Measuring Outcomes Including Use of Rating Scales and Instruments in People with Intellectual Disability

2020 ◽  
pp. 43-54 ◽  
Author(s):  
Peter Tyrer ◽  
Freya Tyrer ◽  
Marisa Hanney ◽  
Stephen Tyrer
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorders ◽  
Intellectual Disability ◽  
Personality Disorders ◽  
Rating Scales ◽  
Autism Spectrum ◽  
Challenging Behaviour ◽  
Easy Task ◽  
Measuring Outcomes

This chapter describes commonly used rating scales and instruments to measure outcomes in children and adults with intellectual disability. This is not an easy task, as the assessment of outcomes in intellectual disability poses greater problems than measuring outcomes in those without intellectual disability. The psychometric properties of both self- and observer-rated instruments are compared and contrasted in the areas of challenging behaviour, mental ill-health (depression, personality disorders, autism spectrum disorders and overall mental ill-health), dementia and quality of life. The authors include ‘best buy’ recommendations in each area because there is a need for accepted standards for outcome measurements in this population.

Families under pressure: stress and quality of life in parents of children with an intellectual disability

2020 ◽  
pp. 1-8 ◽  
Author(s):  
Emma Staunton ◽  
Claire Kehoe ◽  
Louise Sharkey
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Intellectual Disability ◽  
Parental Stress ◽  
Rating Scales ◽  
Autism Spectrum ◽  
Challenging Behaviour ◽  
Parent Rating ◽  
Challenging Behaviours

Objective To evaluate stress and quality of life in parents of children with an intellectual disability (moderate–severe–profound), who attend a Child and Adolescent Mental Health Intellectual Disability Service (CAMHS ID), and to estimate the perceived levels of challenging behaviour and satisfaction with supports. Methods Data from children attending the service from 2014 to 2017, along with clinician and parent rating scales were collected. Results Most children had medical comorbidities, autism spectrum disorder (ASD), and challenging behaviours. Half had a diagnosis of a mental health disorder. Less than half received respite care. Challenging behaviours and ASD were found to be correlated with increased parental stress while perception of support was inversely correlated with stress. Intellectual disability, ASD, and parental stress were correlated with a decrease in perceived family quality of life. Conclusions This study concurs with previous studies, outlining that parents of children with intellectual disability, in particular, where there is a diagnosis of comorbid ASD and challenging behaviour, experience increased psychological distress and lower quality of life.

scholarly journals Application of climbing in adaptive physical education of children with autism spectrum disorders

2019 ◽  
Vol 5 (1) ◽  
pp. 73
Author(s):  
O.V. Musiyenko ◽  
N.B. Kizlo
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorders ◽  
Physical Education ◽  
High Efficiency ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Rock Climbing ◽  
Adaptive Physical Education ◽  
Spectrum Disorders

<p>The purpose of this work was to determine the effect of rock climbing as a means of adaptive physical education on behavior, emotional state, coordination of movements and quality of life of children with autism spectrum disorders (ASD). Material and methods: Five children aged 8-9 with ASD participated in the experiment. All children who were involved in rock climbing had the same name. low-function autism (disability of subgroup A). They did not speak, they could neither read nor write, had problematic behavior, stereotyped movements, a large number of inappropriate movements, impaired coordination of movements, aggression and autoaggression. The children attended classes on rock climbing 2 times a week for 40 minutes. on a rock climbing bridge in Lviv from September 1, 2017 to June 30, 2018. Classes were individual. Each of them started with warm-up (5 minutes), in the main part of the children were taught Bouldering (10 min.) And worked on high tracks up to 14 m (25 min.). Prior to the beginning of classes (August 2017), parents' questionnaires were conducted concerning the psychophysical status of children who were included in the experiment. The questionnaire was filled up by parents every three months during the experiment, which led to changes in the psychophysical state of their children. Results: Based on the results of an expert assessment of the psychophysical condition of children with RAS attending climbing classes, it can be argued that, against the backdrop of growth in the results of the skills of movements, the logic of passing the distance, the speed of solving motor tasks, a significant increase in positive emotions, there is a significant decrease in problem behavior. Climbing activities contribute to a significant increase in the quality of life of both children from the ASD and their parents. The results of the influence of the duration of classes on the components of the behavior of the children under study by multidimensional dispersion analysis showed a significant impact on the duration of occupations on various components of child behavior (p &lt;0.001). Conclusions The obtained results testify to the high efficiency of the use of rock climbing as a means of socialization of children with autism. Climbing is a powerful sensory stimulus for children with PAC. It is possible to recommend individual climbing exercises for children with ASD as an effective means of adaptive physical education.</p>

scholarly journals The level of quality of life of schoolchildren with disorders of the autic spectrum in comparison with typically developed peers

2021 ◽  
pp. 107-115
Author(s):  
O. Petrusenko ◽  
I. Bodnar
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorders ◽  
Physical Education ◽  
Emotional Functioning ◽  
Well Being ◽  
Autism Spectrum ◽  
Typical Development ◽  
Social And Emotional ◽  
Spectrum Disorders

In connection with the increasing the number of children with autism spectrum disorders (ASD) who enrolls in educational institutions of Ukraine, the issue of individualization of physical education (PE) of children with ASD in the school process becomes important. There is little data on the quality of life of schoolchildren with autism spectrum disorders. It does not allow to draw individual trajectories of physical education of such children, to help them to improve their adaptability. Most of studies have been performed on males. Objective: to analyze the level of cognitive, physical, emotional, social functioning and functioning in school of girls of primary school age with autism spectrum disorders and compare them with typically developed peers. It was found that there were no differences between the rates of girls with ASD and girls with typical development in walking and running, feeling of pain and low energy levels, the frequency of school absences due to doctor visits and the frequency of forgetting things. However, the level of development of cognitive, social and emotional functioning of girls with ASD is significantly lower than the indicators with typical development by all criteria. To overcome the problems with cognitive, social and emotional functioning of girls with ASD, it is recommended to select appropriate means of PE. In oder to improve the cognitive processes (attention, memory) of girls with ASD, we recommend to increase the amount of means that promote the development of coordination in PE classes; to improve physical functioning - exercises for developing muscle strength and endurance. The game activity with normal girls will help to improve the social well-being of girls with ASD. We should use oriental martial arts and oriental gymnastics to improve the psycho-emotional state of girls with ASD.

Health-Related Quality of Life of Parents of Children With High-Functioning Autism Spectrum Disorders

2009 ◽  
Vol 24 (4) ◽  
pp. 227-239 ◽  
Author(s):  
Gloria K. Lee ◽  
Christopher Lopata ◽  
Martin A. Volker ◽  
Marcus L. Thomeer ◽  
Robert E. Nida ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorders ◽  
High Functioning Autism ◽  
Autism Spectrum ◽  
Health Related Quality ◽  
High Functioning ◽  
Related Quality ◽  
Health Related ◽  
Spectrum Disorders
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