Racial Differences in Factors that Influence the Willingness to Participate in Medical Research Studies

2002 ◽  
Vol 12 (4) ◽  
pp. 248-256 ◽  
Author(s):  
Vickie L Shavers ◽  
Charles F Lynch ◽  
Leon F Burmeister
2000 ◽  
Vol 12 (2) ◽  
pp. 23-43 ◽  
Author(s):  
Jeanette M. Trauth ◽  
Donald Musa ◽  
Laura Siminoff ◽  
Ilene Katz Jewell ◽  
Edmund Ricci

2012 ◽  
Vol 33 (6) ◽  
pp. 1197-1205 ◽  
Author(s):  
Katherine Svensson ◽  
Olivia F. Ramírez ◽  
Frederico Peres ◽  
Mallory Barnett ◽  
Luz Claudio

2020 ◽  
Vol 4 (4) ◽  
pp. 323-330
Author(s):  
Deepthi S. Varma ◽  
Alvin H. Strelnick ◽  
Nancy Bennett ◽  
Patricia Piechowski ◽  
Sergio Aguilar-Gaxiola ◽  
...  

AbstractBackground:Research participation by members of racial or ethnic minority groups continues to be less than optimum resulting in difficulties to generalization of research findings. Community-engaged research that relies on a community health worker (CHW) model has been found effective in building trust in the community, thereby motivating people to participate in health research. The Sentinel Network study aimed at testing the feasibility of utilizing the CHW model to link community members to appropriate health research studies at each of the research sites.Methods:The study was conducted at six Clinical and Translational Science Award institutions (N = 2371) across the country; 733 (30.9%) of the participants were from the University of Florida, 525 (22.0%) were from Washington University in St. Louis, 421 (17.8%) were from the University of California, Davis, 288 (12.1%) were from the University of Michigan, Ann Arbor, 250 (10.5%) were from Rochester, and 154 (6.5%) from Albert Einstein College of Medicine. Trained CHWs from each of these sites conducted regular community outreach where they administered a Health Needs Assessment, provided medical and social referrals, and linked to eligible research studies at each of those sites. A 30-day follow-up assessment was developed to track utilization of services satisfaction with the services and research study participation.Results:A large majority of people, especially African Americans, expressed willingness to participate in research studies. The top two health concerns reported by participants were hypertension and diabetes.Conclusion:Findings on the rate of navigation and enrollment in research from this study indicate the effectiveness of a hybrid CHW service and research model of directly engaging community members to encourage people to participate in research.


2019 ◽  
Vol 13 (4) ◽  
pp. 489-510
Author(s):  
Jaehwan Hyun

Abstract Recent literature on the history of medicine in colonial Korea has revealed that Japanese medical scientists studied Korean bodies to expose racial differences between the Japanese and Koreans and justify Japanese colonial rule. Previous scholars, however, have focused mainly on finding a connection between colonial medical research and eugenics. This article attempts to consider things as yet underinvestigated, in particular, the way in which medical research on Koreans emerged and was intertwined with Japanese colonialism in other ways, separate from contemporary eugenics projects. The article examines the emergence and development of what we now considered as “racial sciences”—physical anthropology, serological anthropology, and human genetics—with regard to the biological characteristics of Koreans. In doing so, it argues that biological speculations on Koreans originated as a subdiscipline of Japanese origin studies and resonated with a newly emerging type of colonial racism in colonial Korea—inclusionary racism. The article also presents the colonial scientific enterprise’s conclusion that Koreans were biologically heterogeneous, contradicting colonial Korean intellectuals’ assertion about Korean ethnic homogeneity. The use of Korean ethnic homogeneity as an ideological basis for nation building by two Korean governments meant that postcolonial Korean scientists had to seek a way to reconcile the colonial era’s “scientific conclusion” (biological heterogeneity) with the postcolonial era’s “politically approved” conceptualization (biological homogeneity). Therefore, regardless of whether it was trying to refute, appropriate, or revitalize the colonial legacy, biological research on Koreans in the postcolonial period was carried out under the framework that had been constructed by colonial racial sciences.


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