Inclusive communications in COVID-19: a virtual ethnographic study of disability support network in China

2021 ◽  
pp. 1-19
Author(s):  
Ruikai Dai ◽  
Luanjiao Hu
2020 ◽  
Vol 22 ◽  
Author(s):  
Christine Maheu ◽  
Margareth Santos Zanchetta ◽  
Abinet Gebreegziabher Gebremariam ◽  
Mary Rachel Lam-Kin-Teng

An ethnographic study explored ideas about the possibility of creating social support networks for breast cancer within the Portuguese-speaking community in Toronto (Canada). Nineteen men and women from Angolan, Brazilian and Portuguese communities informed about a social support network with a focus on enabling versus challenging conditions for its construction. The fundamental components in creating social support networks were: the demystification of breast cancer and its prevention, emphasis on health education, mobilizing volunteers and direct social support to women living with breast cancer. The potential enabling factors were the participation of older women as social leaders, and the utilization of schools and religious institutions. Perceived barriers were: breast cancer believed to be women’s disease, lack of knowledge about its cure/ rehabilitation, as well as a limited sensitivity to cancer. Social support networks should consider the communities’ diverse cultural and tangible needs, as well as more informal social support services.


2018 ◽  
Vol 54 (2) ◽  
pp. 167-177 ◽  
Author(s):  
Susan Banks

This article examines the way that aged care workers and clients are devalued. It is argued that they share a stigmatised and marginalised position, not experiencing recognition at individual, rights or societal levels. The research draws on a qualitative, ethnographic study of aged care and disability support, with Honneth’s recognition theory used to analyse the intersection of practice and meaning in this work. The study reveals that workers’ and clients’ presentations of a competent self are compromised by external signals of mistrust and devaluing, forms of misrecognition. These include low wages and status for workers, public and policy discourses that position them and their clients as mendicant or undeserving, and demeaning treatment from organisations. In turn, those participants who lacked a sense of themselves as uniquely valuable, as deserving of rights, and as contributing to the shared project of society, displayed practices and perspectives that were disabling of themselves and one another. Their interactions were characterised by distrust, resistance and mutual disabling. Boomageddon and silver tsunami scenarios are part of the problem; such discourses of misrecognition must be contested.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 116-116
Author(s):  
Sean Halpin ◽  
Michael Konomos ◽  
Ivey Jowers

Abstract In the current study, we sought to examine how older patients incorporate the identity of a patient receiving autologous stem cell transplant (ASCT) for multiple myeloma (MM) into their daily lives. In this ethnographic study using interpretative phenomenological analysis, we observed pre-transplant education visits with 30 MM patients, followed by semi-structured interviews in their hospital rooms during transplant. The experience of receiving ASCT for MM required effort by patients to not only maintain their past identity but also establish a new patient identity. Reconciling these two identities required deliberate and emotionally draining effort from the patient. Results were organized into two overarching themes of social relationships and aesthetics with subthemes for each. Patients experienced challenges reconceptualizing their social support network to meet their changing needs; often with a spouse or child taking on a caregiving role. In regard to aesthetics, patients contended with the physical reminders of their new diseased identity, adopting various aesthetic strategies to either embrace or conceal bodily changes. Understanding methods MM patients who are receiving ASCT use to negotiate normalcy during treatment may be helpful for developing interventions for alleviating distress during this difficult time.


2010 ◽  
Author(s):  
Lorry Schoenly ◽  
Paula Hancock
Keyword(s):  

2008 ◽  
Author(s):  
Vadim Moldovan ◽  
Alexandru Ciobanu ◽  
William Divale ◽  
Anatol Nacu

2012 ◽  
Author(s):  
Marquia Blackmon ◽  
Sherry C. Eaton ◽  
Linda M. Burton ◽  
Whitney Welsh ◽  
Dwayne Brandon ◽  
...  

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