Beyond privacy policies - assessing inherent privacy risks of consumer health services

Author(s):  
J. H. Weber-Jahnke ◽  
J. B. Williams
2021 ◽  
Author(s):  
Daria Ilkina

This thesis investigates the privacy risks that m-learning app users face by identifying the personal information that m-learning apps collect from their users, and the privacy policies of these apps. It reveals that most of the m-learning applications have similar privacy policies, which seem to protect the interest of the providers rather than the users. The Privacy by Design framework is reviewed to determine whether it can help the developers address user privacy practices. The results from the sample of 260 participants suggest that users are less concerned with the collection of personal information that is non-identifiable. The survey also revealed that the users are more concerned when an app shares their personal information with third parties for commercial purposes than when it is shared with the government.


Author(s):  
Devjani Sen ◽  
Rukhsana Ahmed

With a growing number of health and wellness applications (apps), there is a need to explore exactly what third parties can legally do with personal data. Following a review of the online privacy policies of a select set of mobile health and fitness apps, this chapter assessed the privacy policies of four popular health and fitness apps, using a checklist that comprised five privacy risk categories. Privacy risks, were based on two questions: a) is important information missing to make informed decisions about the use of personal data? and b) is information being shared that might compromise the end-user's right to privacy of that information? The online privacy policies of each selected app was further examined to identify important privacy risks. From this, a separate checklist was completed and compared to reach an agreement of the presence or absence of each privacy risk category. This chapter concludes with a set of recommendations when designing privacy policies for the sharing of personal information collected from health and fitness apps.


Author(s):  
Devjani Sen ◽  
Rukhsana Ahmed

With a growing number of health and wellness applications (apps), there is a need to explore exactly what third parties can legally do with personal data. Following a review of the online privacy policies of a select set of mobile health and fitness apps, this chapter assessed the privacy policies of four popular health and fitness apps, using a checklist that comprised five privacy risk categories. Privacy risks, were based on two questions: a) is important information missing to make informed decisions about the use of personal data? and b) is information being shared that might compromise the end-user's right to privacy of that information? The online privacy policies of each selected app was further examined to identify important privacy risks. From this, a separate checklist was completed and compared to reach an agreement of the presence or absence of each privacy risk category. This chapter concludes with a set of recommendations when designing privacy policies for the sharing of personal information collected from health and fitness apps.


2017 ◽  
Vol 41 (6) ◽  
pp. 621 ◽  
Author(s):  
Lucia Vellar ◽  
Fiorina Mastroianni ◽  
Kelly Lambert

Objective The aim of the present study was to describe how one regional health service the Illawarra Shoalhaven Local Health District embedded health literacy principles into health systems over a 3-year period. Methods Using a case study approach, this article describes the development of key programs and the manner in which clinical incidents were used to create a health environment that allows consumers the right to equitably access quality health services and to participate in their own health care. Results The key outcomes demonstrating successful embedding of health literacy into health systems in this regional health service include the creation of a governance structure and web-based platform for developing and testing plain English consumer health information, a clearly defined process to engage with consumers, development of the health literacy ambassador training program and integrating health literacy into clinical quality improvement processes via a formal program with consumers to guide processes such as improvements to access and navigation around hospital sites. Conclusions The Illawarra Shoalhaven Local Health District has developed an evidence-based health literacy framework, guided by the core principles of universal precaution and organisational responsibility. Health literacy was also viewed as both an outcome and a process. The approach taken by the Illawarra Shoalhaven Local Health District to address poor health literacy in a coordinated way has been recognised by the Australian Commission on Safety and Quality in Health Care as an exemplar of a coordinated approach to embed health literacy into health systems. What is known about the topic? Poor health literacy is a significant national concern in Australia. The leadership, governance and consumer partnership culture of a health organisation can have considerable effects on an individual’s ability to access, understand and apply the health-related information and services available to them. Currently, only 40% of consumers in Australia have the health literacy skills needed to understand everyday health information to effectively access and use health services. What does this paper add? Addressing health literacy in a coordinated way has the potential to increase safety and quality of care. This paper outlines the practical and sustainable actions the Illawarra Shoalhaven Local Health District took to partner with consumers to address health literacy and to improve the health experience and health outcomes of consumers. Embedding health literacy into public health services requires a coordinated whole-of-organisation approach; it requires the integration of leadership and governance, revision of consumer health information and revision of consumer and staff processes to effect change and support the delivery of health-literate healthcare services. What are the implications for practitioners? Embedding health literacy into health systems promotes equitable, safe and quality healthcare. Practitioners in a health-literate environment adopt consumer-centred communication and care strategies, provide information in a way that is easy to understand and follow and involve consumers and their families in decisions regarding and management of the consumer’s care.


2020 ◽  
Author(s):  
Zhenni Ni ◽  
Yiying Wang ◽  
Yuxing Qian

BACKGROUND With the development of mobile health, chronic disease management applications have brought the possibility of reducing the burden of chronic diseases and also brought huge privacy risks to patients' health data. OBJECTIVE The purpose of the study is to analyze the extent to which chronic disease management apps comply with personal information security regulations. METHODS This article analyzed the privacy policies of 39 popular chronic disease management apps, introduced a scale based on personal information security specifications, and analyzed the compliance of privacy policies from various stages of the information life cycle. RESULTS 26 apps (66.7%) have a privacy policy and the average score of these apps is 39 points. CONCLUSIONS It was found that most chronic disease management apps in China have a privacy policy, but the content expression was ambiguous and unclear, and it did not meet the requirements of regulations. Besides, the security issues at the information destruction stage were ignored by most app vendors.


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