scholarly journals P72 Feasibility of recruiting newborn babies with cystic fibrosis diagnosed by newborn screening to a clinical study with invasive outcome measures

Thorax ◽  
2010 ◽  
Vol 65 (Suppl 4) ◽  
pp. A107-A108
Author(s):  
J. Chudleigh ◽  
A.-F. Hoo ◽  
S. A. Prasad ◽  
D. Ahmed ◽  
A. Bush ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Clinical Study ◽  
Newborn Screening ◽  
Outcome Measures

ePS5.02 Development of mental health quality outcome measures in the Swedish Cystic Fibrosis Registry - pitfalls and possibilities

2020 ◽  
Vol 19 ◽  
pp. S49
Author(s):  
L. Backström Eriksson ◽  
C. Laine ◽  
I. de Monestrol ◽  
A. Lindblad ◽  
E. Bergenmar-Ivarsson ◽  
...  
Keyword(s):  
Mental Health ◽  
Cystic Fibrosis ◽  
Outcome Measures ◽  
Health Quality

scholarly journals Cystic fibrosis newborn screening does not delay the identification of cystic fibrosis in children with negative results

2011 ◽  
Vol 10 (5) ◽  
pp. 333-337 ◽  
Author(s):  
Joanna E. MacLean ◽  
Melinda Solomon ◽  
Mary Corey ◽  
Hiran Selvadurai
Keyword(s):  
Cystic Fibrosis ◽  
Newborn Screening ◽  
Negative Results

P011 Cystic fibrosis – newborn screening (CF-NBS) start-up in Flanders (Belgium): report of first evaluation after two years

2021 ◽  
Vol 20 ◽  
pp. S41-S42
Author(s):  
M. Proesmans ◽  
L. Régal ◽  
F. Eyskens ◽  
L. Roosens ◽  
L. Marcelis ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Newborn Screening ◽  
Start Up

P013 Evaluation of improvements of the cystic fibrosis newborn screening protocol in the Netherlands

2021 ◽  
Vol 20 ◽  
pp. S42
Author(s):  
M. Bouva ◽  
M.-L. Heijnen ◽  
B. Jakobs ◽  
K. van der Ploeg ◽  
J. Gille ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
The Netherlands ◽  
Newborn Screening ◽  
Screening Protocol
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