Personal Health Records (PHRs) as a tool to support Patient Initiated Follow Up (PIFU): a dermatology perspective

2021 ◽  
Author(s):  
K. Hussain ◽  
N.P. Patel
Keyword(s):  
Personal Health Records ◽  
Personal Health ◽  
Health Records

The uses of personal health records for communication among colorectal cancer survivors, caregivers, and providers (Preprint)

2019 ◽  
Author(s):  
Thomas Carr ◽  
David Haggstrom
Keyword(s):  
Colorectal Cancer ◽  
Cancer Survivors ◽  
Primary Care Physicians ◽  
Healthcare Providers ◽  
Personal Health Records ◽  
Personal Health ◽  
Discrete Observations ◽  
Health Records ◽  
Colorectal Cancer Survivors

BACKGROUND Personal Health Records (PHRs) may be useful for patient self-management, as well as participation in communication with their caregivers and healthcare providers. As each potential participant’s role is different, their perception of the best uses of a PHR may vary. OBJECTIVE The perspectives of patients, caregivers, and providers were all evaluated concurrently in relation to a PHR developed for colorectal cancer survivors. METHODS We explored group perceptions of a colorectal cancer (CRC) PHR prototype. Scenario-based testing across eight use cases, with semi-structured follow-up interviews, was videotaped in a human-computer interaction laboratory with patients, caregivers, and healthcare providers. Providers included oncology, gastroenterology, and primary care physicians. Discrete observations underwent grounded theory visual affinity analysis to identify emergent themes. RESULTS All groups noted the added value of linking the PHR to an electronic health record; tracking follow-up testing; and secure messaging. Patients and caregivers valued the journal as a tool for reflection and to receive emotional support. Providers felt the PHR would facilitate patient-physician communication, but worried that sharing journal access would make the doctor-patient relationship less professional and had reservations about the time burden of reviewing. CONCLUSIONS PHR perceptions differed by role, with providers seeing the PHR as informational, while patients and caregivers viewed the tool as more relational. Patients and providers should establish shared expectations about the optimal use of the PHR in the patient-provider relationship.

Popularity of Personal Health Records Growing

2008 ◽  
Vol 41 (3) ◽  
pp. 48-49
Author(s):  
MARY ELLEN SCHNEIDER
Keyword(s):  
Personal Health Records ◽  
Personal Health ◽  
Health Records

Examining non-critical health information seeking: A needs analysis for personal health records

2009 ◽  
Author(s):  
Margaux M. Price ◽  
Richard Pak ◽  
Hendrik Muller ◽  
Aideen Stronge ◽  
Jesse Breedlove
Keyword(s):  
Health Information ◽  
Information Seeking ◽  
Personal Health Records ◽  
Needs Analysis ◽  
Personal Health ◽  
Health Information Seeking ◽  
Health Records

Personal health records

2011 ◽  
Vol 17 (1) ◽  
pp. 63-71 ◽  
Author(s):  
Deborah Beranek Lafky ◽  
Thomas A. Horan
Keyword(s):  
Personal Health Records ◽  
Personal Health ◽  
Health Records

Secret Sharing-based Personal Health Records Management for the Internet of Health Things

2021 ◽  
pp. 103129
Author(s):  
Parsa Sarosh ◽  
Shabir A. Parah ◽  
G. Mohiuddin Bhat ◽  
Ali Asghar Heidari ◽  
Khan Muhammad
Keyword(s):  
Secret Sharing ◽  
Personal Health Records ◽  
The Internet ◽  
Personal Health ◽  
Records Management ◽  
Health Records

scholarly journals Section 1: Health and Clinical Management: Leveraging Information Technology to Improve Quality and Safety

2007 ◽  
Vol 16 (01) ◽  
pp. 22-29
Author(s):  
D. W. Bates ◽  
J. S. Einbinder
Keyword(s):  
Information Technology ◽  
Patient Safety ◽  
Clinical Data ◽  
Data Exchange ◽  
Personal Health Records ◽  
Personal Health ◽  
Health Records ◽  
Provider Behavior ◽  
Published Research ◽  
Improve Patient

SummaryTo examine five areas that we will be central to informatics research in the years to come: changing provider behavior and improving outcomes, secondary uses of clinical data, using health information technology to improve patient safety, personal health records, and clinical data exchange.Potential articles were identified through Medline and Internet searches and were selected for inclusion in this review by the authors.We review highlights from the literature in these areas over the past year, drawing attention to key points and opportunities for future work.Informatics may be a key tool for helping to improve patient care quality, safety, and efficiency. However, questions remain about how best to use existing technologies, deploy new ones, and to evaluate the effects. A great deal of research has been done on changing provider behavior, but most work to date has shown that process benefits are easier to achieve than outcomes benefits, especially for chronic diseases. Use of secondary data (data warehouses and disease registries) has enormous potential, though published research is scarce. It is now clear in most nations that one of the key tools for improving patient safety will be information technology— many more studies of different approaches are needed in this area. Finally, both personal health records and clinical data exchange appear to be potentially transformative developments, but much of the published research to date on these topics appears to be taking place in the U.S.— more research from other nations is needed.

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