Symptom distress and quality of life in patients with inoperable lung cancer: perceptions of patients, staff and family caregivers

2001 ◽  
Vol 37 ◽  
pp. S436 ◽  
Author(s):  
C. Tishelman ◽  
J.P. Gustavsson ◽  
L.F. Degner ◽  
E.Broberger Wiberg ◽  
A. Wenmann-Larsen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Family Caregivers ◽  
Symptom Distress

Symptom Distress and Quality of Life Among Black Americans With Cancer and Their Family Caregivers

2021 ◽  
Author(s):  
Katrina R. Ellis ◽  
Seyoung Oh ◽  
Hillary K. Hecht ◽  
Laurel Northouse
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Black Americans ◽  
Symptom Distress

scholarly journals Quality of Life of Family Caregivers and Challenges Faced in Caring for Patients With Lung Cancer

2012 ◽  
Vol 16 (6) ◽  
pp. E210-E220 ◽  
Author(s):  
Rebecca Fujinami ◽  
Shirley Otis-Green ◽  
Linda Klein ◽  
Rupinder Sidhu ◽  
Betty Ferrell
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Family Caregivers

scholarly journals Family caregiver burden: the burden of caring for lung cancer patients according to the cancer stage and patient quality of life

2017 ◽  
Vol 43 (1) ◽  
pp. 18-23 ◽  
Author(s):  
Eliana Lourenço Borges ◽  
Juliana Franceschini ◽  
Luiza Helena Degani Costa ◽  
Ana Luisa Godoy Fernandes ◽  
Sérgio Jamnik ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Early Stage ◽  
Cancer Stage ◽  
Advanced Stage ◽  
Lung Cancer Patients ◽  
Advanced Stage Cancer

ABSTRACT Objective: Patients with lung cancer experience different feelings and reactions, based on their family, social, cultural, and religious backgrounds, which are a source of great distress, not only for the patients but also for their family caregivers. This study aimed to evaluate the impact that lung cancer stage and quality of life (QoL) of lung cancer patients have on caregiver burden. Methods: This was a prospective cross-sectional study. Consecutive patient-caregiver dyads were selected and asked to complete the Hospital Anxiety and Depression Scale and the Medical Outcomes Study 36-item ShortForm Health Survey (SF-36). Family caregivers also completed the Caregiver Burden Scale. Group-based modeling was used in order to identify patients with early- or advanced-stage cancer (IA to IIIA vs. IIIB to IV) plus non-impaired or impaired QoL (SF36 total score > 50 vs. ≤ 50). Patient-caregiver dyads were stratified into four groups: early-stage cancer+non-impaired QoL; advanced-stage cancer+non-impaired QoL; early-stage cancer+impaired QoL; and advanced-stage cancer+impaired QoL. Results: We included 91 patient-caregiver dyads. The majority of the patients were male and heavy smokers. Family caregivers were younger and predominantly female. The burden, QoL, level of anxiety, and level of depression of caregivers were more affected by the QoL of the patients than by their lung cancer stage. The family caregivers of the patients with impaired QoL showed a higher median burden than did those of the patients with non-impaired QoL, regardless of disease stage. Conclusions: Caregiver burden is more affected by patient QoL than by lung cancer stage.

scholarly journals Feasibility, acceptability, and efficacy of online supportive care for individuals living with and beyond lung cancer: a systematic review

2021 ◽  
Author(s):  
Jordan Curry ◽  
Michael Patterson ◽  
Sarah Greenley ◽  
Mark Pearson ◽  
Cynthia C. Forbes
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Supportive Care ◽  
Emotional Functioning ◽  
Symptom Burden ◽  
Feasibility Studies ◽  
Symptom Distress ◽  
Care Needs ◽  
Cancer Data

