scholarly journals Health Data for Public Health: Towards New Ways of Combining Data Sources to Support Research Efforts in Europe

2017 ◽  
Vol 26 (01) ◽  
pp. 235-240
Author(s):  
A. Burgun ◽  
E. Bernal-Delgado ◽  
W. Kuchinke ◽  
T. van Staa ◽  
J. Cunningham ◽  
...  

Summary Objectives: To present the European landscape regarding the re-use of health administrative data for research. Methods: We present some collaborative projects and solutions that have been developed by Nordic countries, Italy, Spain, France, Germany, and the UK, to facilitate access to their health data for research purposes. Results: Research in public health is transitioning from siloed systems to more accessible and re-usable data resources. Following the example of the Nordic countries, several European countries aim at facilitating the re-use of their health administrative databases for research purposes. However, the ecosystem is still a complex patchwork, with different rules, policies, and processes for data provision. Conclusion: The challenges are such that with the abundance of health administrative data, only a European, overarching public health research infrastructure, is able to efficiently facilitate access to this data and accelerate research based on these highly valuable resources.

2017 ◽  
Vol 26 (01) ◽  
pp. 235-240 ◽  
Author(s):  
A. Burgun ◽  
E. Bernal-Delgado ◽  
W. Kuchinke ◽  
T. van Staa ◽  
J. Cunningham ◽  
...  

Summary Objectives: To present the European landscape regarding the re-use of health administrative data for research. Methods: We present some collaborative projects and solutions that have been developed by Nordic countries, Italy, Spain, France, Germany, and the UK, to facilitate access to their health data for research purposes. Results: Research in public health is transitioning from siloed systems to more accessible and re-usable data resources. Following the example of the Nordic countries, several European countries aim at facilitating the re-use of their health administrative databases for research purposes. However, the ecosystem is still a complex patchwork, with different rules, policies, and processes for data provision. Conclusion: The challenges are such that with the abundance of health administrative data, only a European, overarching public health research infrastructure, is able to efficiently facilitate access to this data and accelerate research based on these highly valuable resources.


2016 ◽  
Vol 10 (2) ◽  
pp. 301-315 ◽  
Author(s):  
Richard J. Fry ◽  
Sarah E. Rodgers ◽  
Jennifer Morgan ◽  
Scott Orford ◽  
David L. Fone

2020 ◽  
Vol 8 (6) ◽  
pp. 1-140
Author(s):  
Timea R Partos ◽  
Rosemary Hiscock ◽  
Anna B Gilmore ◽  
J Robert Branston ◽  
Sara Hitchman ◽  
...  

Background Increasing tobacco prices through taxation is very effective for reducing smoking prevalence and inequalities. For optimum effect, understanding how the tobacco industry and smokers respond is essential. Tobacco taxation changes occurred in the UK over the study period, including annual increases, a shift in structure from ad valorem to specific taxation and relatively higher increases on roll-your-own tobacco than on factory-made cigarettes. Objectives Understanding tobacco industry pricing strategies in response to tax changes and the impact of tax on smokers’ behaviour, including tax evasion and avoidance, as well as the effect on smoking inequalities. Synthesising findings to inform how taxation can be improved as a public health intervention. Design Qualitative analysis and evidence synthesis (commercial and Nielsen data) and longitudinal and aggregate cross-sectional analyses (International Tobacco Control Policy Evaluation Project data). Setting The UK, from 2002 to 2016. Data sources and participants Data were from the tobacco industry commercial literature and retail tobacco sales data (Nielsen, New York, NY, USA). Participants were a longitudinal cohort (with replenishment) of smokers and ex-smokers from 10 surveys of the International Tobacco Control Policy Evaluation Project (around 1500 participants per survey). Main outcome measures (1) Tobacco industry pricing strategies, (2) sales volumes and prices by segments over time and (3) smokers’ behaviours, including products purchased, sources, brands, consumption, quit attempts, success and sociodemographic differences. Review methods Tobacco industry commercial literature was searched for mentions of tobacco products and price segments, with 517 articles extracted. Results The tobacco industry increased prices on top of tax increases (overshifting), particularly on premium products, and, recently, the tobacco industry overshifted more on cheap roll-your-own tobacco than on factory-made cigarettes. Increasingly, price rises were from industry revenue generation rather than tax. The tobacco industry raised prices gradually to soften impact; this was less possible with larger tax increases. Budget measures to reduce cheap product availability failed due to new cheap factory-made products, price marking and small packs. In 2014, smokers could buy factory-made (roll-your-own tobacco) cigarettes at real prices similar to 2002. Exclusive roll-your-own tobacco and mixed factory-made cigarettes and roll-your-own tobacco use increased, whereas exclusive factory-made cigarette use decreased, alongside increased cheap product use, rather than quitting. Quitting behaviours were associated with higher taxes. Smokers consumed fewer factory-made cigarettes and reduced roll-your-own tobacco weight over time. Apparent illicit purchasing did not increase. Disadvantaged and dependent smokers struggled with tobacco affordability and were more likely to smoke cheaper products, but disadvantage did not affect quit success. Limitations Different for each data set; triangulation increased confidence. Conclusions The tobacco industry overshifted taxes and increased revenues, even when tax increases were high. Therefore, tobacco taxes can be further increased to reduce price differentials and recoup public health costs. Government strategies on illicit tobacco appear effective. Large, sudden tax increases would reduce the industry’s ability to manipulate prices, decrease affordability and increase quitting behaviours. More disadvantaged, and dependent, smokers need more help with quitting. Future work Assessing the impact of tax changes made since 2014; changing how tax changes are introduced (e.g. sudden intermittent or smaller continuous); and tax changes on tobacco initiation. Funding This project was funded by the National Institute for Health Research (NIHR) Public Health Research programme and will be published in full in Public Health Research; Vol. 8, No. 6. See the NIHR Journals Library website for further project information.


