ARE WE STILL FRIENDS? THE IMPACT OF CHRONIC ILLNESS ON PERSONAL RELATIONSHIPS AND LEISURE

1985 ◽  
Vol 8 (2) ◽  
pp. 453-465 ◽  
Author(s):  
Renee Felice Lyons
Keyword(s):  
Chronic Illness ◽  
Personal Relationships ◽  
The Impact

scholarly journals Exploring the impact of pharmacist comprehensive annual care plans on perceived quality of chronic illness care by patients in Alberta, Canada

2021 ◽  
pp. 171516352110203
Author(s):  
Candace Necyk ◽  
Jeffrey A. Johnson ◽  
Ross T. Tsuyuki ◽  
Dean T. Eurich
Keyword(s):  
Quality Of Care ◽  
Chronic Illness ◽  
Care Plan ◽  
Short Version ◽  
Chronic Illness Care ◽  
Online Questionnaire ◽  
Care Plans ◽  
Funding Program ◽  
The Impact

Background: In 2012, the Government of Alberta introduced a funding program to remunerate pharmacists to develop a comprehensive annual care plan (CACP) for patients with complex needs. The objective of this study is to explore patients’ perceptions of the care they received through the pharmacist CACP program in Alberta. Methods: We invited 3442 patients who received a pharmacist-billed CACP within the previous 3 months and 6888 matched controls across Alberta to complete an online questionnaire. The questionnaire consisted of the short version Patient Assessment of Chronic Illness Care (PACIC-11), with 3 additional pharmacy-specific assessment questions added. Additional questions related to health status and demographics were also included. Results: Overall, most patients indicated a low level of chronic illness care by pharmacists, with few differences noted between CACP patients and non-CACP controls. Of note, controls reported higher quality of care for 5 domains within the adapted PACIC-like tool compared with CACP patients ( p < 0.05 for all). Interestingly, only 79 (44%) of CACP patients reported that they had received a CACP, whereas only 192 (66%) of control patients reported that they did not receive a care plan. In a sensitivity analysis including only these respondents, individuals who received a CACP perceived a significantly higher quality of chronic illness care across all PACIC domains. Conclusion: Overall, chronic illness care incentivized by the pharmacist CACP program in Alberta is perceived to be moderate to low. When limited to respondents who explicitly recognized receiving the service or not, the perceptions of quality of care were more positive. This suggests that better implementation of CACP by pharmacists may be associated with improved quality of care and that some redesign is needed to engage patients more. Can Pharm J (Ott) 2021;154:xx-xx.

All That Was Not Her

2022 ◽  
Author(s):  
Todd Meyers
Keyword(s):  
Chronic Illness ◽  
Personal Relationships ◽  
Socioeconomic Conditions ◽  
Ethical Challenges ◽  
Final Word ◽  
Social Insecurity

While studying caregiving and chronic illness in families living in situations of economic and social insecurity in Baltimore, anthropologist Todd Meyers met a woman named Beverly. In All That Was Not Her Meyers presents an intimate ethnographic portrait of Beverly, stitching together small moments they shared scattered over months and years and, following her death, into the present. He meditates on the possibilities of writing about someone who is gone—what should be represented, what experiences resist rendering, what ethical challenges exist when studying the lives of others. Meyers considers how chronic illness is bound up in the racialized and socioeconomic conditions of Beverly’s life and explores the stakes of the anthropologist’s engagement with one subject. Even as Meyers struggles to give Beverly the final word, he finds himself unmade alongside her. All That Was Not Her captures the complexity of personal relationships in the field and the difficulty of their ending.

The effect of stigma on social participation in community-dwelling Chinese patients with stroke sequelae: A cross-sectional study

2021 ◽  
pp. 026921552110505
Author(s):  
Qi Lu ◽  
Dongrui Wang ◽  
Li Fu ◽  
Xue Wang ◽  
LiYa Li ◽  
...  
Keyword(s):  
Chronic Illness ◽  
Social Participation ◽  
Community Dwelling ◽  
Chinese Version ◽  
Chinese Patients ◽  
Cross Sectional ◽  
Stigma Scale ◽  
Enacted Stigma ◽  
Pearson's Correlation ◽  
The Impact

Objective To explore the effect of stigma on social participation in community-dwelling Chinese patients with stroke sequelae. Design A cross-sectional survey study. Setting The study was conducted in two community centres in Tianjin, China. Subjects Community-dwelling Chinese patients with stroke sequelae. Measures Chinese version of Stigma Scale for Chronic Illness, Chinese version of Impact on Participation and Autonomy, Modified Barthel index, Self-Rating Depression Scale, Social Support Rating Scale, Medical Coping Modes Questionnaire, background and disease-related questions. Pearson’s correlation coefficients were computed between stigma and social participation. The impact of stigma on social participation was estimated by hierarchical multiple regression analysis after controlling for demographic, physical and psychosocial characteristics. Results In total, 136 patients with stroke sequelae were included in this study, with a mean age of 67.8 years. The Chinese version of the Stigma Scale for Chronic Illness had a mean score of 48.4 (SD 16.9), and the Chinese version of the Impact on Participation and Autonomy was 67.1 (SD 21.1). Significant correlations were found between stigma and social participation. Pearson’s correlation coefficient ranged from 0.354 to 0.605 ( P < 0.01). Enacted stigma provided a significant explanation for the variance of social participation by 1.1% ( P < 0.05). Felt stigma provided a significant explanation for the variance of social participation by 2.9% ( P < 0.001). Conclusion Felt stigma and enacted stigma have independent associations with social participation. Patients with stroke sequelae who reported higher stigma experienced a lower level of social participation.

