scholarly journals Survivorship Care Planning in Gynecologic Oncology—Perspectives From Patients, Caregivers, and Health Care Providers

2019 ◽  
Vol 74 (1) ◽  
pp. 25-26
Author(s):  
Belle H. de Rooij ◽  
Teresa Hagan Thomas ◽  
Kathryn E. Post ◽  
Jane Flanagan ◽  
Nicole P. M. Ezendam ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Gynecologic Oncology ◽  
Care Planning ◽  
Survivorship Care ◽  
Care Providers ◽  
Survivorship Care Planning

scholarly journals Survivorship care planning in gynecologic oncology—perspectives from patients, caregivers, and health care providers

2018 ◽  
Vol 12 (6) ◽  
pp. 762-774 ◽  
Author(s):  
Belle H. de Rooij ◽  
Teresa Hagan Thomas ◽  
Kathryn E. Post ◽  
Jane Flanagan ◽  
Nicole P. M. Ezendam ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Gynecologic Oncology ◽  
Care Planning ◽  
Survivorship Care ◽  
Care Providers ◽  
Survivorship Care Planning

scholarly journals Survivorship care planning in gynecologic oncology: Perspectives from patients, caregivers, and health care providers.

2018 ◽  
Vol 36 (7_suppl) ◽  
pp. 63-63
Author(s):  
Belle Hadewijch de Rooij ◽  
Teresa Hagan ◽  
Kathryn E. Post ◽  
Jane M. Flanagan ◽  
Jeffrey M. Peppercorn ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Gynecological Cancer ◽  
Gynecologic Oncology ◽  
The United States ◽  
Care Planning ◽  
Survivorship Care ◽  
Care Providers ◽  
Care Plans ◽  
Survivorship Care Planning

63 Background: More than a decade after the widespread recommendation of survivorship care plans (SCPs), evidence-based content and processes for providing survivorship care planning in gynecologic oncology remain undefined. This qualitative study sought to characterize the challenges experienced in care after treatment of gynecological cancer and preferences for survivorship care planning among patients, their caregivers and health care providers. Methods: Between July and August 2017, in-depth semi-structured interviews were conducted at a large academic hospital in the United States among patients that recently ended treatment ( < 12 months) of a gynecological cancer (ovarian, endometrial, cervical and vulvar), their caregivers, and health care providers (oncologists, nurses and fellows). Main themes were identified using descriptive content analysis. Results: A total of 30 individuals participated in this study (13 patients, 9 caregivers, 8 health care providers). The vast majority of patients and caregivers (91%) expressed satisfaction for survivorship care, although all reported that remaining needs and ongoing issues remained unaddressed (i.e. distressing symptoms and mood). Almost all (95%) reported a desire for more information on how to address these needs, including issues related to side effects (59%), follow-up planning (32%), and psychological assistance (23%). Preferences for survivorship care planning differed across individuals, with respect to content, timing, and mode of delivery. Some patients did not want a SCP at all (14%). Health care providers expressed that they 1) experience challenges in communicating with patients about survivorship, 2) want to shift the focus to improving quality of life as opposed to focusing on likely disease recurrence, 3) do not currently provide formal SCPs, 4) want disease specific and tailored SCPs to support their survivorship care. Conclusions: Patients, caregivers and health care providers express a need for resources to support survivorship care in gynecologic oncology. The variation of disease types and patient and caregiver needs in this field requires multi-faceted, tailored survivorship care planning.

Health-Care Provider Personal Religious Preferences and Their Perspectives on Advance Care Planning With Patients

2018 ◽  
Vol 35 (12) ◽  
pp. 1565-1571
Author(s):  
Marjorie Bowman ◽  
Sarah St. Cyr ◽  
Adrienne Stolf i
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Advance Care Planning ◽  
Religious Affiliation ◽  
Living Will ◽  
Care Planning ◽  
Care Providers ◽  
Power Of Attorney ◽  
Religious Preference ◽  
Advance Care

