scholarly journals The Continuum of HIV Care in Rural Communities in the United States and Canada

2017 ◽  
Vol 75 (1) ◽  
pp. 35-44 ◽  
Author(s):  
Katherine R. Schafer ◽  
Helmut Albrecht ◽  
Rebecca Dillingham ◽  
Robert S. Hogg ◽  
Denise Jaworsky ◽  
...  
2019 ◽  
Author(s):  
Vincent Guilamo-Ramos ◽  
Marco Thimm-Kaiser ◽  
Adam Benzekri ◽  
Donna Futterman

Despite significant progress in the fight against HIV/AIDS in the United States, HIV prevention and treatment disparities among key populations remain a national public health concern. While new HIV diagnoses are increasing among people under age 30—in particular among racial, ethnic, and sexual minority adolescents and young adults (AYA)—dominant prevention and treatment paradigms too often inadequately consider the unique HIV service needs of AYA. To address this gap, we characterize persistent and largely overlooked AYA disparities across the HIV prevention and treatment continuum, identify AYA-specific limitations in extant resources for improving HIV service delivery in the United States, and propose a novel AYA-centered differentiated care framework adapted to the unique ecological and developmental factors shaping engagement, adherence, and retention in HIV services among AYA. Shifting the paradigm for AYA to differentiated HIV care is a promising approach that warrants implementation and evaluation as part of reinforced national efforts to end the HIV epidemic in the United States by 2030.


2020 ◽  
Vol 22 (Supplement_2) ◽  
pp. ii79-ii79
Author(s):  
Kathryn Nevel ◽  
Samuel Capouch ◽  
Lisa Arnold ◽  
Katherine Peters ◽  
Nimish Mohile ◽  
...  

Abstract BACKGROUND Patients in rural communities have less access to optimal cancer care and clinical trials. For GBM, access to experimental therapies, and consideration of a clinical trial is embedded in national guidelines. Still, the availability of clinical trials to rural communities, representing 20% of the US population, has not been described. METHODS We queried ClinicalTrials.gov for glioblastoma interventional treatment trials opened between 1/2010 and 1/2020 in the United States. We created a Structured Query Language database and leveraged Google application programming interfaces (API) Places to find name and street addresses for the sites, and Google’s Geocode API to determine the county location. Counties were classified by US Department of Agriculture Rural-Urban Continuum Codes (RUCC 1–3 = urban and RUCC 4–9 = rural). We used z-ratios for rural-urban statistical comparisons. RESULTS We identified 406 interventional treatment trials for GBM at 1491 unique sites. 8.7% of unique sites were in rural settings. Rural sites opened an average of 1.7 trials/site and urban sites 2.8 trials/site from 1/2010–1/2020. Rural sites offered more phase II trials (63% vs 57%, p= 0.03) and fewer phase I trials (22% vs 28%, p= 0.01) than urban sites. Rural locations were more likely to offer federally-sponsored trials (p< 0.002). There were no investigator-initiated or single-institution trials offered at rural locations, and only 1% of industry trials were offered rurally. DISCUSSION Clinical trials for GBM were rarely open in rural areas, and were more dependent on federal funding. Clinical trials are likely difficult to access for rural patients, and this has important implications for the generalizability of research as well as how we engage the field of neuro-oncology and patient advocacy groups in improving patient access to trials. Increasing the number of clinical trials in rural locations may enable more rural patients to access and enroll in GBM studies.


2021 ◽  
Vol 70 ◽  
pp. 102613
Author(s):  
Darius Scott ◽  
Nastacia M. Pereira ◽  
Sayward E. Harrison ◽  
Meagan Zarwell ◽  
Kamla Sanasi-Bhola ◽  
...  

2016 ◽  
Vol 11 (2) ◽  
pp. 221-232 ◽  
Author(s):  
Barbara J. Blake ◽  
Gloria A. Jones Taylor ◽  
Richard L. Sowell

The HIV (human immunodeficiency virus) epidemic in the United States remains a serious public health concern. Despite treatment and prevention efforts, approximately 50,000 new HIV cases are transmitted each year. Estimates indicate that 44% of all people diagnosed with HIV are living in the southern region of the United States. African Americans represent 13.2% of the United States population; however, 44% (19,540) of reported new HIV cases in 2014 were diagnosed within this ethnic group. The majority of cases were diagnosed in men (73%, 14,305). In the United States, it is estimated that 21% of adults living with HIV are 50 years or older. There exists limited data regarding how well African American men are aging with HIV disease. The purpose of this study was to explore the perceptions and experiences of older African American men living with HIV in rural Georgia. Data were collected from 35 older African American men living with HIV using focus groups and face-to-face personal interviews. Qualitative content analysis revealed six overlapping themes: (1) Stigma; (2) Doing Fine, Most of the Time; (3) Coping With Age-Related Diseases and HIV; (4) Self-Care; (5) Family Support; and (6) Access to Resources. The findings from this study provide new insights into the lives of rural HIV-infected African American men, expands our understanding of how they manage the disease, and why many return to or remain in rural communities.


2015 ◽  
Vol 19 (10) ◽  
pp. 1735-1741 ◽  
Author(s):  
Jeeyon Janet Kim ◽  
◽  
Cathy Maulsby ◽  
Rose Zulliger ◽  
Kriti Jain ◽  
...  

2006 ◽  
Vol 43 (Supplement_4) ◽  
pp. S191-S196 ◽  
Author(s):  
Lynn E. Sullivan ◽  
Robert D. Bruce ◽  
David Haltiwanger ◽  
Gregory M. Lucas ◽  
Lois Eldred ◽  
...  

2018 ◽  
Vol 133 (5) ◽  
pp. 532-542
Author(s):  
Mary-Margaret Andrews ◽  
Deborah S. Storm ◽  
Carolyn K. Burr ◽  
Erika Aaron ◽  
Mary Jo Hoyt ◽  
...  

Eliminating perinatal transmission of HIV and improving the care of childbearing women living with HIV in the United States require public health and clinical leadership. The Comprehensive Care Workgroup of the Elimination of Perinatal HIV Transmission Stakeholders Group, sponsored by the Centers for Disease Control and Prevention, developed a concept of perinatal HIV service coordination (PHSC) and identified 6 core functions through (1) semistructured exploratory interviews with contacts in 11 state or city health departments from April 2011 through February 2012, (2) literature review and summary of data on gaps in services and outcomes, and (3) group meetings from August 2010 through June 2017. We discuss leadership strategies for implementing the core functions of PHSC: strategic planning, access to services, real-time case finding, care coordination, comprehensive care, and data and case reviews. PHSC provides a systematic approach to optimize services and close gaps in perinatal HIV prevention and the HIV care continuum for childbearing women that can be individualized for jurisdictions with varying needs.


2021 ◽  

Research on Latinx athletes and their communities is a significant contribution to sports studies. Recent studies on sports in Latinx communities have highlighted regional teams, transnational relationships, race and ethnicity, and sociopolitical structures. Still, the need continues for more attention on Latinx sport identity and community. Although basketball originated in the United States, the sport played a significant political role in regions throughout Latin America and the Caribbean. For example, in Mexico, President Lázaro Cárdenas (r. 1934–1940) introduced government reforms that included promoting sports; thus, in Oaxaca, Catholic missionaries used basketball as a socialization tool to strengthen relationships in rural communities (see Rios 2008 [cited under Society and Culture]). Rios 2019 (cited under Society and Culture) and Garcia 2014 (cited under History and Geography) are the primary texts dedicated to the history of basketball in Latin America and the importance of basketball to Latinx communities in the United States.


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