Effect of a group intervention for children and their parents who have cancer

2017 ◽  
Vol 15 (5) ◽  
pp. 575-586 ◽  
Author(s):  
Mariko Kobayashi ◽  
Sue P. Heiney ◽  
Kaori Osawa ◽  
Miwa Ozawa ◽  
Eisuke Matsushima
Keyword(s):  
Quality Of Life ◽  
Posttraumatic Stress ◽  
Group Intervention ◽  
The United States ◽  
Posttraumatic Stress Symptoms ◽  
School Aged Children ◽  
Stress Symptoms ◽  
Children And Parents ◽  
The Impact

ABSTRACTObjective:Although support programs for children whose parents have cancer have been described and evaluated, formal research has not been conducted to document outcomes. We adapted a group intervention called CLIMB®, originally developed in the United States, and implemented it in Tokyo, Japan, for school-aged children and their parents with cancer. The purpose of this exploratory pilot study was to examine the feasibility, acceptability, and impact of the Japanese version of the CLIMB® Program on children's stress and parents' quality of life and psychosocial distress.Methods:We enrolled children and parents in six waves of replicate sets for the six-week group intervention. A total of 24 parents (23 mothers and 1 father) diagnosed with cancer and 38 school-aged children (27 girls and 11 boys) participated in our study. Intervention fidelity, including parent and child satisfaction with the program, was examined. The impact of the program was analyzed using a quasiexperimental within-subject design comparing pre- and posttest assessments of children and parents in separate analyses.Results:Both children and parents experienced high levels of satisfaction with the program. Children's posttraumatic stress symptoms related to a parent's illness decreased after the intervention as measured by the Posttraumatic Stress Disorder–Reaction Index. No difference was found in children's psychosocial stress. The Functional Assessment of Chronic Illness Therapy scores indicated that parents' quality of life improved after the intervention in all domains except for physical well-being. However, no differences were found in parents' psychological distress and posttraumatic stress symptoms.Significance of results:Our results suggest that the group intervention using the CLIMB® Program relieved children's posttraumatic stress symptoms and improved parents' quality of life. The intervention proved the feasibility of delivering the program using manuals and training. Further research is needed to provide more substantiation for the benefits of the program.

scholarly journals Associations between posttraumatic stress symptoms and quality of life in cardiac arrest survivors and informal caregivers: A pilot survey study

2021 ◽  
Vol 5 ◽  
pp. 100085
Author(s):  
Alex Presciutti ◽  
Mary M. Newman ◽  
Jim Grigsby ◽  
Ana-Maria Vranceanu ◽  
Jonathan A. Shaffer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cardiac Arrest ◽  
Posttraumatic Stress ◽  
Informal Caregivers ◽  
Posttraumatic Stress Symptoms ◽  
Survey Study ◽  
Pilot Survey ◽  
Stress Symptoms

Abstract 320: Posttraumatic Stress Symptoms Are Associated with Quality of Life in Both Cardiac Arrest Survivors with Good Neurologic Recovery and Caregivers

Circulation ◽  
2020 ◽  
Vol 142 (Suppl_4) ◽  
Author(s):  
Alex Presciutti ◽  
Mary M Newman ◽  
Ana-maria Vranceanu ◽  
Jonathan Shaffer ◽  
Sarah M Perman
Keyword(s):  
Quality Of Life ◽  
Cardiac Arrest ◽  
Posttraumatic Stress ◽  
Low Income ◽  
Correlation Matrix ◽  
Posttraumatic Stress Symptoms ◽  
Memory Problems ◽  
Stress Symptoms ◽  
Male Sex

