Mindfulness and mindlessness and ALS

Well Being ◽

Psychological Resilience ◽

Psychological Constructs ◽

The Impact ◽

Mindfulness and mindlessness are two relevant psychological constructs for the field of amyotrophic lateral sclerosis (ALS). When mindful, people are more open, flexible, and aware, and this attitude results in a higher psychological well-being. A mindful attitude is a source of psychological resilience for people with ALS and their caregivers. Conversely, a mindless view about the illness, reducing the whole person’s identify to the diagnosis, represents a threat to their quality of life. Furthermore, preliminary findings seem to suggest that mindfulness is associated with a slower course of the disease. In this chapter we discuss the impact that mindfulness can exert on both the quality and the quantity of life.

Amyotrophic Lateral Sclerosis

10.1093/med/9780198757726.001.0001 ◽

2018 ◽

Cited By ~ 2

Keyword(s):

Quality Of Life ◽

Health Care Professionals ◽

New Technologies ◽

Neurodegenerative Disorder ◽

Well Being ◽

The Impact ◽

Amyotrophic lateral sclerosis: Understanding and optimizing quality of life and psychological well-being presents a comprehensive and up-to-date review of the enhancement of the lives of people with amyotrophic lateral sclerosis (ALS) and their caregivers. ALS is a progressive, fatal neurodegenerative disorder. No current medical therapy can reverse or stop its progression, and the promotion of quality of life and psychological well-being is a central component of ALS care. Health care professionals who work in this field should incorporate attention to psychological, emotional, and relational aspects of the disease into their approach to care. This book provides some of the knowledge and direction necessary for optimizing the quality of care for individuals with ALS and their caregivers. Topics discussed include an ALS-centred view of quality of life, depressive features, anxiety, resilience, cognitive impairment, complementary and alternative medicines, and psychological research. Specific elements of ALS, such as end-of-life concerns and bulbar dysfunction, are described through the lens of their psychological impact. There is extensive discussion of the development of new psychological treatments, as well as the impact and incorporation of new technologies, with the goal of fostering optimal quality of life and psychological well-being as key parts of a holistic approach to care for the patients and for those who are close to such individuals.

Neuropsychological deficits have only limited impact on psychological well-being in amyotrophic lateral sclerosis

Journal of Neurology ◽

10.1007/s00415-021-10690-8 ◽

2021 ◽

Author(s):

Till Schrempf ◽

Julia Finsel ◽

Ingo Uttner ◽

Albert C. Ludolph ◽

Dorothée Lulé

Keyword(s):

Quality Of Life ◽

Well Being ◽

Neuropsychological Deficits ◽

Neurocognitive Deficits ◽

Global Quality Of Life ◽

The Impact ◽

Abstract Objective To investigate the association between neuropsychological deficits and psychological well-being in amyotrophic lateral sclerosis (ALS). Methods Subjective (Schedule for the Evaluation of the Individual Quality of Life-Direct Weighting, SEIQoL-DW) and global quality of life (QoL; Anamnestic Comparative Self-Assessment, ACSA) as well as depression (ALS-Depression-Inventory, ADI-12) as indicators for psychological well-being were measured in 214 patients with ALS and correlated with neurocognitive performance assessed by the Edinburgh Cognitive and Behavioural ALS Screen (ECAS). Primary caregivers evaluated behaviour. Patients were classified to be cognitively (ALSci) or behaviourally impaired (ALSbi) according to Strong criteria. Results ALSbi patients had poorer psychological well-being than patients without behavioural alterations, while the psychological well-being of patients with and without neurocognitive deficits was comparable. Conclusion The study provides evidence that minor neuropsychological deficits do not interfere with psychological well-being of ALS in contrast to alterations on behavioural level. Thus, abnormalities in individual cognitive domains have limited relevance for the patients’ everyday life in comparison to the impact of behavioural alterations.

The Impact of Infertility on the Psychological Well-Being, Marital Relationships, Sexual Relationships, and Quality of Life of Couples: A Systematic Review

Journal of Sex & Marital Therapy ◽

10.1080/0092623x.2014.958789 ◽

2014 ◽

Vol 41 (6) ◽

pp. 610-625 ◽

Cited By ~ 84

Author(s):

Bronya Hi-Kwan Luk ◽

Alice Yuen Loke

Keyword(s):

Quality Of Life ◽

Systematic Review ◽

Well Being ◽

Marital Relationships ◽

Sexual Relationships ◽

Psychological well-being of older Chinese immigrants living in Australia: a comparison with older Caucasians

International Psychogeriatrics ◽

10.1017/s1041610216001010 ◽

2016 ◽

Vol 28 (10) ◽

pp. 1671-1679 ◽

Cited By ~ 7

Author(s):

Xiaoping Lin ◽

Christina Bryant ◽

Jennifer Boldero ◽

Briony Dow

Keyword(s):

