scholarly journals Socioeconomic determinants associated with willingness to participate in medical research among a diverse population

2012 ◽  
Vol 33 (6) ◽  
pp. 1197-1205 ◽  
Author(s):  
Katherine Svensson ◽  
Olivia F. Ramírez ◽  
Frederico Peres ◽  
Mallory Barnett ◽  
Luz Claudio
Keyword(s):  
Medical Research ◽  
Diverse Population ◽  
Willingness To Participate ◽  
Socioeconomic Determinants

scholarly journals Factors influencing the willingness to participate in medical research: a nationwide survey in Taiwan

PeerJ ◽  
2018 ◽  
Vol 6 ◽  
pp. e4874 ◽  
Author(s):  
Hung-En Liu ◽  
Ming-Chieh Li
Keyword(s):  
Medical Research ◽  
Participation Rate ◽  
Final Analysis ◽  
Nationwide Survey ◽  
Willingness To Participate ◽  
Participant Recruitment ◽  
Face To Face ◽  
College Degrees ◽  
Medical Researchers ◽  
Demographic Background

Background Participation rate is one of the main challenges medical researchers face. We examined how demographic background and trust in medical research affect the willingness of people to participate in medical research in Taiwan. Methods Data from the 2011 Taiwan Genomic Survey (a nationwide representative face-to-face survey) were analyzed. The survey included a vignette of a researcher conducting a clinical trial of an investigative medicinal product, and questions for interviewees regarding their willingness to participate in research after they were informed of the scenario description. A total of 3,159 people, aged 18 to 70 years, were sampled, and 1,538 of them completed the survey. With missing data excluded, a total of 1,389 respondents were included in the final analysis. Results About 12 percent of the respondents answered that they would be willing to participate in medical research. Respondents who had college degrees or above and were married or lived with significant others were less likely to participate in medical research. By contrast, male respondents, and respondents whose household family members had biomedicine-related degrees or had one themselves were more likely to participate in medical research. After adjustment for demographic factors, respondents were more likely to participate in medical research if: (1) they expressed trust in doctors conducting medical research; (2) they agreed that doctors would never ask them to join medical research studies that might harm them; (3) they thought that participating in a medical research study would be safe; and (4) they agreed that researchers had no selfish reasons for doing the medical research. Discussion Some of our findings, such as the effects of education level and marital status on participation in medical research, are different from most findings of previous studies conducted in other countries. This study is useful for developing strategies to improve participant recruitment. Relevant discussions on research ethics and policies, such as the importance of public trust in medical researchers, could also be based on this study.

scholarly journals Willingness of a Multiethnic Immigrant Population to Donate Biospecimens for Research Purposes

2021 ◽  
Author(s):  
Amy Raines-Milenkov ◽  
Martha Felini ◽  
Eva Baker ◽  
Rushil Acharya ◽  
Elvis Longanga Diese ◽  
...  
Keyword(s):  
Medical Research ◽  
Central Africa ◽  
Cross Sectional Study ◽  
Future Research ◽  
Willingness To Participate ◽  
North Texas ◽  
Cross Sectional ◽  
Willingness To Donate ◽  
Biospecimen Donation ◽  
Arabic Speaking

AbstractThis cross-sectional study explores the willingness to donate biospecimens for research purposes among six refugee communities in North Texas (spanning Myanmar, Central Africa, Somalia, Nepal, Arabic speaking countries, and others). Participants were asked four questions about biospecimen donation: (1) previously asked to donate, (2) ever agreed to donate, (3) willingness to donate for future research, and (4) what samples they would be willing to donate. Most participants (77%) were willing to donate biosamples for medical research; 58% were willing to donate samples. Fewer refugees from Somalia were willing to donate compared to immigrants from Myanmar, Central Africa, and Nepal (p < 0.01). Participants in the older age group (40 + years) were 3.2 times more likely to be willing for donation of biospecimens than the younger ones (OR 3.22, 95% CI 1.22, 8.55). Findings suggest refugees’ willingness to participate in biospecimen donation which support intentional inclusion of multicultural populations into medical research.

scholarly journals Patient Engagement and Attitudes Toward Using the Electronic Medical Record for Medical Research: The 2015 Greater Plains Collaborative Health and Medical Research Family Survey (Preprint)

2018 ◽  
Author(s):  
Ann M Davis ◽  
Lawrence P Hanrahan ◽  
Alex F Bokov ◽  
Sarah Schlachter ◽  
Helena H Laroche ◽  
...  
Keyword(s):  
Medical Research ◽  
Geographic Location ◽  
Academic Medical Centers ◽  
Child Rearing ◽  
Research Network ◽  
Willingness To Participate ◽  
Patient Centered ◽  
Medical Centers ◽  
Academic Medical ◽  
National Patient

