Effect of Parent Outcomes on Quality of Life in Pediatric Brain Tumor Survivors

2011 ◽  
Author(s):  
Rebecca A. Weiss ◽  
Stephen Sands ◽  
Joseph Weiss
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Pediatric Brain Tumor ◽  
Parent Outcomes ◽  
Pediatric Brain

scholarly journals QOL-51. LISTENING BEFORE WE SPEAK: A PATIENT-CENTERED APPROACH TO DEVELOPING RESOURCES FOR PEDIATRIC BRAIN TUMOR SURVIVORS AND THEIR FAMILIES

2020 ◽  
Vol 22 (Supplement_3) ◽  
pp. iii440-iii440
Author(s):  
Kathy Riley
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
United States ◽  
Brain Tumor ◽  
Mental Health Professionals ◽  
Pediatric Brain Tumor ◽  
The United States ◽  
Physical And Mental Health ◽  
Pediatric Brain

Abstract In the United States, more than 28,000 children and teenagers live with the diagnosis of a primary brain tumor (Porter, McCarthy, Freels, Kim, & Davis, 2010). In 2017, an estimated 4,820 new cases of childhood primary brain and other central nervous system tumors were expected to be diagnosed in children ages 0 – 19 in the United States (Central Brain Tumor Registry of the United States, 2017). Survivors suffer from lifelong side effects caused by their illness or by various treatments. Commonly identified late effects of treatment include a decline in intellectual functioning and processing speed, performance IQ deficits, memory deficits, psychological difficulties, deficits in adaptive functioning (daily life skills), and an overall decrease in health-related quality of life (Castellino, Ullrich, Whelen, & Lange, 2014). To address the ongoing challenges these survivors and their families face, the Pediatric Brain Tumor Foundation (PBTF) met extensively with working groups comprised of survivors and caregivers to develop the outline for a comprehensive Survivorship Resource Guidebook. In 2019, the PBTF published the guidebook which categorizes survivor and caregiver needs into three primary areas: physical and mental health, quality of life, and working the system. Expert authors included survivors and caregivers themselves in addition to medical and mental health professionals. Key outcomes discovered during the creation and production of this resource highlight how caregivers, survivors and professionals can collaborate to provide needed information and practical help to one segment of the pediatric cancer population who experience profound morbidities as a result of their diagnosis and treatment.

A randomized control intervention trial to improve social skills and quality of life in pediatric brain tumor survivors

2017 ◽  
Vol 27 (1) ◽  
pp. 91-98 ◽  
Author(s):  
Maru Barrera ◽  
Eshetu G. Atenafu ◽  
Lillian Sung ◽  
Ute Bartels ◽  
Fiona Schulte ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Social Skills ◽  
Pediatric Brain Tumor ◽  
Intervention Trial ◽  
Control Intervention ◽  
Randomized Control ◽  
Pediatric Brain

Impact of brain tumor and its treatment on the physical and psychological well-being, and quality of life amongst pediatric brain tumor survivors

2019 ◽  
Vol 41 ◽  
pp. 104-109 ◽  
Author(s):  
Ankie Tan Cheung ◽  
William Ho Cheung Li ◽  
Laurie Long Kwan Ho ◽  
Ka Yan Ho ◽  
S.Y. Chiu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Pediatric Brain Tumor ◽  
Well Being ◽  
Psychological Well Being ◽  
Pediatric Brain

Efficacy of musical training on psychological outcomes and quality of life in Chinese pediatric brain tumor survivors

2018 ◽  
Vol 28 (1) ◽  
pp. 174-180 ◽  
Author(s):  
Ankie Tan Cheung ◽  
William Ho Cheung Li ◽  
Ka Yan Ho ◽  
Katherine Ka Wai Lam ◽  
Laurie Long Kwan Ho ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Musical Training ◽  
Pediatric Brain Tumor ◽  
Psychological Outcomes ◽  
Pediatric Brain

scholarly journals Quality of life outcomes in proton and photon treated pediatric brain tumor survivors

2014 ◽  
Vol 113 (1) ◽  
pp. 89-94 ◽  
Author(s):  
Torunn I. Yock ◽  
Sundeep Bhat ◽  
Jackie Szymonifka ◽  
Beow Y. Yeap ◽  
Jennifer Delahaye ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Pediatric Brain Tumor ◽  
Life Outcomes ◽  
Quality Of Life Outcomes ◽  
Pediatric Brain

Symptoms, Coping, and Quality of Life in Pediatric Brain Tumor Survivors: A Qualitative Study

2014 ◽  
Vol 41 (4) ◽  
pp. 390-398 ◽  
Author(s):  
Gail Macartney ◽  
Dawn Stacey ◽  
Margaret B. Harrison ◽  
Elizabeth VanDenKerkhof
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Qualitative Study ◽  
Pediatric Brain Tumor ◽  
Pediatric Brain

scholarly journals Executive dysfunction is associated with poorer health-related quality of life in pediatric brain tumor survivors

2016 ◽  
Vol 128 (2) ◽  
pp. 313-321 ◽  
Author(s):  
Kelli L. Netson ◽  
Jason M. Ashford ◽  
Traci Skinner ◽  
Lynne Carty ◽  
Shengjie Wu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Pediatric Brain Tumor ◽  
Executive Dysfunction ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Pediatric Brain

Quality of life and behavioral follow-up study of Head Start I pediatric brain tumor survivors

2010 ◽  
Vol 101 (2) ◽  
pp. 287-295 ◽  
Author(s):  
Stephen A. Sands ◽  
Keith P. Pasichow ◽  
Rebecca Weiss ◽  
James Garvin ◽  
Sharon Gardner ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Head Start ◽  
Pediatric Brain Tumor ◽  
Follow Up Study ◽  
Pediatric Brain
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