Intergenerational Exchanges In Aging South Asian Muslim Families: An Intersectional Lifecourse Perspective

International migration flows are increasing at a rapid pace and are often accompanied by emergent global realities, (re)negotiation of identities and familial bonds, anticipated challenges, and unforeseen exigencies. Concomitantly, advances in public health have resulted in longer lives with an increasing proportion of the global population now 65 years and older. While these demographic shifts have received considerable research attention, little is known about aging South Asian Muslim families in the US and the ways in which they adjust and adapt to shifting social realities. To address this gap, this qualitative study explores the intersections of faith, culture, gender, age, and immigrant status, and how these seminal life course events shape intergenerational care and support exchanges in South Asian Muslim families. Building on findings from 30 in-depth narrative interviews with three generations of immigrant South Asian Muslim women, and using an intersectional lifecourse perspective, this study explores the (re)negotiation of familial bonds and the enactment of religious beliefs and practices such as those around filial expectations in a transnational Islamic context. It shows how, for the grandmothers, daughters, and granddaughters in the study, their Islamic faith was a part of both the public sphere and a collective ideology, as well as a deeply personal and intimate attachment that provided structure and continuity in their everyday lives. Finally, the implications of these findings in the broader context of Islamophobia and salient structural barriers to accessing available health and social support services for aging South Asian Muslim families are discussed.

The Eye Van – An Evaluation of the Quality of Care of Visually Impaired People in the Rural Areas of South Baden

Background Especially in rural areas, access of visually impaired people to ophthalmic care and counselling can be limited. The Eye Van is a project supported by the Ministry for Rural Affairs and Consumer Protection Baden-Württemberg which offers visually impaired people an on-the-spot ophthalmological examination and counselling on low-vision aids and social support services. The aim of this project was to evaluate the quality of care provided to visually impaired people in the rural areas of South Baden. Materials and Methods Between 2016 and 2019, 45 villages in South Baden participated in this project. The visits were advertised in the local press. Appointments were assigned and participant eligibility was assessed over the telephone by the local Federation of the Blind and Partially Sighted in South Baden. During the on-site visits, a medical history was obtained from participants, who then received a comprehensive ophthalmological examination and counselling on low-vision aids and social support services. Interviews were conducted in order to determine the expectations of the participants and to assess their quality of life. A second interview, focused on the measures that had been implemented and changes in the participantsʼ quality of life, was carried out three months later. Results In total, 264 participants were examined. Of these, 101 participants fulfilled the criteria of moderate/severe visual impairment or blindness defined by the WHO (World Health Organization). The mean age of the visually impaired participants was 85 years. The median decimal visual acuity was 0.08. The median length of time since the participantsʼ last ophthalmological examination was one year. Among the visually impaired participants, 13% did not have any low-vision aids. Their use was recommended to 62% of the visually impaired participants. The main expectation of participants was counselling on low-vision aids and support services. Among all the participants, 42 did one interview and 28 did two interviews. In the second interview, 72% of the participants claimed to have implemented the recommendations. There was no statistically significant change in their quality of life. Conclusion The access of visually impaired people to ophthalmic care does not seem to be limited in the rural areas of South Baden. Nevertheless, there was a high demand for counselling on low-vision aids and social support services.

P.018 The Ottawa Epilepsy Program: region-wide coordinated and multidisciplinary care in the 21st century

Background: Epilepsy is the most common chronic neurological illness worldwide, affecting more than 330, 000 people in Canada, 10, 000 of which reside in the Ottawa area. Despite facing higher mortality, stigma and social barriers, PLE (people living with epilepsy) incur treatment gaps even in high income countries like ours. Our goal was to address this burden locally with the creation of novel, community-integrated, care delivery for PLE in our area; we describe its inception. Methods: A transition program bridging pediatric and adult institutions was created to address the care continuity gap in 2017. Following a meeting of key stakeholders in the region in 2019, the community group was integrated into the model of care and the city-wide program was created incorporating adult, pediatric, transition and community pillars. A patient friendly website was launched in 2020 (ottawaepilepsyprogram.ca). Results: 170 patients were followed in the transition program since 2017. Adult and pediatric pillars have referred 70 patients to the community program between 2019-2020, 48 between 2020-2021. Through this, PLE are able to access the Clinic to community (C2C) and UPLIFT programs for social support services and mental health, respectively. Conclusions: An interconnected region-wide program can support PLE and foster innovative care integration across disciplines.

