scholarly journals The quality of life of children with neurodevelopmental disorders and their parents during the Coronavirus disease 19 emergency in Japan

2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Riyo Ueda ◽  
Takashi Okada ◽  
Yosuke Kita ◽  
Yuri Ozawa ◽  
Hisami Inoue ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parental Stress ◽  
Neurodevelopmental Disorders ◽  
Maladaptive Behavior ◽  
Daily Lives ◽  
School Aged Children ◽  
Intellectual Quotient ◽  
Children And Parents ◽  
Job Flexibility

AbstractThis study aimed to reveal how the COVID-19 stay-at-home period has affected the quality of life (QOL) of children with neurodevelopmental disorders and their parents and to identify possible factors that enabled them to maintain their QOL. We enrolled 136 school-aged children (intellectual quotient ≥ 50) and their parents and administered QOL questionnaires to assess the maladaptive behavior of the children; depression, anxiety, and stress of the parents; and activities of their daily lives. The relationship between their QOL and clinical features was examined. The decrease in QOL of children and parents was associated with the mother’s limited job flexibility. Decreased QOL was also associated with changes in the sleep rhythms of the children. Maladaptive behaviors in children were associated with parental stress. However, maintained QOL of some families who faced these same conditions of job stress and sleep disorders was associated with less parental stress, less parental depression and anxiety, and milder maladaptive behavior in children. Both mothers with limited job flexibility and changes in the sleep rhythm of children were associated with reduced QOL of children and their parents. Low parental stress was associated with decreased maladaptive behavior in children and with maintained QOL of the family.

Effect of a group intervention for children and their parents who have cancer

2017 ◽  
Vol 15 (5) ◽  
pp. 575-586 ◽  
Author(s):  
Mariko Kobayashi ◽  
Sue P. Heiney ◽  
Kaori Osawa ◽  
Miwa Ozawa ◽  
Eisuke Matsushima
Keyword(s):  
Quality Of Life ◽  
Posttraumatic Stress ◽  
Group Intervention ◽  
The United States ◽  
Posttraumatic Stress Symptoms ◽  
School Aged Children ◽  
Stress Symptoms ◽  
Children And Parents ◽  
The Impact

ABSTRACTObjective:Although support programs for children whose parents have cancer have been described and evaluated, formal research has not been conducted to document outcomes. We adapted a group intervention called CLIMB®, originally developed in the United States, and implemented it in Tokyo, Japan, for school-aged children and their parents with cancer. The purpose of this exploratory pilot study was to examine the feasibility, acceptability, and impact of the Japanese version of the CLIMB® Program on children's stress and parents' quality of life and psychosocial distress.Methods:We enrolled children and parents in six waves of replicate sets for the six-week group intervention. A total of 24 parents (23 mothers and 1 father) diagnosed with cancer and 38 school-aged children (27 girls and 11 boys) participated in our study. Intervention fidelity, including parent and child satisfaction with the program, was examined. The impact of the program was analyzed using a quasiexperimental within-subject design comparing pre- and posttest assessments of children and parents in separate analyses.Results:Both children and parents experienced high levels of satisfaction with the program. Children's posttraumatic stress symptoms related to a parent's illness decreased after the intervention as measured by the Posttraumatic Stress Disorder–Reaction Index. No difference was found in children's psychosocial stress. The Functional Assessment of Chronic Illness Therapy scores indicated that parents' quality of life improved after the intervention in all domains except for physical well-being. However, no differences were found in parents' psychological distress and posttraumatic stress symptoms.Significance of results:Our results suggest that the group intervention using the CLIMB® Program relieved children's posttraumatic stress symptoms and improved parents' quality of life. The intervention proved the feasibility of delivering the program using manuals and training. Further research is needed to provide more substantiation for the benefits of the program.

An Examination of Quality of Life of Children and Parents During Their Tele-HomeCare Experience

2006 ◽  
Vol 12 (6) ◽  
pp. 663-671 ◽  
Author(s):  
Nancy L. Young ◽  
Jennifer Bennie ◽  
Wendy Barden ◽  
Paul T. Dick ◽  
Keyword(s):  
Quality Of Life ◽  
Children And Parents

scholarly journals LOWER URINARY TRACT DYSFUNCTION IN CHILDREN AND ADOLESCENTS: FAMILY IMPACT

2015 ◽  
Vol 3 (2) ◽  
Author(s):  
Martha Moreira Cavalcante Castro ◽  
Maíssa Andrade ◽  
Vanessa Xavier ◽  
Juliana Bonfim ◽  
Lilian Bastos ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Urinary Tract ◽  
Lower Urinary Tract ◽  
Lower Urinary Tract Dysfunction ◽  
Family Impact ◽  
Daily Lives ◽  
Abnormal Pattern ◽  
The Impact ◽  
Lower Urinary

The dysfunction of the lower urinary tract (DTUI) is an abnormal pattern of the urinary control with loss of coordinated capacity storage, stocking and elimination of urine. In order to assess the impact of lower urinary tract dysfunction in their child’s caregivers, this series was performed to evaluate 30 cases of caregivers of children with voiding disorders. Applied HAD scales and SF-36. Of these, 60% (n = 18) had anxiety symptoms and 43.3% (n = 13) depressive symptoms. Despite the scale items of quality of life was above average, the items pain, general health, vitality, emotional limitations and mental health measures were below the average. Thus, the effect of voiding dysfunction in parents of children affects the mood and quality of life in their daily lives.

scholarly journals Stigmatization in Patients With Psoriasis: A Mini Review

2021 ◽  
Vol 12 ◽  
Author(s):  
Hanlin Zhang ◽  
Zihan Yang ◽  
Keyun Tang ◽  
Qiuning Sun ◽  
Hongzhong Jin
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Sociodemographic Characteristics ◽  
Daily Lives ◽  
Health Quality ◽  
Patient Groups ◽  
Health Quality Of Life ◽  
The Relationship ◽  
Therapeutic Responses

Psoriasis is a chronic and recurrent immune-related skin disease that often causes disfigurement and disability. Due to the visibility of lesions in patients and inadequate understanding of dermatology knowledge in the general public, patients with psoriasis often suffer from stigma in their daily lives, which has adverse effects on their mental health, quality of life, and therapeutic responses. This review summarized the frequently used questionnaires and scales to evaluate stigmatization in patients with psoriasis, and recent advances on this topic. Feelings of Stigmatization Questionnaire, Questionnaire on Experience with Skin Complaints, and 6-item Stigmatization Scale have been commonly used. The relationship between sociodemographic characteristics, disease-related variables, psychiatric disorders, quality of life, and stigmatization in patients with psoriasis has been thoroughly investigated with these questionnaires. Managing the stigmatization in patients with psoriasis needs cooperation among policymakers, dermatologists, psychologists, psychiatrists, researchers, and patients. Further studies can concentrate more on these existing topics, as well as other topics, including predictors of perceived stigmatization, stigmatization from non-patient groups, influence of biologics on stigmatization, and methods of coping with stigmatization.

Quality of Life of Victims Bullies, and Bully/Victims Among School-Aged Children in the Netherlands

2008 ◽  
Vol 1 (4) ◽  
pp. 42-52 ◽  
Author(s):  
Mariska Klein Velderman ◽  
Anne G. van Dorst ◽  
Carin H. Wiefferink ◽  
Symone B. Detmar ◽  
Theo G.W.M. Paulussen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
The Netherlands ◽  
School Aged Children ◽  
Bully Victims
Sign in / Sign up

Export Citation Format

Share Document