Exploring the attitudes, beliefs, and values of the long-term care workforce towards palliative care: A qualitative evidence synthesis protocol

Abstract Background Palliative care (PC) development cannot only be assessed from a specialized provision perspective. Recently, PC integration into other health systems has been identified as a component of specialized development. Yet, there is a lack of indicators to assess PC integration for pediatrics, long-term care facilities, primary care, volunteering and cardiology. Aim To identify and design indicators capable of exploring national-level integration of PC into the areas mentioned above. Methods A process composed of a desk literature review, consultation and semi-structured interviews with EAPC task force members and a rating process was performed to create a list of indicators for the assessment of PC integration into pediatrics, long-term care facilities, primary care, cardiology, and volunteering. The new indicators were mapped onto the four domains of the WHO Public Health Strategy. Results The literature review identified experts with whom 11 semi-structured interviews were conducted. A total of 34 new indicators were identified for national-level monitoring of palliative care integration. Ten were for pediatrics, five for primary care, six for long-term care facilities, seven for volunteering, and six for cardiology. All indicators mapped onto the WHO domains of policy and education while only pediatrics had an indicator that mapped onto the domain of services. No indicators mapped onto the domain of use of medicines. Conclusion Meaningful contributions are being made in Europe towards the integration of PC into the explored fields. These efforts should be assessed in future regional mapping studies using indicators to deliver a more complete picture of PC development.

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Combating Coronavirus Disease-2019 Outbreak in Long-Term Care Facilities for Frail Older Adults: Preventive Measures and Palliative Care Go Hand-in-Hand

Journal of Palliative Care ◽

10.1177/08258597211039364 ◽

2021 ◽

pp. 082585972110393

Author(s):

Hon Wai Benjamin Cheng

Keyword(s):

Palliative Care ◽

Long Term Care ◽

Care Delivery ◽

Nursing Home Residents ◽

Respiratory Illness ◽

Term Care ◽

The People ◽

Care Facilities ◽

Novel Coronavirus

While the whole population is at risk from infection with the coronavirus, older people—often frail and subject to multimorbidity—are at the highest risk for the severe and fatal disease. Despite strict infection control and social distancing measures, frail adults in long-term care facilities may be at particular risk of transmission of respiratory illness. Treatment decisions are often complex attributed to the heterogeneity of this population with regards to different geriatric domains such as functional status, comorbidity, and poly-pharmacy. While measures must be taken to prevent the novel coronavirus from spreading through these facilities, it is also essential that residents with coronavirus disease 2019 (COVID-19) have access to the symptom management and support they want and deserve. What most nursing home residents want during the course of their illness is to be able to stay in their facilities, to be surrounded by the people they love most, and to feel relief from their physical and emotional pain. By addressing the limited access to hospice and palliative care delivery in nursing homes, we can prevent unnecessary suffering and pain from COVID-19 as well as lay the groundwork for improving care for all residents moving forward.

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Palliative care: Long-term solution for long-term care–Part I (CE)

Home Care Provider ◽

10.1067/mhc.2001.116261 ◽

2001 ◽

Vol 6 (3) ◽

pp. 90-99

Author(s):

Mellar P. Davis ◽

E.Duke Dickerson ◽

Marco Pappagallo ◽

James Varga ◽

John Shuster ◽

...

Keyword(s):

Palliative Care ◽

Long Term Care ◽

Term Care

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MaineHealth: Development, Implementation, and Success in Telehealth for Home Care

Telehealth and Medicine Today ◽

10.30953/tmt.v2.32 ◽

2018 ◽

Vol 2 (5) ◽

Author(s):

Robert Abel

Keyword(s):

Palliative Care ◽

Home Care ◽

Long Term Care ◽

Opinion Leaders ◽

Term Care ◽

National Conference ◽

Chief Nursing Officer ◽

Care At Home ◽

Medicine Today

No abstract available. Editor’s note: On March 16th and 17th, 2017, Telehealth and Medicine Today convened a national conference of opinion leaders to discuss and debate “Technologies and Tactics Transforming Long-term Care.” What follows is the lecture by Robert Abel who is the Chief Nursing Officer and Director of Palliative Care for MaineHealth Care at Home, a member of the MaineHealth system.

