Involving Family and Friends in Palliative Care for Persons With Kidney Disease

2020 ◽  
pp. 108-115
Author(s):  
Elizabeth Anderson ◽  
David M. White
Keyword(s):  
Palliative Care ◽  
Kidney Disease ◽  
End Of Life ◽  
Family Caregivers ◽  
Great Promise ◽  
Cultural Norms ◽  
Centered Care ◽  
Family Beliefs ◽  
Family Centered

Family-centered palliative care for patients with kidney disease shows great promise in alleviating the suffering of patients with collateral benefits to family members. Engaging family caregivers is particularly valuable for those with kidney disease, given often multiple comorbidities, impact of dialysis on quality of life, and often conflicting end-of-life decisions. Family caregivers are at high risk for burnout, increasing the likelihood that patients themselves will not receive end-of-life care or support. Important components of family-centered palliative care include assessment, emotional support, education, assertive communication skills, referrals, and grief and bereavement support. It is crucial that the care team recognize the role of cultural norms, family beliefs, and communication patterns, tailoring family-centered care to meet the needs of each individual patient.

Family Centered Care For Patients With Congenital Heart Defects: Enhancing The Role Of Palliative Care

2021 ◽  
Author(s):  
Jesse Boyett Anderson ◽  
Alida Yee ◽  
Allie Kiley ◽  
Kristin Shadman ◽  
Shardha Srinivasan ◽  
...  
Keyword(s):  
Palliative Care ◽  
Congenital Heart Defects ◽  
Congenital Heart ◽  
Heart Defects ◽  
Family Centered Care ◽  
Centered Care ◽  
Family Centered

scholarly journals Healing at the End of Life: The Voice of the Patient

2014 ◽  
Vol 1 (1) ◽  
Author(s):  
Cory Ingram
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Lived Experience ◽  
End Of Life ◽  
Life Story ◽  
Patient Centered ◽  
Whole Person ◽  
Centered Care ◽  
The Impact

In palliative care we have the privilege to care for seriously ill people and their families. Some people value capturing their life story or illness journey on film. I have been fortunate to have been invited into the lives of many people close the end of life for a heartfelt conversation.On an interactive iPad incorporated in the poster, the recorded narrative of patients and one bereft spouse the poster audience will experience the lived experience of people close to the end of life as they reflect on their lives. The narratives will demonstrate how each lived with a new found improved quality of life in the face of increasing symptoms, declining functioning and the approaching end of life; otherwise known as healing. Topics of healing and quality of life, patient-centered care, dignity, human development, spirituality and love will be the focus of their stories. The stories lay bare the very practical, emotional, existential, and personal experience central to our provision of whole person care through palliative care. The poster audience will experience a renewed sense of the impact of a dedicated approach to whole person care as experienced through those on the receiving end.

Coordination of Care and Care Transitions With Primary Care Clinicians, Specialty Palliative Care, and Hospice

2020 ◽  
pp. 211-219
Author(s):  
Areeba Jawed ◽  
Joseph D. Rotella
Keyword(s):  
Primary Care ◽  
Chronic Kidney Disease ◽  
Palliative Care ◽  
Kidney Disease ◽  
Supportive Care ◽  
End Of Life ◽  
Care Coordination ◽  
Care Transitions ◽  
Healthcare Teams ◽  
Primary Care Clinicians

Patients with chronic kidney disease typically have needs that cut across a range of services, including nephrology, other specialties, primary care, and palliative care. This chapter proposes a model of integrated supportive care from diagnosis to end of life that coordinates the efforts and maximizes the benefits of different healthcare teams. Supportive care teams can learn primary kidney supportive care skills to manage symptoms, provide emotional support, and facilitate conversations that focus on what matters most to patients and families. Applying best practices of care coordination, they can facilitate seamless transitions as the patient’s condition evolves.

The Role of Primary Care in Population and Community Health: Pragmatic Approaches to Integration

2019 ◽  
pp. 101-108
Author(s):  
Julie Wood ◽  
Kevin Grumbach
Keyword(s):  
Primary Care ◽  
Community Health ◽  
Population Health ◽  
Health Management ◽  
Parks And Recreation ◽  
Centered Care ◽  
Care Models ◽  
Primary Care Clinicians ◽  
Family Centered

This chapter looks at the role of primary health care in community health. Primary care, it argues, has built on its historical roots of holistic family-centered care to embrace the broader concept of population health. The chapter looks at the evolution of care models from patient/family-centered to panel management (the sum of patients being cared for by a primary care practice), to community health management. This broader concept of health necessitates collaboration with partners outside the clinical practice, including public health professionals, policymakers, schools, housing, parks and recreation, law enforcement, transportation, and food systems. The chapter describes the population and community framework and its historical role in the development of primary care, and then turns to the proposal of pragmatic approaches that busy primary care clinicians and care teams can use to integrate population health approaches into their practices.

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