Introduction: Improvements in cardiac arrest (CA) survival have led to increased attention to quality of life (QoL) of survivors and their caregivers. In survivors, posttraumatic stress symptoms (PTS) are predictive of poor clinical outcome and subjective recovery. This study tested the hypothesis that PTS is associated with QoL in survivors and caregivers. Method: We distributed an online survey to CA survivors and caregivers who were members of the Sudden Cardiac Arrest Foundation. This analysis examined the following items: participant characteristics, PTSD Checklist-5 (PCL-5), Lawton Instrumental Activities of Daily Living scale, and physical, psychological, and social QoL subscales of the WHOQOL-BREF. We followed an identical analytic plan for survivors and caregivers. We identified potential covariates through a bivariate correlation matrix. We then ran three multiple regression models examining associations between PCL-5 scores with each QoL subscale, adjusted for covariates identified from the correlation matrix. Results: A total of 163 survivors (mean age: 50.1 years, 50.3% women, 95.5% white, mean months since arrest: 63.9) and 52 caregivers (mean age: 51.8 years, 86.5% women, 88.5% white, mean months since arrest: 43.2) provided full data. For survivors, the following variables showed significant bivariate associations with any QoL subscale: Lawton scores, self-reported memory problems, male sex, low income, months since CA, age, and CA location; for caregivers, months since CA, age, and low income. In survivors and caregivers, PCL-5 scores were associated with each QoL subscale (β: -.33 - -.54, p < .05) after adjusting for respective covariate sets. Further, in survivors, Lawton scores (β: .23, p <.01), presence of memory problems (β: -.24, p < .01), and male sex (β: .14, p <.05) were associated with physical QoL; presence of memory problems (β: -.26, p < .01) was associated with psychological QoL; and low income (β: -.16, p < .05) was associated with social QoL. In caregivers, months since CA was associated with social QoL (β: .27, p <.05). Conclusion: PTS was associated with QoL in CA survivors and caregivers. Future study should examine the feasibility of in-hospital assessment of PTS in dyads of CA survivors and their caregivers.

scholarly journals Contributing factors to quality of life after vertebral artery dissection: a prospective comparative study

BMC Neurology ◽  
2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Rainer J. Strege ◽  
Reinhard Kiefer ◽  
Manfred Herrmann
Keyword(s):  
Quality Of Life ◽  
Cerebral Ischemia ◽  
Functional Outcome ◽  
Posttraumatic Stress ◽  
Posttraumatic Stress Symptoms ◽  
Artery Dissection ◽  
Stress Symptoms ◽  
Good Functional Outcome

Abstract Background Vertebral artery dissection (VAD) may cause cerebral ischemia and impair quality of life (QOL) despite of good functional outcome. The aim of this study was the multimodal analysis of patient characteristics after VAD to identify contributing factors. Methods In an exploratory study, 34 consecutive patients with first-ever spontaneous VAD were prospectively examined in comparison to 38 patients with cerebral ischemia without dissection and 25 stroke mimics as control groups. Multimodal assessment was performed for clinical, neurological, cognitive, psychological and radiological data at baseline and for QOL, functional outcome, and stress symptoms by questionnaire at six months follow-up. Subgroup analysis stratified for QOL by Stroke Specific Quality of Life Scale (SS-QOL) were done for patients with good functional outcome (modified Ranking Scale (mRS) scoring 0–2). Predictors for QOL at follow-up were analyzed by regression model. Results 88.2% of patients with VAD suffered from acute cerebral ischemia. Thirteen of 32 VAD patients (40.6%) rated QOL at follow-up as bad (SS-QOL score ≤ 3.9) despite of good functional outcome (mRS score 0–2). Subgroup analysis yielded significantly higher scores for posttraumatic stress symptoms (p = 0.002) in this subgroup. Posttraumatic stress symptoms, severity of neurological disorders, and impaired neuropsychological baseline performance proved to be independent predictors for reduced QOL at follow-up according to regression analysis. Conclusion VAD leads to impaired QOL at 6 months follow-up due to multiple factors. The data suggest that posttraumatic stress symptoms are of significant importance for the QOL after VAD. Clinical monitoring should address this topic to make timely treatment possible.

scholarly journals Understanding the Link between Family Caregiver Quality of Life and the Care Provided to Older People With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 153-154
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Life ◽  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Well Being ◽  
The United States ◽  
People With Dementia ◽  
The Impact

Abstract Dementia is one of the most rapidly growing diseases in the United States. In 2018, the direct costs to American society of caring for older people with dementia was approximately $277 billion. Primary informal caregivers are mainly responsible for the care of older people with dementia including Alzheimer’s disease. Caregivers perform a myriad of duties ranging from shopping for their loved ones’ groceries, helping with medications, and managing finances. The caregiving role becomes more demanding as the disease progresses over time, and studies have shown that the quality-of-life (QoL) experienced by caregivers of older adults who have dementia is lower than the QoL of caregivers for older people who do not have dementia. To the best of our knowledge, there has been no research conducted to investigate whether lower caregiver QoL affects the level or quality of care that caregivers provide to persons with dementia. In the current study, we interviewed family caregivers living in Rochester, New York to inquire about their quality of life and the care provided to older people living with dementia. Further, caregivers completed the 36-item Short Form Health Survey (SF-36) as well as a draft questionnaire for measuring the quality of care provided to older people living with dementia. Both quantitative and qualitative findings from this study reveals important relationships between family caregiver QoL and the care provided, including the impact of social support and financial well-being. The study findings could have significant impact, particularly for the provision of much needed support for family caregivers.

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