Death Confrontation, Spiritual-Existential Experience and Caring Attitudes in Palliative Care Nurses: An Interpretative Phenomenological Analysis

2012 ◽  
Vol 9 (2) ◽  
pp. 151-172 ◽  
Author(s):  
Mélanie Vachon ◽  
Lise Fillion ◽  
Marie Achille
Keyword(s):  
Palliative Care ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis

INTERPRETATIVE PHENOMENOLOGICAL ANALYSIS TO EXPLORE FATHERS’ EXPERIENCE WITH A CHILD IN PALLIATIVE CARE

2019 ◽  
Vol 7 ◽  
pp. 163
Author(s):  
Juris Zuitiņš ◽  
Anita Pipere ◽  
Velga Sudraba
Keyword(s):  
Health Psychology ◽  
Palliative Care ◽  
Interpretative Phenomenological Analysis ◽  
Life Experiences ◽  
Single Case ◽  
Phenomenological Research ◽  
Phenomenological Analysis ◽  
Health And Disease ◽  
Father's Experience ◽  
Methodological Aspects

Phenomenological research is commonly used worldwide in the field of health psychology to describe and explain the unique life experiences of health and disease. In Latvia, the phenomenological research in health psychology has not been performed yet. In this study, the methodological aspects of interpretative phenomenological analysis applied to explore the experience of fathers with a child in palliative care will be exemplified. The paper particularly aims to analyze the steps of interpretative phenomenological analysis applied during the study of one father’s experience. A single case will be presented detailing the disclosure of father’s experience and reflection on the process of interpretive phenomenological analysis on interview data. Conclusions in terms of the methodological aspects of interpretative phenomenological analysis will be provided.

scholarly journals Ethics of Finitude: Nursing and the Palliative Approach in Geriatric and Forensic Psychiatry

2020 ◽  
Vol 7 ◽  
pp. 233339362091326
Author(s):  
Elise Skinner ◽  
Jean Daniel Jacob ◽  
Brandi Vanderspank-Wright ◽  
David Kenneth Wright
Keyword(s):  
Mental Health ◽  
Palliative Care ◽  
Forensic Psychiatry ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Palliative Approach ◽  
Care Approach ◽  
Care Practices ◽  
Accumulated Losses ◽  
Equity Perspective

There is a called-for shift to an upstream provision of palliative care as an overall care approach within a health equity perspective. Our research explored how nurses in psychiatry engage with aging patients and mortality to discern enactment of ethical dimensions of care. Drawing from tenets of interpretative phenomenological analysis, forensic and geriatric psychiatry registered nurses working at a mental health facility in eastern Ontario completed interviews for analysis. Nurses engaged with mortality through a process of recognition and through the affirmation of their values. The affirmed values are aligned with the palliative care approach and within an ethics of finitude lens in that their enactment is partly premised on the recognition of patients’ accumulated losses related to human facticities (social, temporal, mortal). This research underscores preliminary insights on a process identifying care practices aligned with the palliative approach and possibilities for expanding upon an ethics of finitude lens.

scholarly journals ‘I would describe myself as a deformed troll’: Using interpretative phenomenological analysis to explore body image struggles among palliative care patients

2018 ◽  
Vol 33 (2) ◽  
pp. 232-240
Author(s):  
Szilvia Vas ◽  
Rachel Povey ◽  
David Clark-Carter
Keyword(s):  
Palliative Care ◽  
Body Image ◽  
Interpretative Phenomenological Analysis ◽  
Terminal Illness ◽  
Local Community ◽  
Sense Of Self ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Illness Adjustment ◽  
Self Discrepancy

Background: Illness adjustment is a widely studied area in the palliative care context. However, research focussing on how altered body image can affect men and women in palliative care is limited and unclear. Aim: To explore the links between palliative care patients’ affected sense of self, altered body image and terminal illness adjustment. Design: Semi-structured interviews were conducted, and the Interpretative Phenomenological Analysis approach was used to analyse patients’ experiences. Setting/participants: English-speaking, adult palliative care outpatients were interviewed at a local community hospice in the United Kingdom. The mean age was 55 years (ranging from 35–65 years). Results: Analysis of accounts indicated three superordinate themes: (1) ‘Not being me’: self-discrepancy, (2) existing in the landscape of loss, (3) living and thriving in the landscape of loss. The most disturbing issues, such as appearance-focussed struggles and low body-confidence, were stemming from participants’ frustration over their lack of control and their attachment to their former self-image. Conclusions: The patients’ insights demonstrated that body image distress was prevalent among all respondents regardless of gender or diagnosis. A spiral model is described showing how discrepancy-based processing (i.e. ‘not being me’) and rigid attachment to former self can have harmful consequences on palliative patients’ abilities to cope. In order to facilitate adjustment to a self-identity crisis resulting from a terminal diagnosis, it is necessary for professionals to recognise and address body image changes among palliative care outpatients.

scholarly journals The preferences of patients with chronic obstructive pulmonary disease are to discuss palliative care plans with familiar respiratory clinicians, but to delay conversations until their condition deteriorates: A study guided by interpretative phenomenological analysis

2020 ◽  
Vol 34 (10) ◽  
pp. 1361-1373
Author(s):  
Nuno Tavares ◽  
Katherine J Hunt ◽  
Nikki Jarrett ◽  
Tom MA Wilkinson
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Palliative Care ◽  
Pulmonary Disease ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Chronic Obstructive ◽  
Care Planning ◽  
Obstructive Pulmonary Disease ◽  
Established Relationship ◽  
Advance Care

