OVERVIEW OF THE SUPPORT SYSTEM OF IMPLEMENTATION OF THE FCC: FAMILY, NURSE, AND THE HOSPITAL ENVIRONMENT

The concept of family-centered care (FCC) in nursing practice, the attentive treatment of families, the dissemination of information to families in order to understand the condition and treatment, and including participation of parents in decision-making and treatment through cooperation of parents and nurses. Environmental support for hospital is needed in the deployment of FCC services. The aim of this study was to describe Family-Centered Care: Family, Nurse and Hospital Environment in RS. Dustira Kindergarten II. This study is a descriptive quantitative study conducted in July 2019, including 22 nurses and 37 children's parents in the inpatient unit with a total sampling technique. Analysis of information using questionnaires and analysis of data using frequency distribution. This study shows that family-centered care services based on support to parents showed that all parents (86.5 %) got good support. Services Family-Centered Review purpose on the role of nurses showed that all nurses (95.5 %) responded well and how more than half of the respondents (54.1 %) perceived family-Centered Care as a supportive environment. Supposed to support the harmony among households, nurses and hospitals is expected to create a family-centered care service (FCC). The hospital needs to improve facilities for enhanced comfort and healing of hospitalized children.

Parent and Staff Perception about the Family-Centered Care in Private Service

Having a newborn hospitalized in the Neonatal Intensive Care Unit can be an extremely stressful and desperate situation for families who end up needing assistance and support to stay by their child's side. To evaluate the perception of family-centered care from the perspective of the healthcare team and parents of newborns hospitalized in the neonatal intensive care unit of a private health service. Descriptive survey, carried out in private a neonatal intensive care unit of a large hospital. Two instruments were applied to measure the professional of healthcare team and parent’s perceptions of family-centered care. The study involved 102 parents and 102 professionals of the healthcare team. The barriers identified for the implementation of patient and family-centered care were related to the items family inclusion and participation in the care of newborns; presence of parents during procedures; recognition by professionals of the support sources for the family, identification of resources in the unit by parents and perception of the multiprofessional care team turnover regarding the care to the newborn by the newborn’s parents. It is necessary to invest in continuing education programs to make the healthcare team aware for the Patient and Family-centered Care and written protocols to implement this model of care on practice. Keywords: Infant, Newborn. Family. Intensive Care Units, Neonatal. Nursing. Resumo Ter um recém-nascido internado na Unidade de Terapia Intensiva Neonatal pode ser uma situação extremamente estressante e desesperadora para as famílias que acabem necessitando de apoio e suporte para permanecer ao lado do filho. Avaliar a percepção do Cuidado Centrado na Família na perspectiva da equipe de saúde e dos pais de recém-nascidos hospitalizados na unidade de terapia intensiva neonatal de um serviço de saúde privado. Pesquisa do tipo survey descritivo, realizada em uma unidade de terapia intensiva neonatal de um hospital de grande porte, de direito privado. Utilizaram-se dois instrumentos de medida da percepção de profissionais da equipe de saúde e de pais sobre o cuidado centrado na família. Participaram do estudo 102 pais e 102 profissionais da equipe de saúde. As barreiras identificadas para a implementação do cuidado centrado no paciente e família foram relacionadas aos itens inclusão e participação da família nos cuidados; permanência dos pais durante os procedimentos; reconhecimento pelos profissionais das fontes de suporte da família, identificação das fontes de ajuda na unidade pelos pais e percepção da rotatividade da equipe multiprofissional no cuidado ao recém-nascido pelos pais. Há necessidade de programas de educação permanente para sensibilizar os profissionais para o Cuidado Centrado no Paciente e Família e a elaboração de protocolos para sua implementação na prática. Palavras-chave: Recém-Nascido. Família. Unidades de Terapia Intensiva Neonatal. Enfermagem.

Parents’ pandemic NICU experience in the United States: a qualitative study

Background Prior to the COVID-19 pandemic, parents of infants in the Neonatal Intensive Care Unit (NICU) frequently reported high levels of stress, uncertainty, and decreased parenting confidence. Early research has demonstrated that parents have had less access to their infants in the hospital due to restrictions on parental presence secondary to the pandemic. It is unknown how parents have perceived their experiences in the NICU since the beginning of the COVID-19 pandemic. The purpose of this study was to describe the lived experience of parents who had an infant in the NICU in the context of the COVID-19 pandemic to inform healthcare providers and policy makers for future development of policies and care planning. Methods The study design was a qualitative description of the impact of the COVID-19 pandemic on parents’ experiences of having an infant in the NICU. Free-text responses to open-ended questions were collected as part of a multi-method study of parents’ experiences of the NICU during the first six months of the pandemic. Participants from the United States were recruited using social media platforms between the months of May and July of 2020. Data were analyzed using a reflexive thematic approach. Findings Free-text responses came from 169 parents from 38 different states in the United States. Three broad themes emerged from the analysis: (1) parents’ NICU experiences during the COVID-19 pandemic were emotionally isolating and overwhelming, (2) policy changes restricting parental presence created disruptions to the family unit and limited family-centered care, and (3) interactions with NICU providers intensified or alleviated emotional distress felt by parents. A unifying theme of experiences of emotional distress attributed to COVID-19 circumstances ran through all three themes. Conclusions Parents of infants in the NICU during the first six months of the COVID-19 pandemic experienced emotional struggles, feelings of isolation, lack of family-centered care, and deep disappointment with system-level decisions. Moving forward, parents need to be considered essential partners in the development of policies concerning care of and access to their infants.

Evaluation of patient and Family-Centered Care; a Survey of Neonatal and Paediatric Intensive Care Units

Aim: To evaluate the application of the principles of Patient and Family-centered Care Methodology: A cross-sectional study was conducted in the Pediatric and Neonatal Intensive care unit of a tertiary care hospital in Punjab, Pakistan. IRB approval was granted, and the study spanned a period from January 2019 to June 2019. A questionnaire was created to survey the pediatric patient's parents. Data analysis was done using SPSS 25. Results: A total of 158 responses were recorded. The majority of the parents felt that patient and family-centered care was not being applied to the admitted patients' management plans in the pediatric and neonatal ICUs. Conclusion: The treatment of patients in the pediatric and neonatal ICUs was not following the principles of patient and family-centered care. Therefore, further studies are required to improve the ease of access, alongside limiting the barriers to the patient and family-centered care in Pakistan. This way, patients can benefit from improved outcomes associated with PFCC. Keywords: Neonatal intensive care unit (NICU), intensive care unit (ICU), pediatric intensive care unit (PICU), patient and family-centered care (PFCC).