Development of a State-Wide Pediatric Palliative Care Service in Australia: Referral and Outcomes over Two Years

2014 ◽  
Vol 17 (3) ◽  
pp. 288-295 ◽  
Author(s):  
Anthony Herbert ◽  
Natalie Bradford ◽  
Leigh Donovan ◽  
Lee-Anne Pedersen ◽  
Helen Irving
Keyword(s):  
Palliative Care ◽  
Care Service ◽  
Palliative Care Service ◽  
Pediatric Palliative Care

scholarly journals The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical Staff

Healthcare ◽  
2022 ◽  
Vol 10 (1) ◽  
pp. 127
Author(s):  
Su Hyun Bae ◽  
Yeo Hyang Kim
Keyword(s):  
Palliative Care ◽  
Medical Staff ◽  
Care Service ◽  
Care Center ◽  
Palliative Care Service ◽  
Disease Diagnosis ◽  
Pediatric Palliative Care ◽  
Number Of Patients ◽  
Palliative Care Services ◽  
Limiting Condition

Few Korean hospitals had experience in pediatric palliative care. Since the beginning of the national palliative care project, interest in pediatric palliative care has gradually increased, but the establishment of professional palliative care is still inadequate due to a lack of indicators. This study aimed to find considerations in the process of initiating palliative care services. The general and clinical characteristics of 181 patients aged less than 24 years who were registered at the pediatric palliative care center from January 2019 to August 2021 were evaluated. Life-limiting condition group 1 had the largest number of patients. The primary need for palliative care was psychological and emotional support, followed by information sharing and help in communication with the medical staff in decision-making processes. Seventy-two patients were technologically dependent, with one to four technical supports for each patient. The registration of patients with cancer increased with time, and the time from disease diagnosis to consultation for pediatric palliative care service was significantly reduced. In conclusion, before starting pediatric palliative care, it is necessary to understand the needs of patients and their families and to cooperate with medical staff.

Developing a Pediatric Palliative Care Service in a Large Urban Hospital: Challenges, Lessons, and Successes

2013 ◽  
Vol 16 (4) ◽  
pp. 342-348 ◽  
Author(s):  
Emily S. Edlynn ◽  
Sabrina Derrington ◽  
Helene Morgan ◽  
Jennifer Murray ◽  
Beatriz Ornelas ◽  
...  
Keyword(s):  
Palliative Care ◽  
Care Service ◽  
Palliative Care Service ◽  
Pediatric Palliative Care ◽  
Urban Hospital

scholarly journals A Week in the Life: Pediatric Palliative Care through the Eyes of a Medical Student

Children ◽  
2021 ◽  
Vol 8 (11) ◽  
pp. 971
Author(s):  
Eileen Williams ◽  
Jill Ann Jarrell ◽  
Jared Rubenstein
Keyword(s):  
Palliative Care ◽  
Medical Student ◽  
Care Service ◽  
Personal Narratives ◽  
Palliative Care Service ◽  
Reflective Writing ◽  
Pediatric Palliative Care ◽  
Difficult Situations ◽  
Common Misconceptions

To complete the curriculum, learners rotating through a pediatric palliative care service are asked to submit a piece of reflective writing. Here, we share an edited version of the narrative one student submitted, accompanied by a brief consideration of the numerous benefits of reflective writing for medical trainees (including improved communication and professionalism skills, as well as increased levels of empathy and comfort when facing complex or difficult situations). Additionally, we describe how brief personal narratives may serve to reduce common misconceptions and confusion by educating patients, families, and clinicians about the reality and the role of pediatric palliative care.

scholarly journals Physician Shadowing for Development and Implementation of a Paediatric Palliative Care Service in Enugu, Nigeria

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 85s-85s
Author(s):  
T. Onyeka ◽  
I. Ugwu
Keyword(s):  
Palliative Care ◽  
Care Service ◽  
Palliative Care Service ◽  
Care Program ◽  
Pediatric Palliative Care ◽  
Red Cross ◽  
Care Practice ◽  
Care Organization ◽  
Paediatric Palliative Care ◽  
Living With Cancer

