Consensus document and recommendations on palliative care in heart failure of the Heart Failure and Geriatric Cardiology Working Groups of the Spanish Society of Cardiology

2020 ◽  
Vol 73 (1) ◽  
pp. 69-77 ◽  
Author(s):  
José Manuel García Pinilla ◽  
Pablo Díez-Villanueva ◽  
Ramón Bover Freire ◽  
Francesc Formiga ◽  
Marta Cobo Marcos ◽  
...  
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
Spanish Society ◽  
Consensus Document ◽  
Geriatric Cardiology ◽  
Working Groups

scholarly journals Pediatric Palliative Care in the Heart Failure, Ventricular Assist Device and Transplant Populations: Supporting Patients, Families and Their Clinical Teams

Children ◽  
2021 ◽  
Vol 8 (6) ◽  
pp. 468
Author(s):  
Kyle D. Hope ◽  
Priya N. Bhat ◽  
William J. Dreyer ◽  
Barbara A. Elias ◽  
Jaime L. Jump ◽  
...  
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
Heart Transplantation ◽  
Ventricular Assist Device ◽  
Mechanical Circulatory Support ◽  
Pediatric Palliative Care ◽  
Circulatory Support ◽  
Assist Device ◽  
Ventricular Assist ◽  
Patients With Heart Failure

Heart failure is a life-changing diagnosis for a child and their family. Pediatric patients with heart failure experience significant morbidity and frequent hospitalizations, and many require advanced therapies such as mechanical circulatory support and/or heart transplantation. Pediatric palliative care is an integral resource for the care of patients with heart failure along its continuum. This includes support during the grief of a new diagnosis in a child critically ill with decompensated heart failure, discussion of goals of care and the complexities of mechanical circulatory support, the pensive wait for heart transplantation, and symptom management and psychosocial support throughout the journey. In this article, we discuss the scope of pediatric palliative care in the realm of pediatric heart failure, ventricular assist device (VAD) support, and heart transplantation. We review the limited, albeit growing, literature in this field, with an added focus on difficult conversation and decision support surrounding re-transplantation, HF in young adults with congenital heart disease, the possibility of destination therapy VAD, and the grimmest decision of VAD de-activation.

Context Matters: Exploring Intervention Dose and Dose-Related Outcomes in a Palliative Care Intervention for Patients with Heart Failure (SCI910)

2021 ◽  
Vol 61 (3) ◽  
pp. 674-675
Author(s):  
Rachel Wells ◽  
James N. Dionne-Odom ◽  
Harleah Buck ◽  
Andres Azuero ◽  
Sally Engler ◽  
...  
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
Care Intervention ◽  
Patients With Heart Failure

1443 Collaborative Working: Focusing on the Palliative Care Needs of Patients with Heart Failure

2005 ◽  
Vol 4 (1) ◽  
pp. 64-64
Author(s):  
Sarah Young ◽  
Jan McFadyen ◽  
Ann Gibbins ◽  
Carolyn Kenny ◽  
Sheila Boyer ◽  
...  
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
Care Needs ◽  
Patients With Heart Failure ◽  
Collaborative Working ◽  
Palliative Care Needs
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