Association of youth health care transition readiness to role overload among parents of children with chronic illness

This study examined associations between chores engagement, self-management, and transition readiness in youth with chronic conditions. Youths with various chronic conditions attending a therapeutic camp, and their parents participated. Responses of 165 campers and their parents were analyzed (mean camper age 12.3 ± 2.6 years, 47.9% males, 79.4% White). The most common diagnoses were diabetes, spina bifida, cerebral palsy, and sickle cell anemia. Youth who completed chores manifested higher overall health care transition readiness ([Formula: see text] = 5.17, p = .026) and better communication with providers ([Formula: see text] = 2.98, p = .006) than youth who completed no chores. Higher chores frequency was not more predictive of higher health care transition readiness scores above and beyond the effects of having chores at all. These results suggest that responsible health care behaviors are related to similar actions in other areas of life. Assignment of chores may promote self-management and health care transition readiness in youth with chronic conditions.

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Coping, anxiety, and health care transition readiness in youth with chronic conditions

Journal of Pediatric Nursing ◽

10.1016/j.pedn.2021.07.027 ◽

2021 ◽

Vol 60 ◽

pp. 281-287

Author(s):

Yunzhen Huang ◽

Richard Faldowski ◽

Eileen Burker ◽

Blaise Morrison ◽

Eniko Rak

Keyword(s):

Health Care ◽

Chronic Conditions ◽

Care Transition ◽

Transition Readiness ◽

Health Care Transition

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The relationship of health care transition readiness to disease-related characteristics, psychosocial factors, and health care outcomes: Preliminary findings in adolescents with chronic kidney disease

Journal of Pediatric Rehabilitation Medicine ◽

10.3233/prm-150314 ◽

2015 ◽

Vol 8 (1) ◽

pp. 13-22 ◽

Cited By ~ 23

Author(s):

Nicole Fenton ◽

Maria Ferris ◽

Zion Ko ◽

Karina Javalkar ◽

Stephen R. Hooper

Keyword(s):

Health Care ◽

Chronic Kidney Disease ◽

Kidney Disease ◽

Care Transition ◽

Health Care Outcomes ◽

Transition Readiness ◽

Health Care Transition ◽

Care Outcomes ◽

Relationship Of ◽

The Relationship

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Health literacy, nutrition knowledge, and health care transition readiness in youth with chronic kidney disease or hypertension: A cross-sectional study

Journal of Child Health Care ◽

10.1177/1367493519831493 ◽

2019 ◽

Vol 24 (2) ◽

pp. 246-259 ◽

Cited By ~ 1

Author(s):

Yi Zhong ◽

Nikita Patel ◽

Maria Ferris ◽

Eniko Rak

Keyword(s):

Health Care ◽

Chronic Kidney Disease ◽

Health Literacy ◽

Nutrition Knowledge ◽

Self Management ◽

Care Transition ◽

Management Skills ◽

Transition Readiness ◽

Health Care Transition ◽

Key Variables

This study evaluates the associations of nutrition knowledge and health literacy with health care transition (HCT) readiness and self-management in adolescents and young adults (AYAs) with chronic kidney disease (CKD) or hypertension. Chronically ill AYAs with poor HCT or self-management skills are less likely to achieve favorable health outcomes as they enter adulthood. Health literacy and nutrition knowledge, which are identified as important contributors to health outcomes, may suggest important points of interventions to improve self-management skills. For the study, we enrolled 59 consecutive patients ages 12–29, with a diagnosis of CKD or hypertension at pediatric- and adult-focused clinics in the United States. Participants completed measures of nutrition knowledge, health literacy, and the Self-management and Transition to Adulthood with Rx = treatment (STARx) questionnaire. Correlation tests and multivariate regressions were employed for data analysis. The findings show that health literacy was positively associated with self-management skills ( p = .050), communication with providers ( p = .002) and overall HCT ( p = .001) after adjusting for key variables. Disease-specific nutrition knowledge positively predicted communication with providers ( p = .002) and overall HCT ( p < .001) after adjusting for key variables. Therefore, health literacy and nutrition knowledge predicted self-management and transition readiness. Testing for these skills should be considered in clinics and HCT preparation for AYAs with chronic conditions.

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