scholarly journals Exploring the impact of a Tele-health intervention on specific quality of life domains and psychological well-being in diabetic patients within the Whole Systems Demonstrator Questionnaire Study

2012 ◽  
Vol 12 (4) ◽  
Author(s):  
Shashivadan Hirani ◽  
Lorna Rixon ◽  
Martin Cartwright ◽  
Michelle Beynon ◽  
Helen Doll ◽  
...  

Amyotrophic lateral sclerosis: Understanding and optimizing quality of life and psychological well-being presents a comprehensive and up-to-date review of the enhancement of the lives of people with amyotrophic lateral sclerosis (ALS) and their caregivers. ALS is a progressive, fatal neurodegenerative disorder. No current medical therapy can reverse or stop its progression, and the promotion of quality of life and psychological well-being is a central component of ALS care. Health care professionals who work in this field should incorporate attention to psychological, emotional, and relational aspects of the disease into their approach to care. This book provides some of the knowledge and direction necessary for optimizing the quality of care for individuals with ALS and their caregivers. Topics discussed include an ALS-centred view of quality of life, depressive features, anxiety, resilience, cognitive impairment, complementary and alternative medicines, and psychological research. Specific elements of ALS, such as end-of-life concerns and bulbar dysfunction, are described through the lens of their psychological impact. There is extensive discussion of the development of new psychological treatments, as well as the impact and incorporation of new technologies, with the goal of fostering optimal quality of life and psychological well-being as key parts of a holistic approach to care for the patients and for those who are close to such individuals.


2016 ◽  
Vol 28 (10) ◽  
pp. 1671-1679 ◽  
Author(s):  
Xiaoping Lin ◽  
Christina Bryant ◽  
Jennifer Boldero ◽  
Briony Dow

ABSTRACTBackground:Few current studies explore psychological well-being among older Chinese immigrants in Australia. The study addressed this gap and provided preliminary data on psychological well-being among this group. Four indicators, namely depression, anxiety, loneliness, and quality of life, were used to present a comprehensive picture of psychological well-being.Methods:Participants were two groups of community-dwelling older people, specifically 59 Chinese immigrants and 60 Australian-born people (median age=77 and 73, respectively). Data were collected through standardized interviews. The Geriatric Depression Scale, the Hospital Anxiety and Depression Scale, the de Jong Gierveld Loneliness Scale and the WHO Quality of Life questionnaire were used to measure depression, anxiety, loneliness, and quality of life, respectively.Results:Chinese participants’ median quality of life score was higher than the scale mid-point, indicating relatively high levels of quality of life. However, 10% exhibited symptoms of depression, 6% had symptoms of anxiety, and 49% felt lonely. Compared to Australian participants, Chinese participants reported poorer quality of life and higher levels of loneliness. Importantly, the difference in quality of life remained when the impact of socio-demographic factors was controlled for.Conclusions:This study was the first to use multiple indicators to explore psychological well-being among older Chinese immigrants in Australia. Its results suggest that their psychological well-being might be worse than that of Australian-born people when using loneliness and quality of life as indicators. In particular, loneliness is a common psychological problem among this group, and there is a need for public awareness of this problem.


2021 ◽  
Vol 31 (1) ◽  
pp. 61-67
Author(s):  
Faezeh Jahan ◽  
◽  
Saeed Nematolahi ◽  

Introduction: Diabetes is a chronic disease with fatal health complications. Identifying the psychological factors that control this disease is very important, one of which is quality of life (QOL). Objective: This study aimed to investigate the effect of a QOL education program on psychological well-being (PWB) and adherence to treatment of patients with type 2 diabetes. Materials and Methods: This is a pilot study with a quasi-experimental design based on pretest and posttest phases. The statistical population consists of all diabetic patients referred to health centers in Semnan City, Iran during the 6months from March to September 2018.Of them,30 type 2 diabetes, aged 30-60 years (male and female) were selected based on the inclusion criteria and randomly assigned to the intervention and control groups. They were first assessed by using Hayes’s general adherence scale (GAS) and Ryff’s psychological well-being scale the short form (PWBS-SF).Then, the intervention group received QOL education in 12 sessions, once per week each for 90 min. Then, posttest assessments were carried out. The collected data were analyzed using MANCOVA. Results: The QOL education program significantly increased adherence to treatment (P= 0.005) and PWV and all its dimensions (autonomy, environmental mastery, personal growth, positive relations with others, be purposeful in life, self-acceptance) in patients (P = 0.005). Conclusion: Since diabetes is one of the chronic diseases that need constant care and there is no definitive and immediate treatment for it, increasing PWB and adherence to treatment in patients to control this disease by QOL education can be very effective.