Case Report on Schizophrenia

Introduction: The psychotic state of Schizophrenia is characterized by a disruption in the existence of clear consciousness in the thought, emotion and faculties that typically leads to a social abrogation. In India, research found a prevalence 3/1000 individuals. It is more common in men, and when men begin to develop schizophrenia, they appear to be around five years younger by average than women. Case Presentation: A male patient 30 years from Hariom Nagar, Sindhi Meghe, Wardha was admitted to Psychiatric Ward, AVBRH on 20th January 2021 with a case of Schizophrenia. Symptoms: Behavioral changes like muttering to self, smiling to self, aggressiveness, irrelevant talk, sleep disturbance, hearing of voices not heard by others. Non adherence to medication in the last 1 years. Investigation: Hb% - 14.6 mg/dl; Glucose plasma random – 68 mg%; Monocytes- 3%, Granulocytes- 80% Lymphocytes- 15%; HIV, HCV, HBsAg, VDRL, all of these tests were negative. Surgical Management: Patient have no past surgical history. Medical Management: Patient was treated with Tab. Risperidone Plus x HS and Tab Clonazepam 0.25mg. Nursing Management: Assess for physical, psychological and social data. Aware for Impact of schizophrenia on physical health, emotions, thinking and natural capacity to cope. Remember that the defense mechanisms used, the nature or structure of the feeling, the suicidal risk, the capacity to work and the space accessible for social support services. Conclusion: Patient was admitted to AVBRH and was diagnosed to have Schizophrenia. The patient got appropriate treatment and therapy and his condition has improved well.

Expanding the meaning of citizenship: "evacuation" of people with disabilities in Russia from the institutions during COVID-19

In the wake of COVID-19, non-profit organizations that focus on providing social support services in Russia consolidated their efforts to take proactive measures to change internaty 1, the system of institutions for people with physical, mental, and intellectual disabilities. As a result of advocacy efforts by the non-profit organizations, 26 people from these institutions were evacuated and provided with temporary assisted housing. The decision to act proactively to prevent the spread of the virus among the residents of the institutions is indicative of the galvanized efforts of the non-profit sector to advocate for deinstitutionalization and assisted living. COVID-19 served as an opportunity for the non-profit organizations to emphasize the need for expediting deinstitutionalization reform. Drawing on media sources, the literature on disability and advocacy in Russia, and the conceptual framework of citizenship, this paper will provide an overview of the internaty system, analyze the legislative context of disability and COVID-19, and discuss the context of deinstitutionalization advocacy in Russia.

Resilience and supporting people living with dementia during the time of COVID-19; A qualitative study

Objectives To explore the different factors of resilience for people living with dementia and unpaid carers, in response to sudden changes in care and lifestyle during the COVID-19 pandemic. Methods Unpaid carers and people living with dementia were offered telephone interviews in April 2020 to discuss their experiences since the COVID-19 pandemic. Participants were asked about the benefits and challenges of accessing dementia support, as well as coping, symptoms, strategies and impacts. Each transcript was analysed using inductive and deductive thematic analysis by two researchers. Findings Semi-structured interviews from 50 participants ( n = 42 unpaid carers and n = 8 people living with dementia) reported protective and risk factors of resilience concerning (1) communication, (2) adaptations, (3) support networks and (4) lifestyle factors and coping mechanisms. Conclusions Resilience factors considered both organisational factors for external support, along with individual coping mechanisms. Organisations and social support services should consider resilience factors in future service planning, to better support people living with dementia, or caring someone living with dementia, during times of great stress. The ecological model of resilience established from this research refers to resilience during times of unexpected change in the COVID-19 pandemic; however, it could be considered relevant in other periods of high stress within this cohort.

Systematic Review on the Mental Health and Treatment Impacts of COVID-19 on Neurocognitive Disorders

Objectives. The COVID-19 pandemic has had many public health impacts, especially on vulnerable individuals including adults with neurocognitive disorders (NCD). With increasing literature, this systematic literature review aimed to address the mental health effects of COVID-19 on people with NCD in addition to examine the impact of the pandemic on treatments/resources for NCD. Methods. A literature search was conducted in the electronic databases of PubMed, PsycINFO, Web of Science and Google Scholar. Studies were included so long as they assessed the mental health or therapeutic effects of COVID-19 on NCD. Results. Among the retrieved articles, 59 met eligibility criteria. First, the pandemic and resulting self-isolation led to many detrimental effects on psychological well-being. Exacerbation and relapses of neurocognitive and behavioral symptoms were observed, as well as emergences of new psychological symptoms (i.e., depression, anxiety). Second, therapeutic and community services for individuals suffering from NCD, such as social support services and outpatient clinics, were disrupted or reduced leading to postponed appointments and evaluations, as well as reduced access to medications. These issues were somewhat palliated with the growth of telemedicine. Conclusion. This systematic review highlights the extent of the effects of the pandemic, and the topics addressed should be taken into consideration by healthcare practitioners, institutions, and policymakers to ensure that proper measures are employed to protect this population from additional harm.

Leaving rehab: enhancing transitions into stable housing

The project will examine the coordination between residential treatment and housing and social support services using international comparisons and linked administrative data followed by testing in the field. It aims to enhance transition planning and reduce the risk of housing instability for individuals leaving treatment for mental health and/or substance use problems.

Leaving rehab: enhancing transitions into stable housing

The project will examine the coordination between residential treatment and housing and social support services using international comparisons and linked administrative data followed by testing in the field. It aims to enhance transition planning and reduce the risk of housing instability for individuals leaving treatment for mental health and/or substance use problems.