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Palliative Care in Long Term Care Institutions for the Elderly in Brazil: A Necessary Investment

Hospice and Palliative Medicine International Journal ◽

10.15406/hpmij.2018.02.00041 ◽

2018 ◽

Vol 2 (1) ◽

Author(s):

Michelle Bertoglio Clos

Keyword(s):

Palliative Care ◽

Long Term Care ◽

The Elderly ◽

Term Care

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Quantity over Quality? Perception of Designating Long-Term Care Hospitals as Providers of Hospice and Palliative Care

The Korean Journal of Hospice and Palliative Care ◽

10.14475/kjhpc.2019.22.4.145 ◽

2019 ◽

Vol 22 (4) ◽

pp. 145-155

Author(s):

Yaeji Kim-Knauss ◽

Eunseok Jeong ◽

Jin-ah Sim ◽

Jihye Lee ◽

Jiyeon Choo ◽

...

Keyword(s):

Palliative Care ◽

Long Term Care ◽

Term Care ◽

Quality Perception ◽

Hospice And Palliative Care

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Staff Perspectives of Barriers to Access and Delivery of Palliative Care for Persons With Dementia in Long-Term Care

American Journal of Alzheimer s Disease & Other Dementias® ◽

10.1177/1533317518765124 ◽

2018 ◽

Vol 33 (5) ◽

pp. 284-291 ◽

Cited By ~ 7

Author(s):

Emily Hill ◽

Marie Y. Savundranayagam ◽

Aleksandra Zecevic ◽

Marita Kloseck

Keyword(s):

Palliative Care ◽

Long Term Care ◽

Care Staff ◽

Term Care ◽

Palliative Care Education ◽

Barriers To Access ◽

Communication Difficulties ◽

Phenomenological Methodology

Dementia is a syndrome that is progressive, degenerative, and terminal. The palliative care philosophy aims to maximize quality of life for the dying individual and is both beneficial for and underused with persons dying with dementia. Objectives: The purpose of this study was to investigate the experiences of long-term care staff delivering palliative care to individuals with dementia to determine how care was delivered, to learn which guidelines were used, and whether policies affected the delivery of palliative care. Methods: Twenty-two staff participants were interviewed. Their experiences were interpreted using phenomenological methodology. Results: Findings yielded 3 key themes: confusion, resource shortages, and communication difficulties. Conclusion: Implications for practice include clarification of terminology surrounding palliative care, education of families about dementia and palliative care, better resource management, and the need to address when palliative care best fits within the dementia process.

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Palliative Care within Long-Term Care Systems: Beyond End of Life?

Long-Term Care in Europe ◽

10.1057/9781137032348_13 ◽

2013 ◽

pp. 278-295

Author(s):

Laura Holdsworth ◽

Georg Ruppe

Keyword(s):

Palliative Care ◽

End Of Life ◽

Long Term Care ◽

Term Care ◽

Care Systems

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Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review

Palliative Medicine ◽

10.1177/0269216319858247 ◽

2019 ◽

Vol 33 (8) ◽

pp. 969-984 ◽

Cited By ~ 6

Author(s):

Eleni Chambers ◽

Clare Gardiner ◽

Jill Thompson ◽

Jane Seymour

Keyword(s):

Palliative Care ◽

Evidence Synthesis ◽

Evidence Base ◽

Qualitative Evidence Synthesis ◽

Training Support ◽

Care Research ◽

Qualitative Evidence ◽

Health And Social Care ◽

Facilitators And Barriers ◽

The Impact

Background: Patient/carer involvement in palliative care research has been reported as complex, difficult and less advanced compared to other areas of health and social care research. There is seemingly limited evidence on impact and effectiveness. Aim: To examine the evidence regarding patient/carer involvement in palliative care research and identify the facilitators, barriers, impacts and gaps in the evidence base. Design: Qualitative evidence synthesis using an integrative review approach and thematic analysis. Data sources: Electronic databases were searched up to March 2018. Additional methods included searching websites and ongoing/unpublished studies, author searching and contacting experts. Eligibility criteria were based on the SPICE (Setting, Perspective, Intervention, Comparison, Evaluation) framework. Two quality assessments on methodology and involvement were undertaken. Results: A total of 93 records were included. Eight main themes were identified, mainly concerning facilitators and barriers to effective patient and carer involvement in palliative care research: definitions/roles, values/principles, organisations/culture, training/support, networking/groups, perspectives/diversity, relationships/communication and emotions/impact. Evidence on the impact of involvement was limited, but when carried out effectively, involvement brought positive benefits for all concerned, improving the relevance and quality of research. Evidence gaps were found in non-cancer populations and collaborative/user-led involvement. Conclusion: Evidence identified suggests that involvement in palliative care research is challenging, but not dissimilar to that elsewhere. The facilitators and barriers identified relate mainly to the conduct of researchers at an individual level; in particular, there exists a reluctance among professionals to undertake involvement, and myths still perpetuate that patients/carers do not want to be involved. A developed infrastructure, more involvement-friendly organisational cultures and a strengthening of the evidence base would also be beneficial.

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