Psychometric properties of the Croatian version of the depression, anxiety, and stress scale-21 and multiple sclerosis impact scale-29 in multiple sclerosis patients

Background: Multiple sclerosis is a chronic disease that affect all aspects of the patients’ life causing multiple progressive symptoms; most common fatigue which leads to dependency of patients on their family for carrying out their daily routine activities. Aim: The present study aims at evaluating the effect of an educational program on fatigue level among multiple sclerosis patients. Design: A quasi-experimental one-group pretest-posttest was used. Setting: the study was conducted in multiple sclerosis outpatient clinic in El-Kasr El-Eini University Hospital. Sample: A convenient sample of (250) multiple sclerosis patients. Tools: Two tools were used: first tool was Structured MS patient dietary knowledge questionnaire, second tool was The Arabic Version of Modified Fatigue Impact Scale. Results: Showed a highly statistical negative correlation between dietary knowledge and cognitive, psychosocial fatigue among MS patients in pre, post and 3 months after implementation of the program. Conclusions: The results of this study indicated that MS patients' dietary knowledge improved after application of the educational program as well as there was a decline in MS patients' fatigue level with statically significance differences between pre, post and 3 months after application of the program. Recommendation: Dissemination of dietary knowledge program among other multiple sclerosis patients. Keywords: Multiple sclerosis patients, dietary knowledge, fatigue

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Psychometric study of Turkish version of Fatigue Impact Scale in multiple sclerosis patients

Journal of the Neurological Sciences ◽

10.1016/j.jns.2007.01.073 ◽

2007 ◽

Vol 255 (1-2) ◽

pp. 64-68 ◽

Cited By ~ 29

Author(s):

Kadriye Armutlu ◽

İlke Keser ◽

Nilüfer Korkmaz ◽

Derya İren Akbıyık ◽

Vildan Sümbüloğlu ◽

...

Keyword(s):

Multiple Sclerosis ◽

Turkish Version ◽

Psychometric Study ◽

Impact Scale ◽

Fatigue Impact Scale ◽

Multiple Sclerosis Patients

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Analysis of the psychometric properties of the Multiple Sclerosis Impact Scale-29 (MSIS-29) in relapsing–remitting multiple sclerosis using classical and modern test theory

Multiple Sclerosis Journal - Experimental Translational and Clinical ◽

10.1177/2055217316673235 ◽

2016 ◽

Vol 2 ◽

pp. 205521731667323 ◽

Cited By ~ 1

Author(s):

ED Bacci ◽

KW Wyrwich ◽

GA Phillips ◽

T Vollmer ◽

S Guo

Keyword(s):

Multiple Sclerosis ◽

Clinical Trial ◽

Psychometric Properties ◽

Rasch Analysis ◽

Test Theory ◽

Measurement Properties ◽

Community Based ◽

Item Fit ◽

Impact Scale ◽

Relapsing Remitting

Background Investigations using classical test theory support the psychometric properties of the original version of the Multiple Sclerosis Impact Scale (MSIS-29v1), a disease-specific measure of multiple sclerosis (MS) impact (physical and psychological subscales). Later, assessments of the MSIS-29v1 in an MS community-based sample using Rasch analysis led to revisions of the instrument’s response options (MSIS-29v2). Objective The objective of this paper is to evaluate the psychometric properties of the MSIS-29v1 in a clinical trial cohort of relapsing–remitting MS patients (RRMS). Methods Data from 600 patients with RRMS enrolled in the SELECT clinical trial were used. Assessments were performed at baseline and at Weeks 12, 24, and 52. In addition to traditional psychometric analyses, Item Response Theory (IRT) and Rasch analysis were used to evaluate the measurement properties of the MSIS-29v1. Results Both MSIS-29v1 subscales demonstrated strong reliability, construct validity, and responsiveness. The IRT and Rasch analysis showed overall support for response category threshold ordering, person-item fit, and item fit for both subscales. Conclusions Both MSIS-29v1 subscales demonstrated robust measurement properties using classical, IRT, and Rasch techniques. Unlike previous research using a community-based sample, the MSIS-29v1 was found to be psychometrically sound to assess physical and psychological impairments in a clinical trial sample of patients with RRMS.

