scholarly journals Development and validation of a novel patient‐reported outcome measure in people with episodic migraine and chronic migraine: The Activity Impairment in Migraine Diary

2021 ◽  
Author(s):  
Richard B. Lipton ◽  
Pranav Gandhi ◽  
Jonathan Stokes ◽  
Mary Lynn Cala ◽  
Christopher J. Evans ◽  
...  
Keyword(s):  
Chronic Migraine ◽  
Outcome Measure ◽  
Episodic Migraine ◽  
Patient Reported Outcome ◽  
Activity Impairment ◽  
Patient Reported Outcome Measure ◽  
Patient Reported ◽  
Development And Validation

Development and validation of a disease specific renal stone patient reported outcome measure (PROM)

2019 ◽  
Vol 18 (1) ◽  
pp. e202-e203
Author(s):  
M. Ragab ◽  
J. Collie ◽  
N. Baldin ◽  
M. Tran ◽  
J. Armitage ◽  
...  
Keyword(s):  
Renal Stone ◽  
Outcome Measure ◽  
Patient Reported Outcome ◽  
Patient Reported Outcome Measure ◽  
Patient Reported ◽  
Development And Validation ◽  
Disease Specific

scholarly journals Development and validation of a new patient-reported outcome measure for patients with pressure ulcers: the PU-QOL instrument

2013 ◽  
Vol 11 (1) ◽  
pp. 95 ◽  
Author(s):  
Claudia Gorecki ◽  
Julia M Brown ◽  
Stefan Cano ◽  
Donna L Lamping ◽  
Michelle Briggs ◽  
...  
Keyword(s):  
Pressure Ulcers ◽  
Outcome Measure ◽  
Patient Reported Outcome ◽  
Patient Reported Outcome Measure ◽  
Patient Reported ◽  
Development And Validation

scholarly journals Development and validation of a new patient-reported outcome measure for peripheral nerve disorders of the hand, the I-HaND© Scale

2018 ◽  
Vol 43 (8) ◽  
pp. 864-874 ◽  
Author(s):  
Mark Ashwood ◽  
Christina Jerosch-Herold ◽  
Lee Shepstone
Keyword(s):  
Outcome Measure ◽  
Intraclass Correlation ◽  
Principal Component ◽  
Patient Reported Outcome ◽  
Face To Face ◽  
Patient Reported Outcome Measure ◽  
Patient Reported ◽  
Test Retest Reliability ◽  
Development And Validation ◽  
The Impact

Following guidelines from the Patient-Centred Outcomes Research Institute and using a mixed methods study, a new patient-reported outcome measure (PROM) for both nerve trauma and compression affecting the hand, the Impact of a Hand Nerve Disorders (I-HaND) Scale, was developed. Face-to-face interviews with 14 patients and subsequent pilot-testing with 61 patients resulted in the development of the 32-item PROM. A longitudinal validation study with 82 patients assessed the psychometric properties of the I-HaND. Content and construct validity was confirmed by cognitive interviews with patients and through principal component analysis. The I-HaND has high internal consistency (α = 0.98) and excellent test–retest reliability (intraclass correlation coefficient = 0.97). Responsiveness statistics showed that the I-HaND can detect change over 3 months and discriminate between improvers and non-improvers. We conclude that the I-HaND can be used as a PROM for people with a range of hand nerve disorders.

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