Author(s):  
Francesco Pagnini ◽  
Deborah Phillips ◽  
Eleonora Volpato ◽  
Paolo Banfi ◽  
Ellen Langer

Mindfulness and mindlessness are two relevant psychological constructs for the field of amyotrophic lateral sclerosis (ALS). When mindful, people are more open, flexible, and aware, and this attitude results in a higher psychological well-being. A mindful attitude is a source of psychological resilience for people with ALS and their caregivers. Conversely, a mindless view about the illness, reducing the whole person’s identify to the diagnosis, represents a threat to their quality of life. Furthermore, preliminary findings seem to suggest that mindfulness is associated with a slower course of the disease. In this chapter we discuss the impact that mindfulness can exert on both the quality and the quantity of life.


2019 ◽  
Vol 25 (2) ◽  
pp. 201-213
Author(s):  
Thalia Bellali ◽  
Georgios Manomenidis ◽  
Eirini Meramveliotaki ◽  
Evgenia Minasidou ◽  
Petros Galanis

2019 ◽  
Vol 43 (6) ◽  
pp. 446-454 ◽  
Author(s):  
Laurie Long Kwan Ho ◽  
William Ho Cheung Li ◽  
Ka Yan Ho ◽  
Ankie Tan Cheung ◽  
Godfrey Chi Fung Chan ◽  
...  

2017 ◽  
Vol 39 (2) ◽  
pp. 164-166 ◽  
Author(s):  
Antonio Simone Laganà ◽  
Valentina Lucia La Rosa ◽  
Agnese Maria Chiara Rapisarda ◽  
Salvatore Giovanni Vitale

Author(s):  
Cecile J. Proctor ◽  
◽  
Danie A. Beaulieu ◽  
Anthony J. Reiman ◽  
Lisa A. Best ◽  
...  

"It is now recognized that the ""cancer experience"" extends beyond diagnosis, treatment, and end-of-life care. Relative to individuals who have not faced a cancer diagnosis, cancer survivors report increased mental health concerns and lowered physical and psychological well-being (Langeveld et al., 2004). Health-related quality of life encompasses overall physical (e.g., energy, fatigue, pain, etc.) and psychological functioning (e.g., emotional well-being, etc.), as well as general health perceptions (Hays & Morales, 2001). Nayak and colleagues (2017) reported that 82.3% of cancer patients had below-average quality of life scores, with the lowest scores found in the general, physical, and psychological well-being domains. Research suggests that various positive lifestyle variables, including social connectedness, leisure activity, and mindfulness practices are associated with increased quality of life in cancer patients (Courtens et al., 1996; Fangel et al., 2013; Garland et al., 2017). In this study, 350 cancer survivors completed an online questionnaire package that included a detailed demographic questionnaire with medical and online support and leisure activity questions. Additional measures were included to assess quality of life (QLQ-C30; Aaronson et al., 1993), social connectedness (Social and Emotional Loneliness Scale for Adults, SELSA-S; DiTommaso et al., 2004), and mindfulness (Adolescent and Adult Mindfulness Scale, AAMS; Droutman et al., 2018). Results show that increased QOL is predicted by increased medical support, lower family loneliness, self-acceptance, and engaging in a variety of leisure activities. Encouraging family support, including the patient in the decision-making process, encouraging a variety of physically possible leisure activities, and normalizing negative emotions surrounding diagnosis and disease symptoms are all ways that overall QoL can be improved."


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