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Tried and tested: the psychometric properties of the multiple sclerosis impact scale (MSIS-29) in a population-based study

Multiple Sclerosis Journal ◽

10.1177/1352458508096872 ◽

2009 ◽

Vol 15 (1) ◽

pp. 75-80 ◽

Cited By ~ 36

Author(s):

OM Gray ◽

GV McDonnell ◽

SA Hawkins

Keyword(s):

Multiple Sclerosis ◽

Psychometric Properties ◽

Convergent Validity ◽

Population Based ◽

Population Based Study ◽

North East ◽

The North ◽

Impact Scale ◽

Disability Status ◽

Physical Impact

Objective To investigate the psychometric properties of the Multiple Sclerosis Impact Scale (MSIS-29) and to assess the relationship between the Kurtzke Expanded Disability Status Scale and the physical and psychological parts of this score. Methods A population-based study identified cases with definite multiple sclerosis (MS) in the north-east region of Ireland. They were examined and completed the MSIS-29. Cases were classified as mild (Expanded Disability Status Score (EDSS) 0–3.0), moderate (EDSS 3.5–5.5), or severe (6.0–9.5) MS. Results The 248 participants (82 male, 166 female) had a mean age of 49.1 years (SD 12.4). EDSS ranged from 0 to 9.5 (median 6.0). Data quality was excellent (0.02% missing data), physical and psychological scores spanned the entire range with low floor and ceiling effects. Internal consistency was high (Cronbach’s alpha 0.97 – physical score, 0.93 – psychological score). The convergent validity of the physical impact score of the MSIS-29 with the Kurtzke EDSS was confirmed with a high Spearman’s rank coefficient correlation of 0.63 ( P = 0.01). Physical impact scores for mild, moderate, and severe disability as were statistically different at 25.9%, 48.0%, and 63.9%, respectively. Mean psychological score was non-significantly higher in the moderately disabled group at 47.4% compared with the severely disabled at 44.3% ( P = 0.58). Conclusions The MSIS-29 is an acceptable, reliable, and valid method of recording quality of life. A significant relationship between higher physical impact scores of the MSIS-29 and higher Kurtzke EDSS values suggests that is may be of use in clinical trials to monitor progression.

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Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service

Multiple Sclerosis Journal ◽

10.1177/1352458510364632 ◽

2010 ◽

Vol 16 (5) ◽

pp. 627-636 ◽

Cited By ~ 76

Author(s):

Polly Edmonds ◽

Sam Hart ◽

Wei Gao ◽

Bella Vivat ◽

Rachel Burman ◽

...

Keyword(s):

Multiple Sclerosis ◽

Palliative Care ◽

Caregiver Burden ◽

Care Service ◽

Palliative Care Service ◽

Palliative Care Outcome Scale ◽

Impact Scale ◽

Patient Reported ◽

Multiple Sclerosis Patients ◽

Care Outcome

Multiple sclerosis results in both physical and psychological disability but some patients have needs that are not adequately met by existing services. Our objective was to explore whether a new palliative care service improved outcomes for people severely affected by multiple sclerosis. A delayed intervention randomized controlled trial was undertaken with multiple sclerosis patients deemed by staff to have palliative care needs. The intervention was a multiprofessional palliative care team assessment and follow-up. The intervention group was offered the team immediately (fast track, FI); the control group continued best standard care and then offered the team after 3 months (standard intervention, SI). The main outcome measures were: patient reported issues using the Palliative Care Outcome Scale and Multiple Sclerosis Impact Scale at 12 weeks and caregiver burden using the Zarit Burden Inventory. Sixty-nine people were referred to the service; 52 consented or were eligible to be randomized (26 to the FI and 26 to the SI groups). At 12 weeks people in the FI group had an improvement (mean change —1.0) in the total score of 5 key symptoms whereas there was deterioration in the SI group (mean change 1.1, F = 4.75, p = 0.035). There was no difference in the change in general Palliative Care Outcome Scale or Multiple Sclerosis Impact Scale scores. There was an improvement in caregiver burden in the FI group and a deterioration in the SI group ( F = 7.60, p = 0.013). Involvement with the palliative care service appeared to positively affect some key symptoms and reduced informal caregiver burden.

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