Let's talk about sex: lower limb amputation, sexual functioning and sexual well-being: a qualitative study of the partner's perspective

ObjectiveThe aim of this study is to explore the experiences of patients with primary bone cancer.DesignQualitative study design using semistructured interviews and focus groups.SettingHospitals across the UK and recruitment through UK sarcoma charities and support groups.MethodsSemistructured telephone/face-to-face interviews and focus groups with a purposive sample of 26 participants. Data were analysed using Framework Analysis.ParticipantsPatients (n=26) with primary bone cancer aged 13–77 years. The majority were male (69%), white (85%); diagnosed within 4 years (54%); and had lower limb sarcoma (65%). Ten participants had undergone an upper/lower limb amputation (39%).ResultsThe health-related quality-of-life domains of physical, emotional and social well-being and healthcare professionals’ role were the overarching themes of analysis. The physical domain anchored patient experiences. The intensity and length of treatment, the severity of side-effects, the level of disability after surgery and the uncertainty of their prognosis had an impact on patient’s self-image, confidence, mood and identity, and caused disruption to various aspects of the patients’ social life, including their relationships (emotional and sexual) and participation in work/school and leisure activities. Adaptation was influenced by the way patients dealt with stress and adversity, with some finding a new outlook in life, and others struggling with finding their ‘new normal’. Family and friends were the main source of support. Healthcare professional’s expertise and support was critical. Rehabilitation services had a considerable role in patient’s physical and emotional well-being, but inequitable access to these services was apparent.ConclusionsThis study described the impact of primary bone cancer on patients’ well-being and adjustment over time with the identification of influencing factors of better/worse experiences. It showed that impact was felt after end of treatment and affected patients at different life stages. Holistic models of survivorship care are needed.

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The Mental Health of Individuals With Post-Traumatic Lower Limb Amputation: A Qualitative Study

Journal of Patient Experience ◽

10.1177/2374373520932451 ◽

2020 ◽

Vol 7 (6) ◽

pp. 1665-1670

Author(s):

Nuray Şimsek ◽

Gülhan Küçük Öztürk ◽

Zeliha Nilüfer Nahya

Keyword(s):

Mental Health ◽

Qualitative Study ◽

Lower Extremity ◽

Lower Limb ◽

Self Esteem ◽

Lower Extremity Amputation ◽

Lower Limb Amputation ◽

Limb Amputation ◽

Post Traumatic ◽

Extremity Amputation

Aim: The study was performed in order to identify how the post-traumatic amputation of the lower extremity affects the mental health of the individuals. Methods: This study is a qualitative study. A total of 12 individuals with post-traumatic lower extremity amputation were interviewed. The data were collected using the personal information form and the interview form that includes the questions on the effect of amputation on mental health, which were designated by the researchers. Data obtained from the survey were evaluated to attain descriptive situation determination. Based on the analysis, the effects of post-traumatic lower extremity amputation on mental health were found 5 themes. Results: In the study, it was found that individuals with post-traumatic lower limb amputation changed their emotions and behaviors after amputation, their body image and self-esteem were negatively affected, their families and the society differentiated themselves, they had negative feelings about their future, and they needed mental support to develop coping skills. Conclusion: The study shows that after amputation, individuals have severe mental problems such as anger, introversion, helplessness, and decreased self-esteem. Negative attitude of their families, who are expected to be supportive during this period, negatively affect the adaptation process of the individuals. A notable point is that the individuals stated that they could talk and feel relieved and get supported if they had access to a mental health professional.

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