Addressing Consumer Grievances in Medicine: Policies and Practices of Newborn Screening Programs in the United States

2002 ◽  
Vol 6 (1) ◽  
pp. 31-38 ◽  
Author(s):  
Marvin R. Natowicz ◽  
Elaine H. Hiller
Keyword(s):  
United States ◽  
Newborn Screening ◽  
The United States ◽  
Screening Programs ◽  
Policies And Practices

scholarly journals Newborn Screening for Severe Combined Immunodeficiency in 11 Screening Programs in the United States

JAMA ◽  
2014 ◽  
Vol 312 (7) ◽  
pp. 729 ◽  
Author(s):  
Antonia Kwan ◽  
Roshini S. Abraham ◽  
Robert Currier ◽  
Amy Brower ◽  
Karen Andruszewski ◽  
...  
Keyword(s):  
United States ◽  
Newborn Screening ◽  
Severe Combined Immunodeficiency ◽  
The United States ◽  
Combined Immunodeficiency ◽  
Screening Programs

Early newborn specimen: Survey of practices among newborn screening programs in the United States

Screening ◽  
1995 ◽  
Vol 4 (1) ◽  
pp. 1-8 ◽  
Author(s):  
Cecelia Walraven ◽  
John E. Sorrentino ◽  
Harvey L. Levy ◽  
George F. Grady
Keyword(s):  
United States ◽  
Newborn Screening ◽  
The United States ◽  
Screening Programs

Newborn Screening in the United States: Ethical Issues

2019 ◽  
pp. 652-663
Author(s):  
Michelle Huckaby Lewis ◽  
Jeffrey R. Botkin
Keyword(s):  
United States ◽  
Newborn Screening ◽  
Ethical Issues ◽  
New Technology ◽  
The United States ◽  
Genomic Sequencing ◽  
Newborn Period ◽  
Blood Samples ◽  
Screening Programs ◽  
Secondary Use

The purpose of newborn screening is to identify and treat infants with certain conditions prior to the onset of symptoms in order to reduce morbidity and mortality. The development of new technology, including genomic sequencing, has expanded the number of conditions that can be detected in the newborn period. Whether infants should be screened for conditions for which there is no available treatment is a subject of debate. The retention and secondary use of de-identified residual newborn screening dried blood samples without explicit parental permission have been controversial. In light of these challenges, some question whether mandatory newborn screening continues to be justified. This chapter will explore key ethical issues faced by state newborn screening programs in the United States.

Status of Newborn Screening Programs in the United States

PEDIATRICS ◽  
2006 ◽  
Vol 117 (Supplement 3) ◽  
pp. S212-S252 ◽  
Author(s):  
Bradford L. Therrell ◽  
Alissa Johnson ◽  
Donna Williams
Keyword(s):  
United States ◽  
Newborn Screening ◽  
The United States ◽  
Screening Programs
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