Quality Of Life ◽

Depression Scale ◽

Chinese Immigrants ◽

Well Being ◽

Community Dwelling ◽

Life Questionnaire ◽

Older Chinese ◽

ABSTRACTBackground:Few current studies explore psychological well-being among older Chinese immigrants in Australia. The study addressed this gap and provided preliminary data on psychological well-being among this group. Four indicators, namely depression, anxiety, loneliness, and quality of life, were used to present a comprehensive picture of psychological well-being.Methods:Participants were two groups of community-dwelling older people, specifically 59 Chinese immigrants and 60 Australian-born people (median age=77 and 73, respectively). Data were collected through standardized interviews. The Geriatric Depression Scale, the Hospital Anxiety and Depression Scale, the de Jong Gierveld Loneliness Scale and the WHO Quality of Life questionnaire were used to measure depression, anxiety, loneliness, and quality of life, respectively.Results:Chinese participants’ median quality of life score was higher than the scale mid-point, indicating relatively high levels of quality of life. However, 10% exhibited symptoms of depression, 6% had symptoms of anxiety, and 49% felt lonely. Compared to Australian participants, Chinese participants reported poorer quality of life and higher levels of loneliness. Importantly, the difference in quality of life remained when the impact of socio-demographic factors was controlled for.Conclusions:This study was the first to use multiple indicators to explore psychological well-being among older Chinese immigrants in Australia. Its results suggest that their psychological well-being might be worse than that of Australian-born people when using loneliness and quality of life as indicators. In particular, loneliness is a common psychological problem among this group, and there is a need for public awareness of this problem.

The impact of rehabilitative interventions on quality of life: a qualitative evidence synthesis of personal experiences of individuals with amyotrophic lateral sclerosis

Quality of Life Research ◽

10.1007/s11136-017-1754-7 ◽

2017 ◽

Vol 27 (4) ◽

pp. 845-856 ◽

Cited By ~ 4

Author(s):

Ammarah Y. Soofi ◽

Vanina Dal Bello-Haas ◽

Michelle E. Kho ◽

Lori Letts

Keyword(s):

Quality Of Life ◽

Evidence Synthesis ◽

Qualitative Evidence Synthesis ◽

Qualitative Evidence ◽

Personal Experiences ◽

The Impact ◽

The impact of anxiety and depression in the quality of life and psychological well-being of Greek hematological cancer patients on chemotherapy

Psychology Health & Medicine ◽

10.1080/13548506.2019.1695864 ◽

2019 ◽

Vol 25 (2) ◽

pp. 201-213

Author(s):

Thalia Bellali ◽

Georgios Manomenidis ◽

Eirini Meramveliotaki ◽

Evgenia Minasidou ◽

Petros Galanis

Keyword(s):

Quality Of Life ◽

Cancer Patients ◽

Well Being ◽

Anxiety And Depression ◽

Hematological Cancer ◽

Comparing the Impact of Cancer and Treatment-Related Effects on Psychological Well-being and Quality of Life Between Hong Kong Survivors of Childhood Solid Tumors and Leukemia

Cancer Nursing ◽

10.1097/ncc.0000000000000736 ◽

2019 ◽

Vol 43 (6) ◽

pp. 446-454 ◽

Cited By ~ 1

Author(s):

Laurie Long Kwan Ho ◽

William Ho Cheung Li ◽

Ka Yan Ho ◽

Ankie Tan Cheung ◽

Godfrey Chi Fung Chan ◽

...

Keyword(s):

Quality Of Life ◽

Hong Kong ◽

Solid Tumors ◽

Well Being ◽

Quality of life among relatives of patients with amyotrophic lateral sclerosis: A prospective and longitudinal study

Palliative & Supportive Care ◽

10.1017/s1478951521000778 ◽

2021 ◽

pp. 1-9

Author(s):

Birgitta Jakobsson Larsson ◽

Anneli Ozanne ◽

Karin Nordin ◽

Ingela Nygren

Keyword(s):

Quality Of Life ◽

Physical Function ◽

Well Being ◽

Individual Quality ◽

Time Points ◽

Disease Trajectory ◽

Individual Quality Of Life ◽

Abstract Objective Relatives are often central in caring for patients with amyotrophic lateral sclerosis (ALS), involving considerable physical, emotional, and social challenges. The aim of this study was to describe individual quality of life (iQoL) among relatives of patients with ALS, from diagnosis through disease progression. Method A total of 31 relatives were included. Data collection was performed at five time points: 1–3 months after their relatives had been diagnosed with ALS and every 6 months for 2 years. Quality of life was determined using the Schedule of Evaluation of Individual Quality of Life — Direct Weighting (SEIQoL-DW), emotional distress with the Hospital Anxiety and Depression Scale (HADS), and the illness severity of the patients was determined with the Amyotrophic Lateral Sclerosis Functional Rating Scale (ALS FRS-R). Results The SEIQoL-DW involves participants nominating the important life areas. The most nominated areas were family, friends, health, and leisure. Although most relatives had overall good and stable iQoL, several had scores indicating poor iQoL on some occasions during the disease trajectory. The relatives’ iQoL correlated with emotional well-being and the patient's physical function at different time points. Significant of result Social relations, emotional well-being, and rapid decline in the patient's physical function influence the relatives’ iQoL. Measuring both emotional well-being and iQoL, with a focus on the relatives’ own descriptions of perceived iQoL and those factors contributing to their iQoL during the disease trajectory may improve the possibility of identifying and supporting those relatives with poor iQoL.