Health Care Coverage and Access Among Children, Adolescents, and Young Adults, 2010–2016: Implications for Future Health Reforms

AbstractPatients suffering from haemophilia encounter various phases in life, in which individual needs, life situations, and self- and disease perception change rapidly. One of these phases spans from the beginning of puberty until early adulthood, in which individuals gain self-responsibility and reach independence and autonomy. In this challenging time that determines future health, adolescents and young adults need sustainable familiar and professional support. A change in health care team and treatment centre may expose adolescent patients to threats but also provides the possible opportunity to be well prepared. While there is emerging evidence that the so-called health care transition programmes are effective in maintaining quality of care in other disease areas, transition programmes for patients with haemophilia are still rare in Germany, and the evidence is limited. We describe the situation in Germany, discuss our experience in Munich and review some of the available guidance; we conclude that transition programmes should become a standard of care in haemophilia.

Download Full-text

Fact Sheet on Health Care Access and Utilization among Adolescents and Young Adults Released

PsycEXTRA Dataset ◽

10.1037/e456022008-003 ◽

2008 ◽

Keyword(s):

Health Care ◽

Young Adults ◽

Health Care Access ◽

Adolescents And Young Adults ◽

Fact Sheet ◽

Care Access

Download Full-text

Does Change Last? Outcomes for Adolescents and Young Adults in Outdoor Behavioral Health Care

PsycEXTRA Dataset ◽

10.1037/e554602014-001 ◽

2014 ◽

Author(s):

Matthew J. Hoag ◽

Katie Massey ◽

Sean D. Roberts

Keyword(s):

Health Care ◽

Young Adults ◽

Behavioral Health ◽

Behavioral Health Care ◽

Adolescents And Young Adults ◽

Outdoor Behavioral Health Care

Download Full-text

An Interdisciplinary Approach to Optimize the Care of Transitioning Adolescents and Young Adults with CKD

Blood Purification ◽

10.1159/000513520 ◽

2021 ◽

pp. 1-12

Author(s):

Maria Esther Diaz-Gonzalez de Ferris ◽

María de Lourdes Díaz-González de Martínez ◽

Angelica María Díaz-González de Velázquez ◽

Antonio Díaz-González Borja ◽

Agustín Díaz-González Borja ◽

...

Keyword(s):

Health Care ◽

Young Adults ◽

Skill Acquisition ◽

Interdisciplinary Collaboration ◽

Cultural Beliefs ◽

Interdisciplinary Approach ◽

Adolescents And Young Adults ◽

Brain Maturation ◽

Body Parts ◽

End Stage

Adolescents and young adults (AYAs) with CKD or end-stage kidney disease (ESKD) have unique medical, dental, psychosocial, neurocognitive, and academic needs and require close interdisciplinary collaboration to optimize their care. The etiology of CKD in AYAs is diverse compared to older adults. With their continuously improved survival, AYAs must start preparation for health-care transition (HCT) from pediatric- to adult-focused health care in the pediatric setting and it must continue at the adult-focused setting, given that their brain maturation and self-management skill acquisition occur until their mid-20s. While the growth and physical maturation of most visible body parts occur before 18 years of age, the prefrontal cortex of the brain, where reasoning, impulse control, and other higher executive functions reside, matures around 25 years of age. The HCT process must be monitored using patient- and caregiver-measuring tools to guide interventions. The HCT process becomes more complex when patients and/or caregivers have a language barrier, different cultural beliefs, or lower literacy levels. In this article, we discuss the unique comorbidities of pediatric-onset CKD/ESKD, provide information for a planned HCT preparation, and suggest interdisciplinary coordination as well as cultural and literacy-appropriate activities to achieve optimal patient outcomes.

Download Full-text