scholarly journals Determinants of Chronic Illness Among Aged Population in Ghana: A Multinomial Logit Approach

2021 ◽  
Vol 21 (1) ◽  
pp. 68-75
Author(s):  
C. C. Nyarko ◽  
K. Agyarko ◽  
P. K. Nyarko ◽  
L. Brew
Keyword(s):  
Chronic Illness ◽  
Marital Status ◽  
Urban Communities ◽  
Social Cohesion ◽  
Multinomial Logit Model ◽  
Multinomial Logit ◽  
Adult Health ◽  
Aged Population ◽  
Policies And Programs ◽  
The Impact

Generally, the constant change in demographic trends among the aged depict gradual increase in the size of the aged population globally. The aged population is often capitalised with degenerative conditions such as chronic illness which affect their ability to function effectively and often require special support. Despite the increase in the size of the aged population and their associated degenerative conditions, very few descriptive studies on the determinants of chronic illness among the aged has been researched especially in developing countries such as Ghana and there is no compelling evidence on the association of chronic illness and its determinants. Thus, this study seeks to analyse and predict the impact of age, gender, education, marital status, Quality of Life (QoL), social cohesion, settlement and depression on chronic illness among the aged population in Ghana. From the studies a Multinomial Logit Regression (MLR) was employed to analyse the data obtained from the Ghana Statistical Service (GSS) under, Ageing and Adult Health (SAGE), 2012. It was revealed that out of the 1384 sampled, 71% had no chronic illness whilst 22% and 7% had one and two or more chronic illness respectively. Again, it was observed that, Depression State, Gender, Marital Status and Settlement Type (rural or urban) play significant roles in determining the likelihood of the aged getting chronic illness while Physical Function, Social Cohesion, QoL, Age and Education Level were not statistically significant determinants of chronic illness. Our findings demonstrate that chronic illness among the aged is constantly increasing in Ghana especially in the urban communities and need to be addressed urgently through governmental policies and programs in the quest to help salvage the deteriorating conditions of the aged.   Keywords: Aged Population, Multinomial Logit Model, Chronic Illness

scholarly journals The impact of illness-related shame on psychological health and social relationships: Testing a mediational model in students with chronic illness

2018 ◽  
Vol 25 (3) ◽  
pp. 408-414 ◽  
Author(s):  
Inês A. Trindade ◽  
Joana Duarte ◽  
Cláudia Ferreira ◽  
Mariana Coutinho ◽  
José Pinto-Gouveia
Keyword(s):  
Chronic Illness ◽  
Social Relationships ◽  
Psychological Health ◽  
Mediational Model ◽  
The Impact

Using Partnerships to Create a Medical Specialty Camp for Youth with Diabetes

2022 ◽  
Author(s):  
Takeyra Collins Coats ◽  
Ron Ramsing ◽  
Eddie Hill ◽  
Kent Reifschneider ◽  
Chet Kramer
Keyword(s):  
Type 1 Diabetes ◽  
Chronic Illness ◽  
Youth Development ◽  
Health Care Cost ◽  
Medical Specialty ◽  
Youth Outcomes ◽  
Post Test ◽  
The Impact ◽  
Diabetes Camp

Complications associated with a complex chronic illness, specifically, type 1 diabetes, negatively impact youth as they struggle to maintain healthy lifestyles. Type 1 diabetes is the second most common chronic illness affecting youth as well as one of the most psychologically and behaviorally demanding illnesses. Fortunately, organized camps have been shown to positively influence long-term outcomes for youth. Family Diabetes Camp, the only family medical program in the state where this study occurred, was created in collaboration with a local university, a diabetes center at a hospital, and a chapter of the Lions Club. This collaborative camp program aimed to test the effect of active participation in a Family Diabetes Camp upon youth outcomes for campers with type 1 diabetes. Specifically, the purpose was to evaluate the impact of a collaborative medical camp on campers’ resilience and youth developmental outcomes (e.g., independence). Family Diabetes Camp was designed using Outcome-Focused Programming (OFP) to promote positive youth development. The Family Diabetes Camp included 50 campers for the pre-test and post-test (n= 19 males and n= 31 females). While there were no statistically significant differences from pretest (M=4.97, SD= .53) to post-test scores (M=5.01, SD= .46), with t(50) = -.56, p= .57) researchers found a slight increase in resilience from pre to post-test. Using a retrospective measure, campers showed gains in the seven critical youth development outcomes identified by the American Camp Association. Finally, campers learned new knowledge about site injection, carbohydrate counting, and the use of exercise to help manage their diabetes. The impact associated with adapting activities and an environment to encourage, analyze, and challenge resilient behaviors is essential in encouraging independence, shared experiences, and effective disease management for youth living with type 1 diabetes. The camp, solely staffed by volunteers, included physicians, diabetes educators, certified therapeutic recreation specialists, dietitians, nurses, pump specialists, recreation professionals and students, and Lions Club Members. The camp program is unique not only in how it fills a void for youth with type 1 diabetes but how three large organizations work in concert to meet the needs of entire families. These types of data can be instrumental in establishing more camps and other out of school time programming that positively impacts quality of life, health care cost, and mortality among youth with type 1 diabetes.

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