NIH Launches New Web Site for Parents on Medical Research Studies for Children: Award-Winning Video Clips Feature Children, Parents Discussing Clinical Studies

2008 ◽  
2012 ◽  
Vol 3 (1) ◽  
pp. 63-76 ◽  
Author(s):  
D Skinner

This article examines the relationship between gender and cancer survivorship. I argue that gender is as critical as a category of analysis for understanding cancer survivorship as it is missing from survivorship studies, particularly as concerns the identificatory basis of survivor culture and clinical studies regarding survivors’ quality of life (QOL). This under-studied question of the gendering of survivorship is critical because the consequences of the social production of disease is far-reaching, from the nature of medical research to social awareness, to funding to the well-being of cancer survivors themselves.


PEDIATRICS ◽  
1958 ◽  
Vol 21 (4) ◽  
pp. 642-648
Author(s):  
Edward L. Pratt

The clinician caring for infants and children does not wish to interfere unnecessarily with their diets and thereby jeopardize their nutrition and their development of good eating habits. Yet serious illness may be completely relieved by eliminating an offending ingestant, so the physician does not wish to overlook this therapeutic measure. If he turns to recent medical reports for help, he is confused and bewildered by the varying definitions and by the lack of critical judgment applied to the cases reported. When a patient improves after removing a food from his diet, is it the result of the quantity, quality or pharmacologic properties of the food or because of the psychologic associations with the food? If a purified fraction of the food, administered—withheld—readministered under controlled conditions appropriately produces symptoms, is this an example of intolerance or allergy? The need is urgent for extensive investigations of the basic mechanisms and for sound clinical studies in the fields of food intolerance and, particularly, of food allergy. Continuation of noncritical attitudes towards food allergy can only further debase this subject and may well lead to neglect of its true value, to the detriment of the patients. "If the gravity of decisions in medical research are greater than in other research, so much greater is the need to plan the investigations for the avoidance of bias and for the elimination of subjective judgments about alternative explanations of the results." At the present time, one must conclude that the physician should respect the importance of promoting good eating habits and that, while he should readily suspect foods as a cause of symptoms, he will accept this situation only after carefully designed studies of the patient demonstrate it. Otherwise: "Cava medicum, nocere atque sanare potest!" (Beware of the physician: he can harm as well as heal!)


2016 ◽  
Vol 4 (10) ◽  
pp. 117-127
Author(s):  
Chris David Impey ◽  
Kevin K. Hardegree-Ullman ◽  
Anand Patikkal ◽  
Carmen L Austin

A web site called Teach Astronomy (http://www.teachastronomy.com) has been created to serve astronomy instructors and their students, amateur astronomers, and members of the general public interested in astronomy. The content includes astronomy articles from an introductory level textbook and from the online resource Wikipedia, short video clips, astronomical images, podcasts, and recent news stories. This article describes the technology behind the delivery of those learning resources, which is relevant to the capabilities and limitations of the web site. One key innovation is the Wikimap, a Flash-based tool that presents the visual results of a real-time clustering analysis of hundreds or thousands of text items, displaying the item that best matches the search term and most closely related items. The clustering is carried out in a Lucene index, and it can operate on any database containing items of text. The astronomy content is routinely updated, in some cases daily. Due to the prevalence of smartphones, tablets, and other handheld devices, a simplified non-graphical version of the interface was developed using custom style sheets. Teach Astronomy has a large following of students taking introductory astronomy classes and members of the public with a recreational interest in astronomy. In the past year, there have been 250,000 unique visitors. Currently we are developing a new interface that uses HTML5 instead of Flash to display the Wikimap, an app version of the website for use on smartphones and tablets, and tool to support an instructor and learner community.


Author(s):  
Jonathan P. Grady ◽  
Michael B. Spring ◽  
Armando J. Rotondi

This chapter discusses the design of Web sites to be used as the basis of medical research. It is broken down into three sections: Part 1 discusses the various issues that have to be addressed in the design of a Web site that will be used to assess some intervention based on the Web site. Part 2 discusses the design of such a Web site and the development of a tool to facilitate this process. Part 3 presents the results of preliminary usability analysis for the tool to assist medical researchers in constructing Web sites that can meet the needs and requirements of medical intervention studies. The results of the preliminary interviews, prototype walkthroughs, and preliminary usability studies are presented laying the groundwork for future development and more formal usability studies.


2019 ◽  
Vol 16 (5) ◽  
pp. 450-454
Author(s):  
Nir Eyal ◽  
Jonathan Kimmelman ◽  
Lisa G Holtzman ◽  
Marc Lipsitch

This article informally reviews key research ethics guidelines and regulations, academic scholarship, and research studies and finds wide variety in how they consider risk to bystanders in medical research (namely, non-participants whom studies nevertheless place at risk). Some of these key sources give no or very little consideration to bystanders, while others offer them the utmost protection (greater than they offer study participants). This unsettled frontier would benefit from a deeper investigation of the ethics of protecting research bystanders.


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