Video Consultation for Parents with a Child Newly Diagnosed with Type 1 Diabetes: A Qualitative Study

Abstract Aims With the exception of the coronavirus pandemic, video consultations have not been a part of the standard care for children with diabetes in Germany. The "Virtual Diabetes Outpatient Clinic for Children and Adolescents 2.0" (VIDIKI 2.0) study investigated the effect of monthly and supplementary video consultations on standard care over one year. The qualitative substudy investigated the experiences of families with a child newly diagnosed with type 1 diabetes mellitus (T1DM) who received at least four weekly supplementary video consultations. Methods Guideline-based qualitative interviews were conducted with seven families with children under the age of eight and T1DM onset shortly before study entry. The answers were analyzed using a qualitative content analysis approach, particularly inductive category formation. Results Families of patients with T1DM onset have questions, almost daily, concerning various aspects of insulin therapy. The offer of high-frequency video consultations can reduce the number of trips to the diabetes team, facilitate the organization of daily life and increase the sense of security. Conclusion Video consultations as a supplementary offer of health care, especially after diabetes onset, were considered very helpful by the affected families. High-frequency video consultations may provide a tool to overcome existing deficiencies in specialized diabetes care.

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CDE Perspectives of Providing New-Onset Type 1 Diabetes Education Using Formal Vignettes and Simulation

The Diabetes Educator ◽

10.1177/0145721716676893 ◽

2016 ◽

Vol 43 (1) ◽

pp. 97-104 ◽

Cited By ~ 2

Author(s):

Neesha Ramchandani ◽

Kim Johnson ◽

Karen Cullen ◽

Terri Hamm ◽

Jean Bisordi ◽

...

Keyword(s):

Type 1 Diabetes ◽

Diabetes Management ◽

Qualitative Content Analysis ◽

Patient Simulation ◽

Human Patient Simulation ◽

Newly Diagnosed ◽

Human Patient ◽

Diabetes Educators ◽

New Onset

Purpose The purpose of this article is to describe the 4 Parent Education Through Simulation-Diabetes (PETS-D) nurse certified diabetes educators’ (CDEs) perspectives of teaching parents of children with newly diagnosed type 1 diabetes mellitus (T1DM) early diabetes management skills using formal vignettes and a human patient simulator/human patient simulation (HPS) to augment/enhance the teaching–learning process. Methods A qualitative descriptive approach was used. Four CDEs were interviewed by phone about their teaching experiences. Meticulous notes were taken. Data were analyzed using qualitative content analysis. Results The vignettes (and use of HPS) provided structure, especially for parents who were struggling to learn. Certified diabetes educators described a short learning curve to master the use of the HPS manikin. Human patient simulation-enhanced education was described as helpful for teaching multiple caregivers about diabetes. Certified diabetes educators also described factors that affect parent learning, mechanical issues with the HPS, and additional space requirements for HPS-enhanced education. Conclusion Vignettes and HPS-enhanced education can successfully be used to educate parents of children with new-onset T1DM and were preferred by the CDEs when compared with previous teaching strategies. The results of this study support the use of both vignette-based and HPS-enhanced education when a child is newly diagnosed with T1DM. Further studies need to be done to see if these effects persist with different populations, during different stages of the disease, and for individuals with other chronic illnesses.

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Partial Restoration of Scintigraphically Assessed Cardiac Sympathetic Denervation in Newly Diagnosed Patients with Insulin-dependent (Type 1) Diabetes Mellitus at One-year Follow-up

Diabetic Medicine ◽

10.1002/(sici)1096-9136(199701)14:1<57::aid-dia297>3.0.co;2-7 ◽

1997 ◽

Vol 14 (1) ◽

pp. 57-62 ◽

Cited By ~ 19

Author(s):

O. Schnell ◽

D. Muhr ◽

S. Dresel ◽

M. Weiss ◽

M. Haslbeck ◽

...

Keyword(s):

Diabetes Mellitus ◽

Type 1 Diabetes ◽

Newly Diagnosed ◽

Partial Restoration ◽

Insulin Dependent ◽

One Year ◽

Dependent Type ◽

Cardiac Sympathetic Denervation

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Mothers’ Experiences of Maze Path of Type 1 Diabetes Diagnosis in Children

Ethiopian Journal of Health Sciences ◽

10.4314/ejhs.v28i5.15 ◽

1970 ◽

Vol 28 (5) ◽

Author(s):

Maryam Khandan ◽

Batool Tirgari ◽

Farokh Abazari ◽

Mohammad Ali Cheraghi

Keyword(s):

