Ferris ◽  
Jessica R. Cuttance ◽  
Karina Javalkar ◽  
Sarah E. Cohen ◽  
Alexandra Phillips ◽  
...  

Background: Adolescents/young adults (AYA) with chronic kidney disease (CKD) or end-stage kidney disease (ESKD) are at risk for poor health outcomes related to self-management. To improve their health and quality of life, AYA must build self-management (for those in the pediatric- and adult-focused setting) and/or health care transition (HCT) skills (for those in the pediatric setting). Methods: Self-management and/or HCT encompass a variety of domains that must be tailored to each individual. Annual assessments should begin between the ages of 12 and 14 and continue in the adult-focused setting until patients have achieved demonstrated self-management and/or HCT skills mastery. These assessments will guide interventions that are congruent in terms of literacy, development and culture. Facilitation of this process from the perspective of both the pediatric and the adult health-care systems is described. Conclusions: Deficiencies and barriers to self-management and/or HCT for AYA with ESKD remain. There is no consensus on the definition of successful HCT preparation, with few tools to assess transition readiness and/or self-management. It is important for health providers to promote the self-management and/or health-care transition skills of AYA with ESKD. Customization of these activities and involvement of the whole family will contribute towards better health-related quality of life and patient outcomes.


2000 ◽  
Vol 6 (1_suppl) ◽  
pp. 137-139
Author(s):  
Richard H Kennedy

In order to assist health-care reform in eastern Slovakia, a partnership was established with health-care institutions in Rhode Island. The aim of the partnership was to improve maternal and child health in Slovakia. Thirty-seven telemedicine sessions were conducted via a satellite link. A number of workshops, case studies, demonstrations and interactive discussions took place between various healthcare professionals. The use of telemedicine accelerated the adoption of new procedures in Slovakia.


PEDIATRICS ◽  
2018 ◽  
Vol 141 (5) ◽  
pp. e20173168 ◽  
Author(s):  
Monika Lemke ◽  
Rachel Kappel ◽  
Robert McCarter ◽  
Lawrence D’Angelo ◽  
Lisa K. Tuchman

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