The Changing Face of Volunteering in Hospice and Palliative Care

2018 ◽  
Keyword(s):  
Palliative Care ◽  
International Perspective ◽  
Vital Role ◽  
Policy Makers ◽  
Care Services ◽  
Palliative Care Services ◽  
History Of ◽  
The Many ◽  
Hospice And Palliative Care ◽  
Different Cultures

Volunteers have a long history of supporting the development and delivery of hospice and palliative care in most countries throughout the world. As hospice and palliative care services anticipate significant increasing and changing demands, it is recognised that volunteers have a vital role to play in supporting the future delivery of services. However, as society changes so too does volunteering. This multi-author text explores the complex phenomenon of hospice and palliative care volunteering from an international perspective and considers the influence on volunteering of different cultures and constructs. The book also explores the likely impact of changes in hospice and palliative care on volunteers and considers how and why volunteering itself is changing and the subsequent implications for managers, organizations, and policy makers. This book does not attempt to offer solutions to the many challenges ahead, but rather poses questions that may help to reflect on new possibilities and opportunities.

Volunteering in hospice and palliative care in the United Kingdom

2018 ◽  
Author(s):  
Ros Scott
Keyword(s):  
Palliative Care ◽  
United Kingdom ◽  
Care Services ◽  
The United Kingdom ◽  
Strategic Direction ◽  
Palliative Care Services ◽  
History Of ◽  
The Uk ◽  
Hospice And Palliative Care ◽  
Changing Role

This chapter explores the history of volunteers in the founding and development of United Kingdom (UK) hospice services. It considers the changing role and influences of volunteering on services at different stages of development. Evidence suggests that voluntary sector hospice and palliative care services are dependent on volunteers for the range and quality of services delivered. Within such services, volunteer trustees carry significant responsibility for the strategic direction of the organiszation. Others are engaged in diverse roles ranging from the direct support of patient and families to public education and fundraising. The scope of these different roles is explored before considering the range of management models and approaches to training. This chapter also considers the direct and indirect impact on volunteering of changing palliative care, societal, political, and legislative contexts. It concludes by exploring how and why the sector is changing in the UK and considering the growing autonomy of volunteers within the sector.

Barriers to the delivery of palliative care

2015 ◽  
Author(s):  
Barry J.A. Laird
Keyword(s):  
Palliative Care ◽  
Clinical Care ◽  
World Health ◽  
Human Right ◽  
Care Services ◽  
The World ◽  
Effective Delivery ◽  
Palliative Care Services ◽  
The Many ◽  
Health Organization

This chapter discusses several key barriers to the delivery of palliative care, firstly considering the definition of ‘palliative care’. It describes the World Health Organization (WHO) definition and notes that the ideology of palliative care being a concept with which to approach management of patients may still not be fully understood. Furthermore, the differences between generalist and specialist palliative care may also contribute to confusion. Although palliative care as a concept has largely been embraced throughout the world, its implementation into routine clinical care is lacking. Essential to the change from palliative care being a principle available to the few, to being available to all, and a human right, is the need to address the many barriers to the efficient and effective delivery of high-quality palliative care. The chapter argues that the WHO is the key group necessary to develop palliative care worldwide and, together with international palliative care organizations, to help countries advance palliative care services.

A Bereavement Common Assessment Framework in Palliative Care: Informing Practice, Transforming Care

2016 ◽  
Vol 34 (7) ◽  
pp. 677-684 ◽  
Author(s):  
Pippa Blackburn ◽  
Kris Dwyer
Keyword(s):  
Palliative Care ◽  
Health Service ◽  
Evidence Base ◽  
Adverse Outcomes ◽  
Support Programs ◽  
Assessment Framework ◽  
Model Of Care ◽  
Care Services ◽  
Palliative Care Services ◽  
The Many

This article describes the development of a bereavement assessment framework for the Western Australia Country Health Service Palliative Care Services bereavement program. The framework is grounded in a clearly articulated evidence base, integrating research from the bereavement field that has informed the development of a standardized assessment framework referred to as the bereavement common assessment framework (B-CAF). The B-CAF identifies the many facets of experiences of the bereaved, creating a holistic and contextual assessment and providing professionals with a tool to enhance assessment and intervention practices. The palliative–curative model of care has also been reconceptualized to recognize that earlier interventions may mitigate adverse outcomes in bereavement. This framework may have implications for further research and service delivery of bereavement support programs.

scholarly journals An Australian Neuro-Palliative perspective on Huntington's disease: a case report

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Rajvi Shah ◽  
Sarah CM Lee ◽  
Rupert B Strasser ◽  
Christopher Grossman
Keyword(s):  
Palliative Care ◽  
Huntington's Disease ◽  
Huntington’S Disease ◽  
Late Stage ◽  
Care Service ◽  
Palliative Care Service ◽  
Care Services ◽  
Stage Disease ◽  
Palliative Care Services ◽  
History Of

Abstract Background Huntington’s Disease (HD) is an incurable, progressive neuro-degenerative disease. For patients with HD access to palliative care services is limited, with dedicated Neuro-Palliative Care Services rare in Australia. We discuss the experiences of and benefits to a patient with late-stage HD admitted to our Neuro-Palliative Care service. Case presentation We present the case of a patient with a 16-year history of HD from time of initial genetic testing to admission to our Neuro-Palliative Care service with late-stage disease. Conclusions Given the prolonged, fluctuating and heterogenous HD trajectory, measures need to be implemented to improve earlier access to multi-specialty integrative palliative care services. Given the good outcomes of our case, we strongly advocate for the role of specialised Neuro-Palliative Care services to bridge the gap between clinical need and accessibility.

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