5 The international ‘care of the dying evaluation’ (CODE) project: using bereaved relatives to assess care for dying cancer patients in europe and south america

Abstract Background International studies indicate deficits in end-of-life care that can lead to distress for patients and their next-of-kin. The aim of the study was to translate and validate the “Care of the Dying Evaluation” (CODE) into German (CODE-GER). Methods Translation according to EORTC (European Organisation for Research and Treatment of Cancer) guidelines was followed by data collection to evaluate psychometric properties of CODE-GER. Participants were next-of-kin of patients who had died an expected death in two hospitals. They were invited to participate at least eight, but not later than 16 weeks after the patient’s death. To calculate construct validity, the Palliative care Outcome Scale (POS) was assessed. Difficulty and perceived strain of answering the questionnaire were assessed by a numeric scale (0–10). Results Out of 1137 next-of-kin eligible, 317 completed the questionnaire (response rate: 27.9%). Data from 237 main sample participants, 38 interraters and 55 next-of-kin who participated for repeated measurement were analysed. Overall internal consistency, α = 0.86, interrater reliability, ICC (1) = 0.79, and retest-reliability, ICC (1, 2) = 0.85, were good. Convergent validity between POS and CODE-GER, r = −.46, was satisfactory. A principal component analysis with varimax rotation showed a 7-factor solution. Difficulty, M = 2.2; SD ± 2.4, and perceived strain, M = 4.1; SD ± 3.0, of completing the questionnaire were rather low. Conclusion The results from the present study confirm CODE-GER as a reliable and valid instrument to assess the quality of care of the dying person. More over our study adds value to the original questionnaire by proposing a deepened analysis of obtained data. The development of seven subscales increases its potential for further surveys and research. Trial registration This study was registered retrospectively on the 25th of January 2018 at the German Clinical Trials Register (DRKS00013916).

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Survivorship of Cancer Patients in Nigeria: An Evidence for Aggressive Measures against Cancer in Developing Countries

World Journal of Social Science Research ◽

10.22158/wjssr.v2n2p289 ◽

2015 ◽

Vol 2 (2) ◽

pp. 289

Author(s):

Grace O. Korter ◽

Eghe M. Igbinehi

Keyword(s):

Lung Cancer ◽

Developing Countries ◽

Logistic Regression ◽

Regression Analysis ◽

Skin Cancer ◽

South America ◽

Prediction Model ◽

Cancer Patients ◽

Secondary Data ◽

Likelihood Ratio Tests

<p><em>More than 60% of the world’s total new annual cancer cases occur in Africa, Asia and Central and South America. The aim of this study was to build a predictive model for the two possible outcomes of cancer patients and to examine which of the several types of cancer was more deadly. Secondary data of 335 patients aged 11 to 90 years who received treatment for liver, lung, colon, colorectal, prostate, breast or skin cancer at LAUTECH teaching hospital between 2004 and 2010 was used for this analysis. Logistic regression analysis was conducted. The Hosmer and Lemeshow and Likelihood Ratio tests were used to determine the fit and significance of parameters of the model. Only the type of cancer suffered by patients contributed significantly to the prediction model. The odds of dying for patients with lung cancer were about 4 times that of other types of cancer. However, the incidence of liver, lung, colon, colorectal, prostate, breast and skin cancer was prevalent across patients aged 11 and 90 years, irrespective of sex. Lung cancer was found to be more deadly than other types of cancer observed in the sample.</em></p>

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Sikap Perawat terhadap Persiapan Kematian pada Pasien Kanker Stadium Lanjut

Jurnal Ilmu Keperawatan Medikal Bedah ◽

10.32584/jikmb.v3i1.471 ◽

2020 ◽

Vol 3 (1) ◽

pp. 1

Author(s):

Nurul Izah ◽

Fitria Handayani ◽

Henni Kusuma

Keyword(s):

End Of Life ◽

Cancer Patients ◽

Advanced Cancer ◽

End Of Life Care ◽

Sampling Technique ◽

Life Care ◽

Advanced Cancer Patients ◽

Attitudes Toward Death ◽

Positive Attitudes ◽

Care Of The Dying

Pasien kanker stadium lanjut atau tahap terminal secara umum mengalami kesulitan dalam penyembuhannya dan berakhir dengan kematian. Peran perawat sangat diperlukan dalam mempersiapkan kematian yang damai bagi pasien dengan kondisi ini dan keluarganya melalui perawatan menjelang ajal (end-of-life care). Sudut pandang terhadap kesiapan perawat dalam merawat pasien menjelang ajal dapat dijelaskan melalui sikapnya. Sikap perawat dapat mempengaruhi emosi dan perilaku perawat dalam merawat pasien terminal dan keluarganya. Penelitian ini bertujuan untuk mendeskripsikan sikap perawat terhadap persiapan kematian padapasien kanker stadium lanjut. Jenis penelitian ini adalah kuantitatif noneksperimental deskriptif survei. Teknik pengambilan sampel yang digunakan dalam penelitian ini adalah total sampling dengan jumlah sampel sebanyak 145 orang responden. Data penelitian ini dikumpulkan menggunakan kuesioner The Frommelt Attitude Toward Care of the Dying Scale (FATCOD). Hasil penelitian ini menunjukkan 76 orang dari 145 perawat (52,4%) memiliki sikap positif terhadap persiapan kematian yang damai bagi pasien kanker stadium lanjut. Hasil analisis lebih lanjut menunjukkan kedua domain sikap perawat mayoritas positif yakni 53,8% perawat memiliki sikap positif terhadap persiapan kematian bagi pasien kanker tahap terminal dan 57,2% perawat memiliki sikap positif terhadap persiapankeluarga menghadapi kematian pasien kanker stadium lanjut. Intervensi keperawatan bagi pasien kanker stadium lanjut menjelang ajal dan keluarga perlu ditingkatkan. Sangat penting untuk perawat berkomunikasi dengan pasien dan keluarga mereka dalam membahas tentang masalah akhir kehidupan untuk meningkatkan kualitas hidupnya dan mempersiapkan kematian yang damai sertaberkualitas.Patients with advanced cancer are generally difficult to be healed and end up in death. Nurses' roles are needed in preparing the patient's death through end-of-life care. The nurses' viewpoint of readiness in caring for a dying patient can be explained through their attitudes. Nurses' attitudes will affect the nurses' emotions and actions while conducting end-of-life care for dying patients and their families. This study aims to determine the nurses' attitudes toward death preparation in advanced cancer patients at RSUP Dr. Kariadi Semarang. The type of this researchis descriptive quantitative non-experimental. The sampling technique used was total sampling with a sample of 145 respondents. Data was collected by using The Frommelt Attitude Toward Care of the Dying Scale (FATCOD) questionnaire. The results showed 76 of 145 nurses (52.4%) had positive attitudes toward death preparation. The result of the analysis of two domains showed 53.8% of nurses had positive attitudes toward death preparation in advanced cancer patients and also 57.2% of nurses had positive attitudes toward death preparation in families of advanced cancer patients. Nurse interventions are still needed to improve communication with patients and their families in discussing about end-of-life issues for improving the quality of life and good death.

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