scholarly journals PSY18 The Future Characteristics of Bypassing Agents Improving Haemophilia Inhibitor Patients Care From an Economic and Health Related Quality of Life Perspective

2012 ◽  
Vol 15 (7) ◽  
pp. A680
Author(s):  
J. Weatherall
2020 ◽  
Vol 35 (10) ◽  
pp. 681-689
Author(s):  
Monica E. Lemmon ◽  
Hanna E. Huffstetler ◽  
Bryce B. Reeve

Health-related quality of life (HRQOL) is central to how clinicians and parents make choices about medical care for pediatric neurology patients. To provide parents with the information they need to make these decisions and plan for the future, it is necessary for parents and clinicians to understand how HRQOL is defined and measured in the setting of pediatric neurodevelopmental impairment. We review challenges that exist in measuring HRQOL in pediatric neurology, examine existing measures, and outline key principles to guide selection and interpretation of HRQOL measures in children with neurologic conditions.


2006 ◽  
Vol 175 (4S) ◽  
pp. 150-151
Author(s):  
Jeffrey S. Montgomery ◽  
Bishoy A. Gayed ◽  
Brent K. Hollenbeck ◽  
Stephanie Daignault ◽  
Martin G. Sanda ◽  
...  

2004 ◽  
Vol 171 (4S) ◽  
pp. 101-102
Author(s):  
Tracey L. Krupski ◽  
Arlene Fink ◽  
Lorna Kwan ◽  
Sarah Connor ◽  
Sally L. Maliski ◽  
...  

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