scholarly journals Section 5 Introduction: Resources for Consumer Empowerment

2003 ◽  
Vol 9 (3) ◽  
pp. 217

People who wish to systematically work in the area of chronic disease self-management will find the two resources in this section of great value. The first, by Hill and Stoelwinder, discusses an approach to evidence-based practice developed by the Cochrane Consumers and Communication Review Group, to identify areas where communication interventions produce benefits for consumers. The second paper in this section (Aroni et al.) is a ?beginner?s bibliography? prepared for people who are interested in working on issues of self-management. The bibliography will be of interest to practitioners, consumers, and researchers.

Author(s):  
Kostas Giokas ◽  
Panagiotis Katrakazas ◽  
Dimitris Koutsouris

The ageing process of EU population has played a key role raising the prevalence of chronic disease, with more than 80% of people in the last age group (65-74) reported to be having three or more long-term Multimorbidity or Multiple Chronic Conditions (MCCs). The main problem is that currently, clinicians have limited guidance, as well as evidence of how to approach care decisions for such patients. As a consequence, the understanding of how to best take care of patients with multimorbidity conditions, may lead to improvements in Quality of Life (QoL), utilization of healthcare, safety, morbidity and mortality. The root of this problem is not narrowly confined to guidelines development and application, but is inherent throughout the translational path from the generation of evidence to the synthesis of the evidence upon which guidelines depend.


2018 ◽  
Vol 19 (4) ◽  
pp. 489-491 ◽  
Author(s):  
Michael Stellefson ◽  
Samantha R. Paige ◽  
Julia M. Alber ◽  
Margaret Stewart

People living with chronic obstructive pulmonary disease (COPD) commonly report feelings of loneliness and social isolation due to lack of support from family, friends, and health care providers. COPD360social is an interactive and disease-specific online community and social network dedicated to connecting people living with COPD to evidence-based resources. Through free access to collaborative forums, members can explore, engage, and discuss an array of disease-related topics, such as symptom management. This social media review provides an overview of COPD360social, specifically its features that practitioners can leverage to facilitate patient–provider communication, knowledge translation, and community building. The potential of COPD360social for chronic disease self-management is maximized through community recognition programming and interactive friend-finding tools that encourage members to share their own stories through blogs and multimedia (e.g., images, videos). The platform also fosters collaborative knowledge dissemination and helping relationships among patients, family members, friends, and health care providers. Successful implementation of COPD360social has dramatically expanded patient education and self-management support resources for people affected by COPD. Practitioners should refer patients and their families to online social networks such as COPD360social to increase knowledge and awareness of evidence-based chronic disease management practices.


2001 ◽  
Vol 12 (6) ◽  
pp. 94-101 ◽  
Author(s):  
Glenn B. Urbshott ◽  
Gail Kennedy ◽  
George Rutherford

2019 ◽  
Vol 31 (10_suppl) ◽  
pp. 22S-38S ◽  
Author(s):  
Lisa A. Ferretti ◽  
Philip McCallion

Objective: The study was to test the feasibility of supplementary materials (DD-CDSMP) supporting people with developmental disabilities who are aging to participate in the Chronic Disease Self-Management Program (CDSMP). CDSMP is a six-session group intervention designed to increase self-management of chronic health conditions. Method: Supplementary materials were utilized within two CDSMP workshops. Each workshop involved seven to nine persons with developmental disabilities and five to seven staff. Supplementary materials to the existing intervention manual were reviewed using a framework for modifications and adaptions for evidence-based interventions. Process interviews with leaders and participants, pre- and posttests on self-management activity and satisfaction surveys assessed outcomes and feasibility. Results: Classes were successfully held with a 70% completer rate, and all materials proved useful. Discussion: People with developmental disabilities as they age tend to have more comorbid conditions than the general population. Developing and implementing materials and strategies to making self-management more accessible to people with developmental disabilities in mainstream rather than segregated settings will improve the quality of people’s lives.


AAOHN Journal ◽  
2011 ◽  
Vol 59 (11) ◽  
pp. 491-502 ◽  
Author(s):  
Colleen Miller

Employee health, prevention, and maintenance programs are growing exponentially each year as costs continue to rise across the health care continuum. Employers and payers alike continue to be challenged by chronic health risks, effective prevention strategies, optimal health and wellness strategies, and programs that are effective for America's work force. In light of these challenges, new and exciting health management approaches are evolving. Changes in occupational health nursing practice can ultimately affect the way occupational health nurses plan, structure, and conduct education sessions. New trends, such as health coaching, embrace the incorporation of health research through evidence-based practice and standards of care to provide the science clinicians need to support interventions. Through knowledge of chronic conditions, evidence-based practice, and health coaching, occupational health nurses possess the skills and strategies that form the foundation necessary to affect and safely guide employee self-discovery and self-management and produce optimal health outcomes.


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