Type 1 Diabetes ◽

Health Professionals ◽

Qualitative Interviews ◽

Diabetes Type ◽

Diabetes Diagnosis ◽

Diabetes Type 1 ◽

Medical File ◽

One Year

BACKGROUND: Incidence of diabetes Type 1 in children with non-classic symptoms is one of the reasons for the delay in their follow-up. Failure in its diagnosis by the health professional exposes the mothers tomany challenges. This study was conducted to exploremothers’ experiences in the diagnosis pathway of diabetes Type 1 in children.METHODS: Semi-structured qualitative interviews were conducted with fifteen mothers of children with Type 1 diabetes.theywere selected by the purposefull sampling method.Their child had a medical file in diabetes centers in Kerman, Iran, at least one year has passed of diabetes diagnosis in their child and the maximum age of the child is 14 years. Data were analyzed using content analysis.Three themes and nine sub-themes emerged during dataanalysis.RESULTS: The extracted themes included “presence in the maze path to the child's disease”, “facing the reality of the child's disease”, and “to grin and bear with new conditions”.CONCLUSIONS: According to the finding, these mothers experienced various challenges. Therefore, identification of thesechallenges by health professionals to prevent and decrease of Them, is necessary.

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Assessing the benefits and challenges of video consultations for the treatment of children with type 1 diabetes – A qualitative study among diabetes professionals

Experimental and Clinical Endocrinology & Diabetes ◽

10.1055/a-1149-8814 ◽

2020 ◽

Cited By ~ 1

Author(s):

Fabian-Simon Frielitz ◽

Jana Dördelmann ◽

Stella Lemke ◽

Karin Lange ◽

Olaf Hiort ◽

...

Keyword(s):

Type 1 Diabetes ◽

Health Care Professionals ◽

Qualitative Content Analysis ◽

New Technology ◽

Qualitative Interviews ◽

Controlled Study ◽

Medical Monitoring ◽

Positive Attitudes ◽

Design And Methods

Abstract Background Video consultations are promoted as a tool to effectively supplement paediatric diabetes outpatient care. However, knowledge about attitudes of diabetes professionals towards this new technology is lagging behind. Diabetologists and diabetes nurses participating in a controlled study (the VIDIKI study) with monthly video consultations for children with type 1 diabetes were interviewed about their experience with this type of communication. Research Design and Methods Guideline-based qualitative interviews with 9 telemedicine experts (7 paediatric diabetologists and 2 diabetes nurses) and 7 paediatric diabetologists who agreed to the telemedical co-treatment of their patients were analysed using qualitative content analysis, in particular inductive category formation. Results Diabetes experts reported generally positive attitudes towards video consultations. They identified a number of unique benefits of telemedical interventions, including higher frequency of contacts, greater sense of patient´s safety, ability to interact with patients in their own homes, more timely and accurate medical monitoring, and improved data management. Additionally, it was important to the experts to maintain regular face-to-face consultations and to ensure close communication between telemedicine and outpatient clinical experts. Conclusions Prerequisites for successful video consultations include a comprehensive initial technical training and an agreement on treatment responsibilities of all health care professionals involved in the patient’s care. Under these conditions, the experts reported significant advantages of video consultation in the treatment of children with type 1 diabetes.

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Insulin Independence in Newly Diagnosed Type 1 Diabetes Patient following Fenofibrate Treatment

Case Reports in Medicine ◽

10.1155/2020/6865190 ◽

2020 ◽

Vol 2020 ◽

pp. 1-3

Author(s):

Karsten Buschard ◽

Laurits J. Holm ◽

Ulla Feldt-Rasmussen

Keyword(s):

Type 1 Diabetes ◽

Autoimmune Diabetes ◽

Nod Mice ◽

Diabetes Patient ◽

Tissue Type ◽

Sphingolipid Metabolism ◽

Newly Diagnosed ◽

Fenofibrate Treatment ◽

One Year

A 19-year-old girl was diagnosed with type 1 diabetes and showing polydipsia and polyuria. She was double autoantibody-positive and had a diabetes-prone tissue type. She was immediately started on insulin. Fenofibrate treatment (160 mg daily) was initiated seven days after diagnosis. The need for insulin quickly declined, and she took her last dose of insulin 19 days after the first dose of fenofibrate, having regained endogenous control of blood glucose concentrations. She has now been insulin independent for one year and 9 months. Unstimulated C-peptide has increased by 51% (317 to 479 pmol/l), and IA-2 autoantibody level has decreased by 65% (49 to 17 × 103 arbitrary units). Fenofibrate is a widely used drug for reducing triglyceride and cholesterol levels. Fenofibrate reverses and prevents autoimmune diabetes in nonobese diabetic (NOD) mice by increasing the amount of the sphingolipid sulfatide in islets. Sphingolipid metabolism is otherwise abnormal in the islets at diagnosis of type 1 diabetes. In conclusion, we describe a 19-year-old patient with classical newly diagnosed type 1 diabetes, which following fenofibrate treatment has been without insulin for 21 months.

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