Background: Chronic obstructive pulmonary disease is associated with an uncertain trajectory, which challenges prognostication and means that most patients are not involved in advance care planning and do not receive palliative and end-of-life care. Aim: To understand the preferences of patients with chronic obstructive pulmonary disease for discussions about palliative and advance care planning with clinicians. Design: Semi-structured interviews were conducted with patients with chronic obstructive pulmonary disease. Data analysis was guided by principles of interpretative phenomenological analysis, of which symbolic interactionism and interpretation principles were employed throughout. Setting/Participants: A total of 33 British patients with chronic obstructive pulmonary disease at different stages of their disease trajectory were recruited. Results: Patients preferred to discuss palliative care with clinicians they perceived had greater levels of competency and authority in care and with whom they had an established relationship, usually a specialist. Patients favoured large amounts of information about treatments and care, but reported a lack of illness-related information and problems accessing appointments with clinicians. Consequently, patients deferred discussions to the future, usually once their condition had deteriorated significantly or planned to wait for clinicians to initiate conversations. This was not rooted in patient preferences, but related to clinicians’ lack of time, absence of an established relationship and belief that appointments were for managing current symptoms, exacerbations and disease factors rather than future care and preferences. Conclusion: Different perceptions, competing priorities and service rationing inhibit patients from initiating early discussions with clinicians, so palliative care conversations should be initiated by respiratory-expert clinicians who know the patient well. After a sudden deterioration in the patient’s condition may be a suitable time.

scholarly journals The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis

2021 ◽  
pp. 026921632110647
Author(s):  
Helena Coleman ◽  
Andy Sanderson-Thomas ◽  
Catherine Walshe
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Interpretative Phenomenological Analysis ◽  
Well Being ◽  
Phenomenological Analysis ◽  
Life Care ◽  
Structured Interviews ◽  
Care Services ◽  
The Impact

Background: Much palliative care provision relies on the support of volunteers. Attention is paid to the risks to professionals providing care, such as stress and burnout, but understanding if this is an issue for volunteers is little understood. It is important to understand the impact their role has on volunteers emotional well-being. Aim: To explore the experiences of palliative care volunteers and how the role impacted on their emotional well-being. Design: Interpretative phenomenological analysis, with data collected through semi-structured interviews. Setting/participants: Volunteers in patient-facing roles within palliative and end-of-life care services in the UK. Results: Volunteers ( n = 10) across three palliative and end-of-life care services. Four themes were developed: (1) it can be challenging; (2) it’s where I’m meant to be; (3) managing death; (4) the importance of connection. Challenges included frustrations and questioning themselves. Although difficult at times, volunteers expressed the importance of the role, doing well and that they benefitted too. They also had to manage death and discussed beliefs about life and death, acceptance and managing patients’ fears. Connection with the hospice, patients, staff and other volunteers was important, with a need for everyone to feel valued. Conclusions: Although there are psychosocial benefits for volunteers in their role, it is important to understand the challenges faced and consider ongoing support to help volunteers manage these challenges. This could be addressed through the consideration of coping mechanisms, further training and reflective practice for volunteers.

Are family carers part of the care team providing end-of-life care? A qualitative interview study on the collaboration between family and professional carers

2020 ◽  
pp. 026921632095434
Author(s):  
Maarten Vermorgen ◽  
Isabel Vandenbogaerde ◽  
Chantal Van Audenhove ◽  
Peter Hudson ◽  
Luc Deliens ◽  
...  
Keyword(s):  
Palliative Care ◽  
Chronic Illness ◽  
End Of Life ◽  
End Of Life Care ◽  
Interpretative Phenomenological Analysis ◽  
Healthcare Professionals ◽  
Phenomenological Analysis ◽  
Life Care ◽  
Family Carers ◽  
Missed Opportunities

Background: The attention of healthcare professionals is directed mainly towards the recipients of care and often insufficiently towards family carers. However, an effective collaboration between professionals and family carers is vital to provide quality palliative and end-of-life care. Such collaboration is under-studied in a palliative care context. Aim: This study aimed to investigate how family carers of people who live at home with a life-limiting chronic illness experience and perceive collaboration with different healthcare professionals in the last phase of life. Design: Face-to-face semi-structured interviews were conducted with the primary family carers of people with a life-limiting chronic illness. Interpretative phenomenological analysis was used to analyse the data. Setting/participants: A heterogeneous sample of 30 family carers of people with cancer, heart failure or dementia was recruited through a variety of care providers and services, in order to reflect the heterogeneity of caregiving in serious illness. Results: Five main themes emerged from interpretative phenomenological analysis that describe the quality of the collaboration between family carers and professionals: respecting family carers both as someone with care needs and as a member of the care team; the continuous availability and accessibility of healthcare professionals; the provision of information and communication including family carer issues; the coordination of care between all parties and contextual factors. The dominant experience by family carers was one of missed opportunities across these themes. Conclusions: This qualitative study about the experiences and perceptions of family carers of people with a chronic life-limiting illness living at home regarding the collaboration with different healthcare providers in the last phase life, showed that family carers experience a lot of possibilities, but perceive missed opportunities as well, for healthcare professionals to effectively collaborate with them for palliative care.

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