Objective: To understand how health-care providers’ (HCPs) religious preferences influence their willingness to undertake advance care planning (ACP) with patients and their acceptance of other HCP’s involvement. Methods: Online anonymous survey distributed to HCPs in hospital, ambulatory offices, and hospice settings in Dayton, Ohio. We evaluated the associations of HCP religion with their personal ACP, willingness to facilitate ACP, and acceptance of other HCPs’ ACP participation. Results: 704 respondents: nurses (66.2%), physicians (18.8%), other HCPs (15.0%), white (88.9%), and primarily Catholic (23.3%) or Protestant (32.0%). “No religion” was marked by 13.9%. Respondents were favorable to ACP with patients. Religious respondents were more likely to have a living will ( P = .035) and health-care power of attorney ( P = .007) and more accepting of clergy as ACP decision coaches ( P = .030). HCP’s religion was not associated with willingness to facilitate ACP discussions. There were minor differences between Catholics and Protestants. Conclusions: Personal religious preference is associated with HCP’s own ACP but had little relationship with their willingness to facilitate ACP conversations with patients or acceptance of other professional types of HCPs involvement in ACP conversations. Regardless of religious affiliation, HCPs have interest in undertaking ACP and endorse other HCPs ACP involvement. As results of this study suggest that personal religious affiliation is not a barrier for HCPs engaging in ACP with patients, attempts to overcome barriers to increasing ACP should be directed to other factors.

scholarly journals “Breaking the Silence” to Improve Cancer Survivorship Care for First Nations Peoples

2018 ◽  
Vol 17 (1) ◽  
pp. 160940691877413
Author(s):  
Wendy Gifford ◽  
Roanne Thomas ◽  
Gwen Barton ◽  
Viviane Grandpierre ◽  
Ian D. Graham
Keyword(s):  
Health Care ◽  
First Nations ◽  
Cancer Survivorship ◽  
Health Care Providers ◽  
Large Scale ◽  
Care Delivery ◽  
Survivorship Care ◽  
Care Providers ◽  
Community Based ◽  
Knowledge To Action

There is a significant knowledge-to-action gap in cancer survivorship care for First Nations (FN) communities. To date, many approaches to survivorship have not been culturally responsive or community-based. This study is using an Indigenous knowledge translation (KT) approach to mobilize community-based knowledge about cancer survivorship into health-care programs. Our team includes health-care providers and cancer survivors from an FN community in Canada and an urban hospital that delivers Cancer Care Ontario’s Aboriginal Cancer Program. Together, we will study the knowledge-to-action process to inform future KT research with Indigenous peoples for improving health-care delivery and outcomes. The study will be conducted in settings where research relations and partnerships have been established through our parent study, The National Picture Project. The inclusion of community liaisons and the continued engagement of participants from our parent study will foster inclusiveness and far-reaching messaging. Knowledge about unique cancer survivorship needs co-created with FN people in the parent study will be mobilized to improve cancer follow-up care and to enhance quality of life. Findings will be used to plan a large-scale implementation study across Canada.

scholarly journals Co-designing a framework for integrated home care planning with older adults, family caregivers and health care providers

2018 ◽  
Vol 18 (s2) ◽  
pp. 304
Author(s):  
Justine Lauren Giosa ◽  
Paul Stolee ◽  
Kerry Byrne ◽  
Samantha Meyer ◽  
Paul Holyoke
Keyword(s):  
Older Adults ◽  
Health Care ◽  
Home Care ◽  
Family Caregivers ◽  
Health Care Providers ◽  
Care Planning ◽  
Care Providers

scholarly journals Passport for Care: Implementing the Survivorship Care Plan

2009 ◽  
Vol 5 (3) ◽  
pp. 110-112 ◽  
Author(s):  
Marc E. Horowitz ◽  
Michael Fordis ◽  
Susan Krause ◽  
Julie McKellar ◽  
David G. Poplack
Keyword(s):  
United States ◽  
Health Care ◽  
Health Care Providers ◽  
The United States ◽  
Care Plan ◽  
Survivorship Care Plan ◽  
Survivorship Care ◽  
Care Providers ◽  
Long Term Survivors

Approximately 12,000 children in the United States are diagnosed with cancer each year, and roughly 75% of these patients become long-term survivors. The Passport for Care was developed to support these survivors and their health care providers.