Abstract Purpose To examine the evidence of the feasibility, acceptability, and potential efficacy of online supportive care interventions for people living with and beyond lung cancer (LWBLC). Methods Studies were identified through searches of Medline, EMBASE, PsychINFO, and CINAHL databases using a structured search strategy. The inclusion criteria (1) examined the feasibility, acceptability, and/or efficacy of an online intervention aiming to provide supportive care for people living with and beyond lung cancer; (2) delivered an intervention in a single arm or RCT study pre/post design; (3) if a mixed sample, presented independent lung cancer data. Results Eight studies were included; two randomised controlled trials (RCTs). Included studies reported on the following outcomes: feasibility and acceptability of an online, supportive care intervention, and/or changes in quality of life, emotional functioning, physical functioning, and/or symptom distress. Conclusion Preliminary evidence suggests that online supportive care among individuals LWBLC is feasible and acceptable, although there is little high-level evidence. Most were small pilot and feasibility studies, suggesting that online supportive care in this group is in its infancy. The integration of online supportive care into the cancer pathway may improve quality of life, physical and emotional functioning, and reduce symptom distress. Online modalities of supportive care can increase reach and accessibility of supportive care platforms, which could provide tailored support. People LWBLC display high symptom burden and unmet supportive care needs. More research is needed to address the dearth of literature in online supportive care for people LWBLC.

scholarly journals The impact of lung cancer surgery on quality of life trajectories in patients and family caregivers

Lung Cancer ◽  
2016 ◽  
Vol 101 ◽  
pp. 35-39 ◽  
Author(s):  
Jae Y. Kim ◽  
Virginia Sun ◽  
Dan J. Raz ◽  
Anna Cathy Williams ◽  
Rebecca Fujinami ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Family Caregivers ◽  
Lung Cancer Surgery ◽  
Cancer Surgery ◽  
Life Trajectories ◽  
The Impact

scholarly journals Effects of gender and depressive symptoms on quality of life among colorectal and lung cancer patients and their family caregivers

2014 ◽  
Vol 24 (1) ◽  
pp. 95-105 ◽  
Author(s):  
Youngmee Kim ◽  
Michelle van Ryn ◽  
Roxanne E. Jensen ◽  
Joan M. Griffin ◽  
Arnold Potosky ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Depressive Symptoms ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Lung Cancer Patients

scholarly journals Patients and family caregivers report high treatment expectations during palliative chemotherapy: a longitudinal prospective study

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Tine Ikander ◽  
Stefan Starup Jeppesen ◽  
Olfred Hansen ◽  
Mette Raunkiær ◽  
Karin Brochstedt Dieperink
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Family Caregivers ◽  
Palliative Chemotherapy ◽  
Well Being ◽  
Small Cell ◽  
Small Cell Lung ◽  
Treatment Expectations ◽  
Thoracic Cancer

Abstract Background When discussing treatment options and future care, it is important to understand the expectations of patients and family caregivers related to palliative chemotherapy and to identify patterns in patients’ quality of life. The study aims were to evaluate differences in treatment expectations and quality of life between patients with thoracic cancer (non-small-cell lung cancer, small-cell lung cancer and mesothelioma) who were < 70 and ≥ 70 years of age and receiving palliative chemotherapy and to assess family caregivers’ treatment expectations. Methods A prospective longitudinal study included patients with thoracic cancer receiving outpatient palliative chemotherapy at a university hospital in Denmark and their family caregivers. Patients’ treatment expectations and quality of life were assessed three times during treatment with a survey of treatment expectations and the Functional Assessment of Cancer Therapy – General questionnaire. Family caregivers’ treatment expectations were assessed once. Results A total of 48 patients and 36 family caregivers participated between 2018 and 2019. No statistically significant age-related differences in treatment expectations and quality of life were identified. 28% of patients aged < 70 years and 7% of those aged ≥70 years expected a cure. Among family caregivers, 36% expected a cure. Across both age groups, mean total quality of life scores significantly decreased from 73.2 at first palliative chemotherapy cycle to 70.5 at third cycle (p = 0.02). No meaningful changes were found in quality of life within either age group. A subgroup analysis found no significant between-group differences in quality of life. Mean physical well-being score for all patients decreased from 20.3 at first cycle to 18.4 at third cycle (p = 0.03) and mean emotional well-being score decreased from 15.4 at first cycle to 14.6 at third cycle (p = 0.04). Conclusion This study emphasizes the importance of initiating conversations about treatment expectations and paying attention to expectations that may differ by the age of the patient and between patients and family caregivers. Addressing treatment expectations among patients and family caregivers and monitoring quality of life among patients is important in clinical practice.

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