BACKGROUND Electronic health records (EHRs) are ubiquitous. Yet little is known about the use of EHRs for prospective research purposes, and even less is known about patient perspectives regarding the use of their EHR for research. OBJECTIVE This paper reports results from the initial obesity project from the Greater Plains Collaborative that is part of the Patient-Centered Outcomes Research Institute’s National Patient-Centered Clinical Research Network (PCORNet). The purpose of the project was to (1) assess the ability to recruit samples of adults of child-rearing age using the EHR; (2) prospectively assess the willingness of adults of child-rearing age to participate in research, and their willingness (if parents) to have their children participate in medical research; and (3) to assess their views regarding the use of their EHRs for research. METHODS The EHRs of 10 Midwestern academic medical centers were used to select patients. Patients completed a survey that was designed to assess patient willingness to participate in research and their thoughts about the use of their EHR data for research. The survey included questions regarding interest in medical research, as well as basic demographic and health information. A variety of contact methods were used. RESULTS A cohort of 54,269 patients was created, and 3139 (5.78%) patients responded. Completers were more likely to be female (53.84%) and white (85.84%). These and other factors differed significantly by site. Respondents were overwhelmingly positive (83.9%) about using EHRs for research. CONCLUSIONS EHRs are an important resource for engaging patients in research, and our respondents concurred. The primary limitation of this work was a very low response rate, which varied by the method of contact, geographic location, and respondent characteristics. The primary strength of this work was the ability to ascertain the clinically observed characteristics of nonrespondents and respondents to determine factors that may contribute to participation, and to allow for the derivation of reliable study estimates for weighting responses and oversampling of difficult-to-reach subpopulations. These data suggest that EHRs are a promising new and effective tool for patient-engaged health research. INTERNATIONAL REGISTERED REPOR NA

Attitudes, Knowledge, and Willingness to Participate in Medical Research Survey

2014 ◽  
Author(s):  
LaPrincess C. Brewer ◽  
Sharonne N. Hayes ◽  
Monica W. Parker ◽  
Joyce E. Balls-Berry ◽  
Michele Y. Halyard ◽  
...  
Keyword(s):  
Medical Research ◽  
Willingness To Participate ◽  
Research Survey

scholarly journals The Association between Emergency Department Super-Utilizer Status and Willingness to Participate in Research

2020 ◽  
Vol 2020 ◽  
pp. 1-6
Author(s):  
Henry W. Young ◽  
Emmett T. Martin ◽  
Evan Kwiatkowski ◽  
J. Adrian Tyndall ◽  
Linda B. Cottler
Keyword(s):  
Emergency Department ◽  
Observational Study ◽  
Medical Research ◽  
Emergency Departments ◽  
Prospective Observational Study ◽  
Willingness To Participate ◽  
Medical Conditions ◽  
Ed Visits

Background. Research based on emergency departments (EDs) primarily focuses on medical conditions. There is limited research that investigates patients who willingly participate in research. This current study explored ED super-utilizers’ (SUs’) and nonsuper-utilizers’ (NSUs’) attitudes toward research. Objective. The study assesses the willingness of SUs to participate in research. We hypothesize that the SU population will be as interested as nonutilizers in participating in medical research. Methods. This prospective observational study stratified participants into SU and NSU cohorts based on their self-reported number of ED visits within 6 months. Surveys were captured in a secured database and analyzed using SAS 9.4. Results. 7,481 completed questionnaires. SUs were more interested in participating in all types of research compared to NSUs. Both groups were most willing to participate in surveys. Neither group was particularly interested in studies that required medications. SUs were not more willing to participate in studies without payment than NSUs. Both groups trusted researchers at the same rates. Conclusion. Although rarely included in medical research, SUs were more willing to participate in nearly all types of research and expressed a similar trust in medical research when compared to nonsuper-utilizers.

Public Attitudes Regarding Willingness to Participate in Medical Research Studies

2000 ◽  
Vol 12 (2) ◽  
pp. 23-43 ◽  
Author(s):  
Jeanette M. Trauth ◽  
Donald Musa ◽  
Laura Siminoff ◽  
Ilene Katz Jewell ◽  
Edmund Ricci
Keyword(s):  
Medical Research ◽  
Public Attitudes ◽  
Willingness To Participate ◽  
Research Studies

Application of Scanning Electron Microscopy to Medical Research

1969 ◽  
Vol 27 ◽  
pp. 12-13
Author(s):  
J. D. Hutchison
Keyword(s):  
Electron Microscopy ◽  
Electron Microscope ◽  
Medical Research ◽  
Prosthetic Heart Valve ◽  
School Of Medicine ◽  
Transmission Electron ◽  
Definition Of ◽  
Mechanism Of Failure ◽  
The Brain ◽  
Scanning Electron

When the transmission electron microscope was commercially introduced a few years ago, it was heralded as one of the most significant aids to medical research of the century. It continues to occupy that niche; however, the scanning electron microscope is gaining rapidly in relative importance as it fills the gap between conventional optical microscopy and transmission electron microscopy.IBM Boulder is conducting three major programs in cooperation with the Colorado School of Medicine. These are the study of the mechanism of failure of the prosthetic heart valve, the study of the ultrastructure of lung tissue, and the definition of the function of the cilia of the ventricular ependyma of the brain.

Sign in / Sign up

Export Citation Format

Share Document