scholarly journals ADVANCE CARE PLANNING AMONG LGBT PEOPLE: AN INTEGRATIVE REVIEW AND ANALYSIS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S181-S182
Author(s):  
Luisa Kcomt ◽  
Kevin M Gorey
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Living Will ◽  
Rapid Review ◽  
Care Planning ◽  
Care Providers ◽  
Advanced Illness ◽  
Transgender People ◽  
Lgbt People ◽  
Healthcare Proxy

Abstract Lesbian, gay, bisexual, and transgender people (LGBT) with advanced illness need culturally competent advanced care planning (ACP) services but often encounter structural and communication barriers. The aim of this study was to examine the ACP behaviors of LGBT people. An integrative rapid review method was used to search electronic databases for peer reviewed and non-peer reviewed publications between 2010 to 2017. Eight survey instruments comprising 30 prevalence estimates were analyzed. ACP discussions between LGBT people and their primary health care providers were rare, with an overall prevalence of 10%. Transgender people were 50–70% less likely than their LGB counterparts to have a living will or to have appointed a healthcare proxy. These results suggest there is a critical need for greater cultural competency among health care providers serving LGBT populations. Social workers can play a key role in advocacy and social justice for LGBT individuals with advanced illness.

scholarly journals INCOMPLETE ADVANCE CARE PLANNING? CORRELATES OF PLANNING WITHOUT PERSONAL CONVERSATIONS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S425-S426
Author(s):  
Kathrin Boerner ◽  
Deborah Carr ◽  
Katherine M Ornstein ◽  
Sara Moorman
Keyword(s):  
Health Care ◽  
Social Isolation ◽  
Health Care Providers ◽  
Advance Care Planning ◽  
Health Care Professionals ◽  
Living Will ◽  
Community Dwelling ◽  
Care Planning ◽  
Care Providers ◽  
Advance Care

Abstract In the course of advance care planning (ACP), people may elect any of the following: a living will, a durable power of attorney for health care, and discussions with family members and health care providers. A small proportion of planners complete legal documents without discussing them with others (formal planning only, FPO). If people who have done FPO become incapacitated, their family and health care professionals may lack guidance on how to direct their care. To better understand this group, we drew on four large surveys of community-dwelling adults. Social isolation, measured by living alone and lack of a confidante, increased the odds of FPO across all studies. We also found some evidence that economic disadvantage and depressive symptoms were linked with FPO. We discuss implications for policy and practice, underscoring that ACP is yet another important domain affected by the crisis of social isolation in old age.

Provider Tools for Advance Care Planning and Goals of Care Discussions: A Systematic Review

2018 ◽  
Vol 35 (8) ◽  
pp. 1123-1132 ◽  
Author(s):  
Jeff Myers ◽  
Roxanne Cosby ◽  
Danusia Gzik ◽  
Ingrid Harle ◽  
Deb Harrold ◽  
...  
Keyword(s):  
Systematic Review ◽  
Health Care ◽  
Decision Making ◽  
Health Care Providers ◽  
Advance Care Planning ◽  
Care Planning ◽  
Care Providers ◽  
Provider Education ◽  
Goals Of Care ◽  
Advance Care

Background: Advance care planning and goals of care discussions involve the exploration of what is most important to a person, including their values and beliefs in preparation for health-care decision-making. Advance care planning conversations focus on planning for future health care, ensuring that an incapable person’s wishes are known and can guide the person’s substitute decision maker for future decision-making. Goals of care discussions focus on preparing for current decision-making by ensuring the person’s goals guide this process. Aim: To provide evidence regarding tools and/or practices available for use by health-care providers to effectively facilitate advance care planning conversations and/or goals of care discussions. Data sources: A systematic review was conducted focusing on guidelines, randomized trials, comparative studies, and noncomparative studies. Databases searched included MEDLINE, EMBASE, and the proceedings of the International Advance Care Planning Conference and the American Society of Clinical Oncology Palliative Care Symposium. Conclusions: Although several studies report positive findings, there is a lack of consistent patient outcome evidence to support any one clinical tool for use in advance care planning or goals of care discussions. Effective advance care planning conversations at both the population and the individual level require provider education and communication skill development, standardized and accessible documentation, quality improvement initiatives, and system-wide coordination to impact the population level. There is a need for research focused on goals of care discussions, to clarify the purpose and expected outcomes of these discussions, and to clearly differentiate goals of care from advance care planning.

Sign in / Sign up

Export Citation Format

Share Document