scholarly journals Development of an inventory of goals using the International Classification of Functioning, Disability and Health in a population of non-ambulatory children and adolescents with cerebral palsy treated with botulinum toxin A

2016 ◽  
Vol 58 ◽  
pp. 76-77
Keyword(s):  
Cerebral Palsy ◽  
Botulinum Toxin ◽  
Children And Adolescents ◽  
Botulinum Toxin A ◽  
International Classification ◽  
International Classification Of Functioning ◽  
Disability And Health ◽  
Toxin A

scholarly journals Effects of Botulinum Toxin Treatment in Nonambulatory Children and Adolescents With Cerebral Palsy: Understanding Parents’ Perspectives

2018 ◽  
Vol 33 (11) ◽  
pp. 724-733 ◽  
Author(s):  
Linda Nguyen ◽  
Briano Di Rezze ◽  
Ronit Mesterman ◽  
Peter Rosenbaum ◽  
Jan Willem Gorter
Keyword(s):  
Cerebral Palsy ◽  
Botulinum Toxin ◽  
Children And Adolescents ◽  
Botulinum Toxin A ◽  
International Classification Of Functioning ◽  
Interpretive Description ◽  
Structured Interviews ◽  
Botulinum Toxin Treatment ◽  
The Right

Children and adolescents with cerebral palsy often receive botulinum toxin A (BoNT-A) to manage hypertonia. This qualitative study aimed to describe and categorize BoNT-A effects that parents observed using the WHO’s International Classification of Functioning, Disability and Health (ICF) framework. An interpretive description methodology was used; semi-structured interviews were conducted with 15 parents of nonambulatory young people with cerebral palsy (mean age 10.2 years, SD 3.9, 7 males) who received BoNT-A. Parents reported BoNT-A effects on each ICF category. Through interpretive description, an overall theme emerged: “finding the right path to do what is best.” Five subthemes included (1) Parents’ hopes, (2) Parents’ goals for their child, (3) Parents’ learning what works, (4) Parents’ reflections, and (5) Parents’ destination. This study provides insights into parents’ journeys of how they learned about BoNT-A effects in their child, which helped them to identify goals for future treatment.

scholarly journals Safety of Botulinum Toxin A in Children and Adolescents with Cerebral Palsy in a Pragmatic Setting

Toxins ◽  
2013 ◽  
Vol 5 (3) ◽  
pp. 524-536 ◽  
Author(s):  
Antigone Papavasiliou ◽  
Irene Nikaina ◽  
Katerina Foska ◽  
Panagiotis Bouros ◽  
George Mitsou ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Botulinum Toxin ◽  
Children And Adolescents ◽  
Botulinum Toxin A ◽  
Toxin A
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