2013 ◽  
Vol 36 (2) ◽  
pp. 325-335 ◽  
Author(s):  
M. McCarthy ◽  
M. Dyakova ◽  
A. Clarke

Author(s):  
Samar Helou ◽  
Victoria Abou-Khalil ◽  
Elie El Helou ◽  
Ken Kiyono

Using an online survey, we examined the relationships between the perceived usefulness, sensitivity, and anonymity of personal health data and people’s willingness to share it with researchers. An analysis of 112 responses showed that people’s willingness and perceptions are related to the type of the data, their trust in the data’s anonymity, and their personal sociodemographic characteristics. In general, we found that people do not completely trust that their identities remain anonymous when sharing data anonymously with researchers. We also found that they are more willing to share personal health data with researchers if they perceive it as useful for public health research, not sensitive, and if they trust that their identity will remain anonymous after sharing it. We also found that people’s age, gender, occupation, and region of residence may be related to their perceptions regarding the sharing of personal health data.


The Lancet ◽  
2021 ◽  
Vol 398 ◽  
pp. S5
Author(s):  
Irina Lut ◽  
Katie Harron ◽  
Pia Hardelid ◽  
Margaret O'Brien ◽  
Jenny Woodman

Author(s):  
Tracy Johnson ◽  
Liudmila Husak ◽  
Catherine Pelletier ◽  
Sharon Bartholomew

IntroductionCanadian Institute of Health Information and Public Health Agency of Canada combined analytical work for a dementia report. The report linked surveillance and administrative data to support policy makers, health system planners and public in understanding the prevalence of seniors with dementia and their interactions with the health care system. Objectives and ApproachDementia prevalence data from PHAC’s Canadian Chronic Disease Surveillance System was used as a denominator, and data from CIHI’s administrative databases was used as a numerator to calculate the statistics on interactions of seniors with dementia with the healthcare system. Examples of the measures reported by database include: Using DAD: Proportion of seniors with dementia who were hospitalized; Using NACRS: Proportion of seniors with dementia who visited emergency departments; Using CCRS: Proportion of seniors with dementia living in and outside of nursing homes; Using HCRS: Proportion of seniors with dementia living in the community and receiving home care services. ResultsResults for the measures above, as well as rates of patients receiving different services, statistics on where they live, their characteristics, quality of care by sectors, and impacts on caregivers will be presented. One out of 5 seniors with dementia is admitted to hospital every year, and one out of four visited emergency departments at least once. Two out of five seniors with dementia reside in long term care. While in nursing homes, seniors with dementia experience more inappropriate antipsychotic and restraint use compared to seniors without dementia. They are especially susceptible to injury and falls. Once hospitalized, they tend to stay longer waiting for placement and experience greater hospital harm. Caregivers of seniors with dementia experience more distress compared to caregivers of other seniors. Conclusion/ImplicationsThis work illustrates benefits of combining data from different organizations and sectors to help inform policy and fill data gaps. This innovative approach using PHAC’s surveillance and CIHI’s administrative data avoids confusion from varying estimates and duplication of work between organizations, generates new evidence, and reaches a broader audience.


2019 ◽  
Vol 4 ◽  
pp. 97 ◽  
Author(s):  
Matthew H. Iveson ◽  
Ian J. Deary

Background: There is growing interest in using routinely collected administrative data for research purposes. Following the success of research using routinely collected healthcare data, attention has turned to leveraging routinely-collected non-health data derived from systems providing other services to the population (e.g., education, social security) to conduct research on important social problems. In Scotland, specialised organisations have been set up to support researchers in their pursuit of using and linking administrative data. The landscape of administrative data in Scotland, however, is complex and changeable, and is often difficult for researchers to navigate. Purpose: This paper provides a researcher’s narrative of the steps required to gain the various approvals necessary to access and link non-health administrative data for research in social and cognitive epidemiology. Findings: This paper highlights the problems, particularly regarding the length and complexity of the process, which researchers typically face, and which result in a challenging research environment. The causes of these problems are discussed, as are potential solutions. Conclusions: Whereas the potential of non-health administrative data is great, more work and investment are needed on the part of all those concerned – from researchers to data controllers – in order to realise this potential.


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