Background: The challenges facing Nigerian children with cancer and other chronic life-limiting illnesses are enormous, with many of them not surviving due to lack of supportive services. About 80% of children living with cancer in developing countries have no access to proper cancer care and usually present to institutions like ours with very advanced disease. Cost of treatment in hospital is astronomical, with most families having to pay out-of-pocket but being unable to do so. Also, many pediatricians are discouraged when they feel they are not capable of making progress with the child's treatment and are left with feelings of hopelessness, giving patients and families the impression they have given up. The combination of these factors usually results in patients absconding from inpatient admission, defaulting from treatment and eventually dying at home. Aim: The current practice of palliative care in our institution is near-completely adult-based with little pediatric involvement despite the huge pediatric palliative care burden. We want to change the current narrative and build the pediatric palliative care practice in our institution, through the practice of 'shadowing'. Methods: We intend to accomplish this through the opportunity of the 2018 UICC African Cancer Fellowship, by visiting the Paedspal, a nongovernmental South African pediatric palliative care organization affiliated with the Red Cross War Memorial Children's Hospital and the Rondebosch Medical Centre, that offers inpatient, outpatient and hospices services. Results: Outcomes from this project will define the probability of a clinical observer program in effectively serving as a catalyst for the development and implementation of a pediatric palliative care program and as well as a facilitator for the mentoring experience. Conclusion: We posit that 'the shadowing experience' may be an effective strategy to building capacity in hospitals with no specialist pediatric palliative care physicians.

scholarly journals Pediatric Palliative Care in Kelantan: A Community Engagement Model

2016 ◽  
Vol 15 (1) ◽  
pp. 51-56 ◽  
Author(s):  
Fahisham Taib ◽  
Hans Van Rostenberghe ◽  
Nurul Adilah Muhammad
Keyword(s):  
Palliative Care ◽  
Community Engagement ◽  
Psychosocial Support ◽  
Care Service ◽  
Medical Science ◽  
Palliative Care Service ◽  
Pediatric Palliative Care ◽  
Transfer Program ◽  
Care Needs ◽  
Mutual Cooperation

Holistic package of palliative care service for children is not available in most places in the South East Asia. This has resulted in unwanted suffering and loss of hope in the unfortunate families. Pediatric palliative care (PPC) is a new subspecialty in Malaysia. In our region, it was started in 2012 as a University’s ‘community engagement project’ following completion of self-initiated palliative care distance learning in Australia by a pediatrician. The grant was labeled as a flagship project and secured under the Division of Community & Industry Network of USM (BJIM) to provide service in the hospital and outreach home based PPC services, which include nursing care, needs assessment and psychosocial support for the patients and caregivers. ‘Knowledge transfer program’ was initiated, in collaboration with Yayasan Orang Kurang Upaya (YOKUK) or Kelantan Foundation for the Disabled, to equip the outreach team with skills dealing with children with life limiting illnesses (LLI) in Kelantan. The move has propagated regular training setup with transformational program from hospital to community settings. This setup has led to mutual cooperation across the disciplines and provided linkages for stronger networking and training either locally or internationally. Better understanding on the importance of palliative care in the community can be achieved by having active community participation and volunteerism.Bangladesh Journal of Medical Science Vol.15(1) 2016 p.51-56

scholarly journals Delivering Pediatric Palliative Care: From Denial, Palliphobia, Pallilalia to Palliactive

Children ◽  
2018 ◽  
Vol 5 (9) ◽  
pp. 120 ◽  
Author(s):  
Stefan Friedrichsdorf ◽  
Eduardo Bruera
Keyword(s):  
Palliative Care ◽  
Care Service ◽  
Symptom Control ◽  
Palliative Care Service ◽  
The United States ◽  
Pediatric Palliative Care ◽  
Emotional Impact ◽  
Optimal Care ◽  
Comfort Care ◽  
Serious Illness

Among the over 21 million children with life-limiting conditions worldwide that would benefit annually from a pediatric palliative care (PPC) approach, more than eight million would need specialized PPC services. In the United States alone, more than 42,000 children die every year, half of them infants younger than one year. Advanced interdisciplinary pediatric palliative care for children with serious illnesses is now an expected standard of pediatric medicine. Unfortunately, in many institutions there remain significant barriers to achieving optimal care related to lack of formal education, reimbursement issues, the emotional impact of caring for a dying child, and most importantly, the lack of interdisciplinary PPC teams with sufficient staffing and funding. Data reveals the majority of distressing symptoms in children with serious illness (such as pain, dyspnea and nausea/vomiting) were not addressed during their end-of-life period, and when treated, therapy was commonly ineffective. Whenever possible, treatment should focus on continued efforts to control the underlying illness. At the same time, children and their families should have access to interdisciplinary care aimed at promoting optimal physical, psychological and spiritual wellbeing. Persistent myths and misconceptions have led to inadequate symptom control in children with life-limiting diseases. Pediatric Palliative Care advocates the provision of comfort care, pain, and symptom management concurrently with disease-directed treatments. Families no longer have to opt for one over the other. They can pursue both, and include integrative care to maximize the child’s quality of life. Since most of the sickest children with serious illness are being taken care of in a hospital, every children’s hospital is now expected to offer an interdisciplinary palliative care service as the standard of care. This article addresses common myths and misconceptions which may pose clinical obstacles to effective PPC delivery and discusses the four typical stages of pediatric palliative care program implementation.

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